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Cytoxan and Taxotere...who's had this?

MAJW
Posts: 2515
Joined: May 2009

Starting this chemo cocktail on June 15........Anyone had this combo? Cytoxan and Taxotere? Then injections the day after to boost WBC..... Side effects? I know everyone is different......I will have 4 treatments of this, 3 weeks apart..(no port, thankfully)......I am more afraid of this than I was the lumpectomy surgery and lymph node removal........which turned out to not be a big deal at all, for me, that is.....

Would appreciate and be grateful to hear from anyone who has had this combo....Do you eat first, during, after? Can I drink water during the treatment? What can I expect during the actual treatment itself......Are there sensations when the drug enters my body? Any nausea while having the treatment? ACHES,pains,etc.? Any info would be so helpful.....thank you in advance........God Bless you all!
Nancy

debigog's picture
debigog
Posts: 6
Joined: Jun 2009

Hi Nancy,
I had cytoxan and taxotere for breast cancer starting in July 2007, same regemin as you
are going to have. I had my treatments on mondays, on thursday after each treatment, I
had muscle pain and on sunday after each treatment, I had bone pain. In July of 2008, I
started having hip pain, I now have back pain, hip and leg pain. I have had injections from
pain clinic twice and they have not done any good. I will go back a third time but I really
don't think it will help. I believe all of the pains are late term chemo related and wonder
if I will just have to live it. I wish you luck and do know that not everyone has the same
side effects. Other than the pain on thursdays and sundays, I went thru the chemo fine and
felt great other than those two days after each treatment.

CR1954's picture
CR1954
Posts: 1392
Joined: Jul 2008

The injection that you will be getting to raise white cell count is probably Neulasta. I got that injection after every chemo. I had a bit of aching in the legs and hips from that, for a couple of days. Some people do, some don't. I just took Tylenol for it.

I did NOT have the same chemo cocktail, but my onc ordered IV anti-nausea meds and also an Rx for pills at home to take preventatively for a few days after each infusion. Easier to try NOT to get nauseous, than it is to try & stop the nausea, once you have it.
I asked him how long the IV anti-nausea meds would last. He can be a very funny guy (humor-wise) and he said...Cindy, long enough so you will be outta here and not barfing in MY OFFICE!

CR

jakeca
Posts: 92
Joined: Dec 2008

I had the same chemo regimen Dec. 2008 to Feb. 2009. It wasn't awful. The first treatment went very easily on me. I took all of the anti-nausea meds as directed and was never sick. I was able to host my husband's family Christmas dinner about a week after my first infusion and to participate in all of the Christmas activities. The Neulasta injection made me a bit achy for a couple of days, but nothing serious.

Each infusion got just a bit worse than the one before as far as making me tired and "energyless." Nasty taste in my mouth--nothing tasted right. Lost my hair right before my second treatment. The last treatment was not so bad, probably all mental, since I was SO happy to be finished! I am fortunate and don't work outside my home, but for the most part, I felt I COULD have gone to work had I needed to, except for a few days.

Drink LOTS of water before, during and after treatments. I felt no strange sensations during treatments. Usually just watched TV, read, or played Nintendo DS. My sessions usually lasted about 3 1/2 hours. The chemo nurses are wonderful. Don't be afraid to ask questions. Eat what you feel like eating.

The whole thing wasn't all that bad, however, I would not want to do it again and certainly hope and pray I won't have to. Time drags--longest three months of my life--but it did eventually pass and it will for you, too.

Good luck. Hope you get by as easily as I did.

MAJW
Posts: 2515
Joined: May 2009

I so appreciate the replies.........you have eased my mind, considerably!! It's always the "fear of the unknown." This website is so wonderful, so full of kind, caring, supportive women in all stages of this dreaded disease........I feel blessed to have found this site and and the fantastic women who post.........What a blessing to be able to ask a question and get such valuable information, "first hand" from those who are actually experiencing the same thing......People like to say......."Oh I know how you feel".....they are well meaning but unless they have breast cancer and been through this "journey" they can't BEGIN to understand how we feel.......that's why this site is so valuable, physically and mentally.......

