Kids

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cms9978
cms9978 Member Posts: 12
edited March 2014 in Emotional Support #1
I have four kids ages 11, 9, 4, and 2. How do I tell them about this illness I have? And that mommy is going to get worse before she gets better? My mom has offered to talk to them if I need her to. Is that a good idea or should I just buck up and do it myself?

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  • zahalene
    zahalene Member Posts: 670
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    My kids...
    were 1 and 12 when I was first diagnosed.
    Of course, the 1 yr old was too young to understand anything, but my 12 yr old daughter was just getting her breasts as I was loosing mine. That was hard.
    I would suggest that you and your mother both sit down with the kids together.
    Avoid going into medical details or long detailed explanations. Assure the kids that they will be well looked after whenever mom isn't feeling well. And encourage them to ask any questions they may have. Answer simply but honestly (age appropriately, of course.)
    But this process won't be covered in one 'talk'. As the days progress keep re-checking with your kids about what they are thinking and feeling. Expect some outbursts and possibly regression from the younger ones as they pick up on tension that they can not understand or verbalize about.
    Kids take their cues from us. If we appear to be calm in the face of the storm, our kids will gather confidence from us and come through like little troupers.
    By the way, my kids are now 24 and 35...both wonderful, strong adults in spite of all that cancer and other life-crises tried to do to us. God bless.
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
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    My grandchildren (like my own!) were 6 and 7 years old.
    My grandkids live less than 2 miles from me and are here every day and sleep over at least 1 or 2 nights a week, so we are very very close. When I got cancer they were 6 and 7. Their parents and I told them together, very early even before my surgery, because they knew something was wrong almost immediately. Little people can tell from the silences and strained worried looks and whispered conversations that something is up, and their imaginations can go just as wild as ours do, so that it is almost a relief for them to have some confirmation that something is happening in their family, and to know what it is. As young as they were, they knew what cancer was, and knew a child whose mother had died from it and had seen things on TV; they knew. I explained about the surgery and said how LUCKY I was that the cancer was in places in my guts that I didn't NEED anymore, so they could cut it out. We didn't really tell them all the 'maybes' beyond the surgery (no mention at first of chemo and radiation), but as these things came up, I always gave them my 'minimal' version of what was next, and then answered all of their questions. I remember that when I got out of the hospital, they had clearly been warned by everyone not to hug me hard or jump on me, and they were wary of this new 'fragile' Grammy. But as soon as I could, I had them sleep over, and during our usual 'pre-sleep' chat time, curled under the covers, I let them run their little fingers over my staples, and then they showed me THEIR newest boo-boos. It was evident that they understood the larger picture when Jakey asked me "Are you trying not to die?" And they were both satisfied and comforted when I said that "Yes, that's it exactly."

    And throughout my chemo and radiation and the many months of baldness, their kindness to me proved to me that a children can rise to the occasion. I finished my last treatment July 1st (9 months of treatment), and this week is 'Camp Grandma'. Back when I was having chemo and my immunity got too low to be around them with their endless winter colds, we promised each other that just as soon as possible, they could come and spend a whole week and sleep over every night and we'd do something fun every day. Gotta go! I hear them getting up!
  • terato
    terato Member Posts: 375
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    My grandchildren (like my own!) were 6 and 7 years old.
    My grandkids live less than 2 miles from me and are here every day and sleep over at least 1 or 2 nights a week, so we are very very close. When I got cancer they were 6 and 7. Their parents and I told them together, very early even before my surgery, because they knew something was wrong almost immediately. Little people can tell from the silences and strained worried looks and whispered conversations that something is up, and their imaginations can go just as wild as ours do, so that it is almost a relief for them to have some confirmation that something is happening in their family, and to know what it is. As young as they were, they knew what cancer was, and knew a child whose mother had died from it and had seen things on TV; they knew. I explained about the surgery and said how LUCKY I was that the cancer was in places in my guts that I didn't NEED anymore, so they could cut it out. We didn't really tell them all the 'maybes' beyond the surgery (no mention at first of chemo and radiation), but as these things came up, I always gave them my 'minimal' version of what was next, and then answered all of their questions. I remember that when I got out of the hospital, they had clearly been warned by everyone not to hug me hard or jump on me, and they were wary of this new 'fragile' Grammy. But as soon as I could, I had them sleep over, and during our usual 'pre-sleep' chat time, curled under the covers, I let them run their little fingers over my staples, and then they showed me THEIR newest boo-boos. It was evident that they understood the larger picture when Jakey asked me "Are you trying not to die?" And they were both satisfied and comforted when I said that "Yes, that's it exactly."

