Jun 27, 2009 - 8:40 am
Thank heavens for this web site and all you folks on here!!! Have seen all the drs. now and the radiologist yesterday. They are moving fast and that's good. Mon. get the mega dose of Erbatux, Tue. the mask and mapping, and feeding tube asap.Then the 6th I get another dose of Erbatux and first Rad. treatment Thanks to you all I knew what to expect and most of the questions to ask. Really like all my drs. although they're younger than my kids. Radiologist is really upbeat and explained that a lot of the stuff has advanced a whole lot in the last couple of years and that there wasn't the destruction of surrounding tissue that there used to be. Hope he isn't sounding too optimistic. I'd rather they painted a slightly darker picture, then if it turns out better it's like a bonus.
Once more, thank you all.
Oh, the nurse went out and brought a mask in and explained how they would make it and every thing. I've decided that when I get through this I'm going to get a nice piece of wood like they mount animal heads on and mount the mask on it and hang it on the wall.
Hang in there everyone!!! John