Again, thank you to all who took the time to reply.......God Bless
Nancy

babebussie's picture
babebussie
Posts: 150
Joined: May 2008

I had the mixture when i first started out in january 08 and i didnt have any side effects at all. I was blessed (oh god) was i blessed. I did 4 rounds and that shot the day after and not once did i have any horror stories to tell. Even after my surgery i had another 4 rounds of something else and didnt have any side effects from that either. (Once again God is good)

Good luck to you my friend.
Babe

MAJW
Posts: 2515
Joined: May 2009

Thanks Babe.......God Bless you too!

MAJW
Posts: 2515
Joined: May 2009

Thanks Babe.......God Bless you too!

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

Nancy, I had that combo plus a third drug every three weeks, six times. Side effects varied. I only had nausea on the 4th and 5th treatments. The lack of energy was the one constant that got worse as the treatments progressed, although not linearly. I was fine the first two times, tired the third time, really tired the fifth time, and fine the last treatment. In some ways, the Neulasta shot was worse than the chemo. I got heavy bone aches the day of the shot, but the pain was mostly gone by the next day. As for food, I could not eat during treatment -- not because I was nauseated (I wasn't), but because everything I ate in that room became associated with chemo. I still can't look at a certain brand of crackers without feeling sick... Other side effects included mouth sores (which I got under control and eliminated by rinsing with a prescription mouth wash and baking soda and water every night) and hair loss (nothing you can do about this last one I'm afraid). I had almost no taste changes, appetite issues, or weight gain/loss.

You should definitely drink during treatment and afterwards. You want to start flushing out all the extra drugs that you can. It actually sounds scarier than it is. It'll be tough, but you will definitely get through this.

Mimi

ohilly
Posts: 446
Joined: Jan 2008

I had the exact same treatment: Taxotere/Cytoxan, 4 treatments, each three weeks apart. My experience (don't know how typical) was very mild: I had no nausea and was able to work the whole time. I did have an allergic reaction (I got hot all over and had trouble breathing just for a moment) when they gave me the drugs, but then they gave me Benadryl and I was fine and just slept the whole time. The only side effects I experienced were losing my hair, a bad taste in my mouth which went away, and my two big toenails got kind of cracked. Other than that, I wasn't even tired.

Chemo is not the way it used to be (it used to be much rougher) from what I hear.

Let me know if there are any other questions I can answer for you.

Ohilly

mgm42
Posts: 494
Joined: Nov 2007

I had 4 infusions of cytoxan and taxotere every three weeks, followed by a nuelasta shot. Drink at least 2 -3 litres of water the day before, the day of and for two days after your infusion. It helps your system deal with the chemo intruder. I watched my favorite soap operas while I received my chemo. My husband would bring me a soda, ritz crackers and even a sandwich not to mention a snickers bar. I didn't always eat all of that stuff, but if I was feeling sorry for myself, it was there and it helped. The T/C cocktail never made me nauseated. I had a lot of other side effects (which all disappeared once chemo was over), but not nausea. I did develop a peculiar tasste in my mouth which made food taste OFF a bit. I lost about 12 pounds during chemo. I've kept it off since. My hair has grown back nicely, my nails are nice and strong, the eyebrows and lashes are looking pretty good, and the rotten taste is gone. As for aches and pains, yes, I had those, too, but my oncologist prescribed a pain killer which worked extremely well for me. Hang in there kiddo, you'll do fine. Ohilly and I went through the same treatment at the same time. She was my hero because she sailed through chemo and didn't miss work.
Hugs, Marilynn

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Kayla1
Posts: 101
Joined: Jun 2009

Hi Nancy,
Good luck tomorrow! I did not see your posting until now and you must be so relieved that so many had what seems to be an easier time than others.
I too am having the same treatment but not until June 25 and up until now I have been out of my mind trying not to imagine the worst.

Ladies, THANK YOU SO MUCH! I know everyone is different but this information was also so helpful to me!!

Bless you all,
K

lady4law
Posts: 7
Joined: Jun 2009

I had Cytoxan and Taxotere, 5 treatments, each (except the last) followed with the Nuelasta shot.

