Aug 02, 2009 - 1:00 pm
I am 33 years old and was recently diagnosed with stage 4 primary peritoneal cancer. I am looking for others who are in the same boat. I am BRCA1+. I do not mind talking to women who have or had ovarian cancer, however, there is a difference between the 2. It is discouraging to come on this website and not even see a drop down box with Primary Peritoneal on it. It's rare, it's treated like ovarian, but it would still be nice to raise awareness.
I did EVERYTHING right - I get tested with the CA125 blood draw every 6 months along with a transvaginal ultrasound & pelvic ultrasound. The only thing that picked it up was an elevated CA125.
Hope to hear from some of you soon. I am in a study and I'm on cisplatin and taxol.