    And throughout my chemo and radiation and the many months of baldness, their kindness to me proved to me that a children can rise to the occasion. I finished my last treatment July 1st (9 months of treatment), and this week is 'Camp Grandma'. Back when I was having chemo and my immunity got too low to be around them with their endless winter colds, we promised each other that just as soon as possible, they could come and spend a whole week and sleep over every night and we'd do something fun every day. Gotta go! I hear them getting up!

    Za and Linda, Thank you!
    Not having children, I did not know how to respond adequately to this post which deserved the wisdom and sensitivity you both amply provided. Moms are the source of sanity and wisdom in the world.

    Thanks again!

    Love and Courage!

    Rick
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
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    terato said:

    Za and Linda, Thank you!
    Not having children, I did not know how to respond adequately to this post which deserved the wisdom and sensitivity you both amply provided. Moms are the source of sanity and wisdom in the world.

    Thanks again!

    Love and Courage!

    Rick

    Amen
    I agree, Rick. I have children and still did not know how to respond to the prospect of telling very young children.

    Outstanding responses by these ladies, and I am hopeful that the responses will be taken to heart.

    Take care, all,

    Joe
  • SIRENAF42
    SIRENAF42 Member Posts: 202
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    Hardest day ever
    The hardest day after hearing I had cancer was the day I had to sit down with my children who were 10 and 14 at the time. They knew I was having issues with my sinus, since I had all ready undergone 2 surgeries, but how do you tell them you have to move away for 2 months while you are getting radiation treatments for cancer.

    I finally just had to do it, the anxiety of telling them was worse than actually telling them. I just sat them down and said life has hit me with a medical challenge. Our family rule was to never quit when you get a challenge, so I have to go away and fight it. I explianed what cancer was, where it was and how MD Anderson was planning on treating it.

    My son asked me straight out if I was going to die. WORST moment of my life!!! I took a deep breath, fought back a river of tears and said... NO WAY, its just a bump in the road that I have to get over. I promised both of them no secrets, honesty and communication all the way through it, and that is exactly what I did.

    I kept them updated with photos, emails and phone calls and my family was there for them while I was gone. They built wonderful relationships with my father and my sister who moved into my house to take care of them. Relationships that they will hold dear forever!
  • Katrinka123
    Katrinka123 Member Posts: 51
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    It is hard to tell them
    My boys were 13 and 7 at the time of my diagnosis. My surgery was very rapid after my diagnosis (less than a week). I'd had many doctor appointments, tests and another proceedure leading up to my diagnosis. We all knew I wasn't feeling well, and was working towards discovering the problem and feeling better.

    I chose not to tell them about the cancer diagnosis as I was heading into my surgery. Without more information I was concerned it would just frighten them. I was not comfortable handing them that info, and not being able to answer questions that might follow. I wanted to be able to say the doctors found cancer, this is what they did during the surgery, and this is what was going to happen next, this is how we're going to handle it.

    It was so much easier for me to talk to them when I was armed with information. That might not be the right way for everyone, but it made things a lot easier for me and enabled me to answer questions that they had.

    I think only you know what's best for you and your children as far as how to present the information.

    Wishing you only the the very best!

    -Kat
  • dana789
    dana789 Member Posts: 8 Member
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    Get this book
    I think you should do it yourself, but maybe have her there with you if that's a possibility.

    There's an non-profit counseling organization in my community that works with kids whose parents have cancer. They recommended a book called "Can I Still Kiss You - Answering Your Children's Questions About Cancer." It was a little too elementary for my son (he's 13) but reading it was still very helpful for me, and it gave me more confidence in handling the subject.

    Best of luck to you,
    Dana
  • RE
    RE Member Posts: 4,591 Member
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    childen
    Children are amazingly resilient, my own were 15 and 17 much older than yours and they handled it like champs. Now in 07 I had a recurrence and my grandson lived with me at the time (still does along with his two siblings). He was only 3 at the time, we chose to tell him that Grandma was sick and to get better she would have to go to the doctor for some very special medicine that would help me. We explained that I would be tired and my hair would fall out so he would not be too surprised. He did great, he wanted to help his grandma and he did so in whatever fashion his little body could muster. It is important that they understand it takes time to get better, like the flu, first you get sicker than you get better (just a lot longer process.) It has to be in terms they can understand. Of course the 11 and 9 year old children will have a better concept of what is happening so I suggest honesty to a degree, spare them all the details but be honest. Kids are smarter than we sometimes give them credit for and they are very caring little people. I wish you and your little ones all the best!