I was given 3 Emend pills for nausea (think spelling is correct). I took one pill an hour before the infusion was started, then the second with my Nuelastia shot on day 2. I had to return to the hospital on day 3 so they could give me the third pill. The reason it was administered in this fashion was my insurance would not pay for the drug. The three pills were about $500. By having it administered at the hospital, they had to pay for the drug. It really worked and kept my head out of the toilet.

I did have an issue with regards to the Nuelastia. I don't recall how bad the reactions were regarding the first shot as I did not have the Emend for that treatment and had a very bad time. However with each treatment, the pain got worse. Within about 6-8 hours after the 4th shot, (4th treatment) the pain in my legs and back became so severe I had to be taken to the ER. My Oncologist said NO MORE. Thank God I only had one more treatment.

My hair fell out exactly 2 weeks after my first treatment. I have a friend that also went through the same treatment and her hair held out for about 19-20 days. I think it came out the day before her second treatment.

I did experience one thing, that few others have. My finger nails fell out - a number of times too. After each treatment a line would appear on my nails, then my nail would come off at that line. I did not lose my toenails, maybe because they are thicker?

I did lose all my body hair, ALL of it, including my eyelashes and eyebrows, legs underarms, and ....However the strange thing, it all grew back except for under my arms. Perhaps the only good thing that has come from the BC, I may never have to shave my underarms again.

Try and get a wig and some scarfs, this week before your hair starts coming out. You may not want to go looking for head coverings once your hair starts coming out.

Oh, one more thing. I tried to prepare some meals and freeze them before my chemo and surgeries. However after I tended to each what ever my son or husband brought me.

Good luck. The chemo is a pain, but it doesn't last long. Before you know it - it will be over and you'll be back on the road to health.

Jean

ender
Posts: 167
Joined: Apr 2011

Hi Jean,

Im sorry to hear that you suffered through chemo treatment.

Im about to go on a similar regiment as yours. I will have 4 rounds of the same chemo cocktail that you had. I am curious about how you say you lost all body hair and your nails. If you don't mind me asking, what was your hair- and nailgrowth like before chemo? I have very thick and strong hair and nails that grow fast. I figure that this will make me more likely to lose my nails and all hair, just like you did. What was your experience?

Eva

dstrow
Posts: 2
Joined: Jun 2009

I just got done with the taxo/cytoxan combo three weeks ago. I had a few side effects also. I lost my hair after two weeks, my fingernails are discolored and painful after 4th treatment. The most annoying side effect for me was that my eyes water constantly. I guess the taxotere causes a stenosis in the tear ducts. I went tot he eye dr and they tried to stretch out my tear ducts but it would not last any longer than a couple of hours and they were back to tearing. I think they are a little bit better this week. I was able to work through all of my treatments. I received chemo on thursday and either sat. or sun. were hard days for me. Mostly tired and achey, never nausea. I gain a few pounds on the chemo but now I see my ankles are swelling at the end of the day. Not sure if that is from the chemo or not but these days I blame everything on the chemo. I started radiation now and also will have a hysterectomy next week. Breast cancer is the pits thats for sure but you can get through it. I just need to get my strength back now. Good Luck. YOu can do this

jpares
Posts: 1
Joined: Jun 2009

My treatment starts on July 1st. I too will be getting the TC combo every three weeks for a total of four treatment. I'm so scared! I hate the thought of loosing my hair and of any future side affects these drugs might give. Depression has been a problem since my diagnosis in March but I am going to start a yoga class with my daughter to try and get myself mentally ready to face this challenge. I'm still not healed from surgery in early May so that worries me as well.

Thank you for your comments. At least I know what to potentially expect.

God bless you all,

Jack

Terri5
Posts: 24
Joined: Jul 2009

Something you might try for the depression, that seemed to help me when I was going through my surgery snd chemo. I kept a journal, I wrote in it every time I felt scared or nervous, or just plan old over-whelmed. You can write anything and not worry what someone thinks or if your hurting their feelings. Put everything down in your journal, it really takes alot off your mind.

BunnyJane's picture
BunnyJane
Posts: 213
Joined: Jul 2009

I start the TC treatments on July 24th and have come 'here' looking for support and to hopefully ease my mind. I think that all of us that have been down this road suffer from some sort of depression, so you are definitely not alone- just hope that it goes away after the treatment stops!
I highly recommend yoga and brisk walks to relieve anxiety and depression- I sleep much better after I take my yoga class.

If anyone has any suggestions on how to prepare for the next 12 weeks, I'd love to hear from you. Hope, healing, and happiness to everyone on this site.......Jane

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Christmas Girl
Posts: 3687
Joined: Apr 2009

As you already can see from this thread, we're all here to support and encourage each other.

Chemo is a different experience for each, though also with many similarities. Best advice: take all your meds exactly as prescribed, drink lots of water, and "listen" to your own body. When you feel good, do things you enjoy. When you feel not so good, rest and take care.

Visit us often, whenever you'd like or need to...

Best wishes to you, Jane.

BunnyJane's picture
BunnyJane
Posts: 213
Joined: Jul 2009

Thanks Christmas Girl. If all goes well, I'll be done with chemo and rads by Xmas!

Christmas Girl's picture
Christmas Girl
Posts: 3687
Joined: Apr 2009

Of course, I would say so, now wouldn't I?

Christmas Girl was Born on Christmas Day. So, you'll be done by my birthday!

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

Hi Nancy! I didn't have to have chemo, but, I wanted to wish you the best of luck with your treatment! I know the ones that have had it, will chime in and answer your questions.

Good luck, Noel

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Hi, Nancy, I also had AC plus a third drug, a total of 6 treatments, one every third week. Everyone has pretty well covered the side effects. I can also attest that the treatment is doable. Most side effects are managed; just be sure to report any promptly so that your onc. can change or add meds as needed.

As far as eating, it was recommended to me that I eat something light beforehand. I would usually have yogurt or crackers, just something to have on my stomach. The treatment center provided snacks and beverages, and you can eat and drink while having a treatment. And, as several advised, drink PLENTY of water, before, during, and after treatments. I drank at least one-half gallon a day.

As far as sensations, once or twice I did feel a kind of burning. No nausea during the treatment itself. You are given meds to take beforehand. Anti-nausea meds are also in the IV. I had no aches or pains while having the treatments, either. Though you may want some Emla cream for your port, if you have one. This is an anesthetic cream that you can slather on the port so you won't feel the IV being inserted. It is not that painful but your doc. can give you a prescription if you think you'd like one.

Hope this helps, Nancy. Please keep in touch, and post any questions or concerns you have. There are many here who will be glad to help you on this journey.

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cwestbro
Posts: 15
Joined: Jun 2009

I had both Taxotere and Cytoxan, also the WBC shots. Because of all of the nausea meds I did really pretty well, but even with the additional injections I suffered from lots of infections, but I teach kindergarten...lots of runny noses!! I did teach through it, only taking off the day I had chemo. The shot makes you ache like crazy! The cytoxan made me feel like I had sinus pressure, but really not too bad. My husband and I took a walk around a lake just across from my dr. after each treatment. I will tell you to plan on being exhausted. I would take naps at lunch and fall asleep in the car on the way home...and go straight to bed once I got home. Really, though it wasn't like you think chemo will be. I'll be thinking of you and wishing you the best! (Also, make sure to take some fun stuff to do during chemo...beading, fun mags. books, etc... it makes the time go faster!)

~Cherri

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Hi there! I am new here today. June 15th was my first TC tx. I am on day 13 now and have not lost my hair yet. I feel pretty good now, but am not looking forward to my next treatment. MAJW, was hoping we could talk more & compare notes, since we are on the same schedule.

Laurie

survivorbc09
Posts: 4378
Joined: Jun 2009

Hi Laurie and welcome. I can't comment on chemo, as, I didn't have to take it. Just wishing you good luck!

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Jadie
Posts: 727
Joined: Mar 2004

Glad that you are feeling better. I lost my hair just before my second treatment (3 weeks).It is a very hard thing to go through. We will be here for you whenever you need support or have questions or just want to vent.

Why don't you start your own thread so everyone can say hi. They might miss this thread. Others here are just starting treatment also.

Hugs
Jadie<3

tippicanoe
Posts: 1
Joined: Jun 2009

I just finished my last treatment (4 total) and it went very well. I did have very low white count after my first round, so have had Neulasta as well. I receive Herceptin weekly. Side affects: lost my hair (still have wispy strands, so not bald!, after round 4 I had flu like side effects, very achy, no energy and now at my nadir (day 10) am still quite lethargic, Neulasta I think causes aches and pains, but I take a Claritin daily and do believe this helps counter act this. I definitely have gone into full menopause (age 51) night sweats, hot flashes and that is almost as annoying as low energy!