    RE
  • cms9978
    cms9978 Member Posts: 12
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    Thanks
    Thanks to everyone for the great ideas. I did sit down with them this last weekend and talked to them about it. My mom was there to help comfort and talk to them. It was the hardest thing I had to do. I feel bad that I did tell them, but I knew it had to be done before things get worse. They don't deserve the burden that I am having to put on them but I can't pretend that I can do this on my own. I will need their help to care for their younger brothers.
    Thanks again.
    Colleen
  • faithandprayer
    faithandprayer Member Posts: 177
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    It's all in the presentation
    Hi cms,
    I'm so sorry you have to go through this.

    I believe it's really about how you posture this with your children. They will take your lead. My were 4 and 7 when I was diagnosed this spring.

    We waited a few days...until we had as much accurate information as we could.
    Once we had a confirmed course of action, and I was comfortable and composed, my husband and I called them to the kitchen table for a sit down. It doesn't happen often, so we had their attention. We laid it out to them very "matter of factly" I knew we had to "sell" my 7 year old and, if so, the 4 year old would take his lead.

    Our son, the 7 year old, asked if I was going to die, like Grandma.
    My response:
    "My cancer is my cancer. Lot's of people have cancer and everyone's is different" and I followed up with: "Daddy is taking me to the best hospital with the best tools to try to get me well" - then, we talked about the chemo and that I would lose my hair (not from the cancer) because the drugs are SO great at getting the cancer, they even scare the hair out of me.

    We were very careful to involve them but not to put anything directly on them...we didn't go down the "mommy will need lots of love and support" or "mommy will need lots of help" road for fear they might someday blame themselves. We also said there were many questions we didn't yet have answers to, and suggested they keep those things in their prayers and promised to keep them updated. When we hit a benchmark, I'll give them a heads up PRIOR, ie, "I'm going for testing, this is a big step so lets pray" and then, I'll give them the news in abbreviated style" - "the test came back really good", etc.

    We have always been open and honest with our children and I leveraged that.
    At the end of our initial conversation, I could tell my son, the 7 year old was still a little uneasy. I walked over by him, bent down, grabbed his shoulders, looked him square in the eye and said, "Mommy has never lied to you, right?" - he agreed. Still looking him square in the eye...and completely convicted, I said "You DON'T have to worry right now...and Mommy will tell you if you do, okay?" - he agreed. I finished with, "until that time, you don't have to worry, deal?" - he bought.

    I believe this was rather effective, as a week later, while riding in the car I noticed he was quiet so I did a quick pulse check..."Are you worried about my cancer", he replied, "No, I'm worried about where I put my Pokemon cards, you told me not to worry about your cancer unless you tell me I need to" - LOL. Kids are amazing, aren't they?

    We've kept things as normal as possible for them, including my husband coaching my sons baseball team this summer. We do not focus on my cancer, it's only a little part of who I am so it really doesn't deserve consuming our lives. We keep them included on everything...they have been to chemo with me, each cut a ponytail when we shaved my head and have, in general, incorporated the entire ordeal into our lives as "matter of factly" as brushing your teeth and doing homework.

    ALSO:
    I also immediately notified the parents of close friends, teachers, etc. I asked that when my children told them that they please do not say "oh, I'm sorry" or "oh no" but posture it more with "wow, that's interesting news, how do you feel about it" or "what is your mommy going to do about it".

    We have amazing children, as I'm sure you do. I am pleased to report, I've continued to do pulse checks with their support network and everyone is amazed with how well they've adjusted, transitioned and accepted it...and, how little they actually think or talk about it. They are normal, happy children with a normal, happy mommy who just happens to have cancer.

    I will pray for your family and am cheering for you!
    -KC
  • sue Siwek
    sue Siwek Member Posts: 279
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    dana789 said:

    Get this book
    I think you should do it yourself, but maybe have her there with you if that's a possibility.

    There's an non-profit counseling organization in my community that works with kids whose parents have cancer. They recommended a book called "Can I Still Kiss You - Answering Your Children's Questions About Cancer." It was a little too elementary for my son (he's 13) but reading it was still very helpful for me, and it gave me more confidence in handling the subject.

    Best of luck to you,
    Dana

    i agree with you. my
    i agree with you. my children were much older when we told them about their father. but, they deserve to hear it from a person that they trust most. they will believe you because they trust you and if you can give them some semblance that this will pass, that you will try your hardest to come through this they will trust in that. having trusted loved ones around will reinforce confidence that all will be well.