I have been religious about erercise--unless I feel really weak, I have been on my spin bike daily for 30-40 minutes and I believe this also helps you rebound. WATER, WATER, WaTER---it does get the toxins out.

I have been blessed with the most wonderful caregivers ever---the oncology staff at my cancer center are simply incredible. Will never forget them.

I have 6 weeks of radiation, reconstruction, a year of herceptin and 5 years of Tamoxfin. I was stage 2 1.1 cm, no nodes...but had the lovely HER2 Neu protein receptor that was extremely agressive---hence the full complement of treatments.

I am down one segment of treatment and moving forward ....that is what is essential. Not that it is a walk-in-the-park, but...you do get through it.

Best wishes to all you breast cancer survivors...and recent patients. Your information and experience helps me everyday!

MAJW
Posts: 2515
Joined: May 2009

SAME HERE.........I am on day 14 and still have hair........but I almost wish it would just go ahead and fall out....Yet another thing to "wait on!" My scalp is very tender and sort of burns.........I bought my wig two weeks ago, have actually "practiced" wearing it.....giggle...I wear my hair short and the wig is awesome! It looks better than my real hair.......my best friend said that! haha My hairdresser told me what to look for.......it has slight variations in color so it looks more natural...
I have not had the first bit of nausea......YEAH!!!!!!!! The WORST for me was the after effects of the Neulasta injection. YIKES!!!! That truly kicked my butt! I had that on Tuesday and by Saturday night I was in agony......ended up having to call the doctor on Sunday morning. Saw my oncologist on Monday and they gave me Rx's for strong pain meds and muscle relaxants for next time..... the muscle spasms were awful.......all across my chest.......back, charly horses in my legs.....and I thought the chemo was going to be the "big bad boy!" Couple that with diarrhea and I was a real PEACH! AT one point I even had to laugh at myself.......I was on the toliet with the rhea and a spasm hit me and almost knockced me off the toliet....That was the highlight of my evening......giggle... But at least now I know what to expect NEXT TIME......am armed with strong meds and I'm ready!
Let's keep in touch with each other's progress......
Prayers and best wishes to you Laurie
Nancy

aztec45's picture
aztec45
Posts: 757
Joined: Jul 2009

I had the same experience with the shot. The pain in my lower back, hips, knees, legs and ankles was almost unbearable. At one point, I was on my back like a turtle trying to get some relief for my back. Getting up to deal with the diarrhea was an adventure in itself. This pain started at 5 PM on Thursday and lasted until 4 AM Friday.

I would like to know what pain meds and muscle relaxants you guys were given to deal with this. The nurse practicioner prescribed a tylonal that requires a script but I do not have faith that this will work.

P

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Hi Nancy,

good to hear from you! I had my hubby shave my head yesterday because hair was falling in clumps and grossing me out...I just love how it looks, but more keeps coming out. I know before long I will be shiny. I am feeling tired again today. One week until our next treatment-I am not looking forward to it. Blood work today was good, WBC's a little high, but that is from the Neulasta. Talk to you soon,

Laurie

MAJW
Posts: 2515
Joined: May 2009

I keep "losing" you.....duh here! Yes, I'm with you.........hair falling out like crazy.....had it "buzzed" this past Tuesday, now little whiskers are falling out all over the place.......it's not as traumatic as I thought it would be.....my husband said....."it's sexy".......I said, "you need the Rx in your glasses changed!" but it was sweet of him to say that.....We will celebrate 40 years of marriage this month....high school sweethearts....

Are you getting anxious about the next chemo.......I actually am NOT at this time, but probably, come Sunday evening I will be......I want to get them over with! My doc gave me Valium to take on Sundays.....never took that before but I do NOW! It's the lowest possible dosage and it does take the edge off...Saw the radiation oncologist on Wednesday.....will go Sept 9 to be fitted for the "cast/form" and tattoing for my radiation which will probably start sometime in September......he said they usually start it 3-6 weeks after the last chemo, to give the body a chance to recoup.......I said I wanted to start as soon as possible.....again, I WANT THIS OVER WITH! I dread the Neulasta shot more than the chemo.....I had a horrible time with that.......did okay with the pain for the first 3 days....then that Saturday night.....UGH! horrible muscle spasms and pain.....now I have pain meds and muscle relaxants for the next time.......so I'm ready!

Stay in touch..and good luck and best wishes!
Nancy

tommaseena's picture
tommaseena
Posts: 1771
Joined: Feb 2009

Trick I found that worked when those little stubbles start to fall out and they will and they pick you like crazy is get one of those lint brushes that has the tape stuff and roll it on your head--takes them off and feels much better.

As for the Neulasta shot--it will cause bone and muscle pain/discomfort---ask your oncologist about Claritin--it worked for me and I am still taking it everyday even though I don't get the Neulasta shot anymore. Taxol can cause some pain as well so that is why I take it.

Hope these little tips help.

Margo

Bev1969's picture
Bev1969
Posts: 48
Joined: Jul 2009

I am a week behind you. I had my first treatment of Cytoxan/Taxotere on June 22. I had Emend, Zofram, and Decadron for anti-nausea and a couple anti-allergic drugs including Benadryl. I took a book to read since they told me it would take four hours but the Benadryl made me sleepy so I just slept through the whole thing. So far they have not said anything about giving me the Neulasta shot although I see several people here are getting that. My experience with the first round of treatment has been very good. They had also given me some Compazine to take at home for nausea if needed. I never really needed it. My only problem was some diarrhea on day six and day nine but I just took some Immodium for that. I went wig shopping Wednesday but so far have not lost any hair.

survivorbc09
Posts: 4378
Joined: Jun 2009

Just want to welcome you Nancy and let you know that we are all here to support you!

elm3544's picture
elm3544
Posts: 748
Joined: Jul 2009

Hello all,
I just had my first treatment on Monday, June 29. I too will have a total of 4 treatments, 3 weeks apart with Neulasta. I felt a sore throat and headache right after the Cytoxin. I have felt mild nausea a couple times a day and am incredibly tired!
I was told that I would not feel any effects from the Neulasta for at least 3 days. I went to work that day and stayed a whole 1 1/2 hours!
I have experienced pain in my body, mostly my legs and feet each day since. Today I have had the worst heartburn. I am wondering how long this goes on? Does it continue each day until the next treatment or do we get a "break" from this!

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Nancy,

Here is to a good treatment day tomorrow. I hope all goes well for both of us (and anyone else having tx 7/6!)Drink plenty of water & rest!

Laurie

Kayla1's picture
Kayla1
Posts: 101
Joined: Jun 2009

Because I have acid reflux and knew the Decadron could bother it I went on Prilosec for a week. I should have stayed on it because I now am taking tums everyday until the Prilosec can start working again.
I hope it gets better for you.
K

Kayla1's picture
Kayla1
Posts: 101
Joined: Jun 2009

Nancy,
Good luck tomorrow with your 2nd treatment, I hope all goes well!
K

addis71
Posts: 2
Joined: Jul 2009

I had a mastectomy in Feb 09. I took Cytoxan & Taxotere but mine was done by infusion every 3 weeks. Had total 4 treatments. Just finished my last treatment on June 8th & started my Tamoxefin almost two weeks ago. I know chemo can be frightening thing to think about, but my oncologist told me this was a milder type chemo. They gave me a drip bag of Prednisone & a drip bag of anitibiotics before each treatment. I did not have any problems with nausea, but I did have some stomach upset for the week following & experience some bloatiness/gas. I had headaches and some muscle and joint pain, but nothing that I could not tolerate. The thing that I had the hardest time with was the fatigue which usually lasted anywhere from 3 days to a week out after each treatment.
What helped me most was my Faith in GOD!! I think I did really well with my treatments and it was not because of anything I was doing, it was becaue of GOD's mercy & grace. I give HIM all the glory!!!!
Pray up and go into each treatment treatments with a positive attitude.. You will do fine!
God Bless You!!

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Let the hot flashes begin! I am going for a nap, will check in later.

Kayla1's picture
Kayla1
Posts: 101
Joined: Jun 2009

Hey Nancy & Laurie,
I hope you both did well today! Here's to lots of rest and water!
K

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

I don't know if it was because I just wasn't positive enough, or what, but I was so sick! I could hardly move. My legs were so heavy, my whole body hurt, my hands & feet tingled, my eyes were blurry. I had midnite nausea...I did drink at least a gallon of water thru the entire day starting at 6am. Thank GOD I feel better now and just ate some toast-perfect golden brown & am now enjoying a cuppa decaf tea. I go for my Neulasta at 1pm, so back to bed I will be going for awhile. I hope for a SE free day for everyone as well as myself.

Kayla1's picture
Kayla1
Posts: 101
Joined: Jun 2009

I am so sorry you are having a really hard time. I hope you get something to make you feel better and here is to a better day tomorrow!

Soft hug coming your way.
K

dorismac
Posts: 4
Joined: Jul 2009

I have had the same treatments as you. I began in March and ended in May. I had 4 treatments, three weeks apart. I prayed everyday that I would not get sick and I would not lose any hair. I never had any sickness or lost any hair. I did have a reaction while receiving my 2nd treatment. I begin to get light headed and dizzy and felt like I was going to pass out. They stoppped the treatment and gave me benadryl and then everything was fine. I was given benadryl before the treatments for treatment 3 and 4 and everything was fine.
I had no problems after the treatments and I never felt tired or weak. You will be in my prayers.

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Really-you never lost your hair? Wow! Good for you? I am as bald as little old man. You must have a great connection with the Lord. I pray daily, for myself and for others...and tons of prayer & postive energy coming from my support group-gotta love the love! I can appreciate the power of prayer in allowing me to feel relatively normal and able to get up and go most days. My past chemo day (Monday)illness took me TOTALLY by But yesterday was great, and i feel good now & plan to go to work this morning for a few hours.
I hope & pray for good days for all of us.

MAJW
Posts: 2515
Joined: May 2009

I am so sorry you had such a lousy "chemo day".......yuk! Hang in there.......WE ARE HALF WAY DONE NOW............2 down 2 to go! Knock wood, I am doing well......had no problem with chemo on Monday....I actually couldn't believe how calm I was when I got to the cancer center along with the hubby.....he even remarked on it.....I think it was prayers being answered by God, as I pray for strength and courage to get through this.....I guess, also, I felt like I knew what to expect. Had the Neulasta shot yesterday morning.......waiting on those side effects to kick in, bone pain, muscle spasms.....but so far so good, with everything.......Plus I have plenty of Vicodin and muscle relaxants if the pain starts........the "hair stubble" from where I had it buzzed is falling out..I look like GI JOE! Don't wear my wig around the house, just a pretty scarf......I maybe going bald but I am going to be comfortable, doing it! Hang in there, my friend.......we'll get through this!
And hopefully your next infusion will go easier.....stay in touch!
N

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Hi there,

day 2 & 3 much much better. Now tomorrow will begin the bone pain. I cannot help but anticipate it, I will pray it doesn't come for either of us. I will be off the next 4 days to accomodate my potential SE. All in all, I went to to work today at 6:15 am & worked 7.5 hours. It is nice because I own my own business, and can go in to work anytime, so if I am up to it later this week, I will go in. Laundry is done, house is clean-ish...I get so much done on this steroid high! lost all the weight I gained on chemo day-life is good right now!

Take care Nancy and everyone else!

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

Again, I a dreading it. I was so sick last time. I pray for a better chemo session this day.
Hope everyone is doing well.

BunnyJane's picture
BunnyJane
Posts: 213
Joined: Jul 2009

How was #3? Hope is was easier than the last one. I had my first treatment on Friday. Monday was a rough day, but things are looking up this AM. Hope you are doing well!

Jane

TCGgal's picture
TCGgal
Posts: 13
Joined: Jun 2009

was ok, came home & was very tired with heavy legs & dry eyes. Slept on & off through the night. Better but still very tired today-neulasta shot earlier today.I am ok with nausea due to emend, zofran & compazine, along with steroids.

Looking forward to getting this over with! One more treatment in just 20 days!YAY!
Oh, regrowth of hair is falling out already!

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