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Can we do a ROLL CALL with everyone posting their name, cancer diagnosis, & where they are in treatment?

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

We have so many wonderful new people posting and I have been so busy with treatments and trying to keep my head above water at work. I am afraid I haven't really welcomed everyone (I APOLOGIZE; you can't possibly KNOW how glad I am that you all have found us!), and I am having trouble keeping everyone straight in my poor chemo-brained head.

So could you each just post under this thread with the name you'd like us to call you, what your cancer diagnosis is (if you have it yet), and where you are in your treatment. And if you want to say where you live, that would be cool too. I'll start it off:

Linda Procopio:
Stage III-c UPSC, radical hysterectomy 10/10/09; just finished 6 rounds of carboplatin/paciltaxol (sp?); with 8 weeks of radiation coming up after I recover from the chemo. I live in central Pennsylvania.

SettledSue's picture
SettledSue
Posts: 24
Joined: May 2012

I'm Susan in central NJ and was diagnosed wth clear cell endometrial cancer 3/28/12. I had a hysterectomy 4/02, have had 3 brachytherapy treatments and just had 5th of scheduled 6 carboplatin/taxol treatments. I am 61.

beila
Posts: 97
Joined: Sep 2012

liz....did you actually get to have discussions with NIH???
Could you tell me how you got to do this?

I am a doctor myself, and thought that this would enable me to talk to other MDs about my case (USPC did not respond to Taxol/Carbo)
I have been trying Dana Farber in Boston and Sloan Kettering in NY, but they will only do formal consult

I have and appt with Medical Oncologist at Toronto's cancer centre, Princess Margaret Hosp on Oct 22, but want to arrive educated about other chemo options

Please let me know how I can get through and have conversations with NIH

Thanks, and I am very glad you feel great and are walking the dogs...mine has been very patient with less walks than before...I feel fine except for post chemo fatigue

Beila

Mammi
Posts: 3
Joined: Apr 2011

Wow! Great to see so many of us here! Good luck to everyone!

Tina Jenkins: adeno endometrial carcenoma Stage II-b 2005, radical hysterectomy 7/17/05, 3 internal radiation treatments 2005. Treated at the University of Iowa & live in Iowa.

Goldamillie
Posts: 26
Joined: Oct 2012

I have this since July 2010. I hope this finds you.

Best

Golda Millie in Baltimore MD

DoonyL7
Posts: 33
Joined: Sep 2012

hello linda,
My name is Lorna. I have Stage IIIA Grade 3 UPSC, diagnosed in June. Had surgery, 3 rounds of carbo/tozol chemo. I am one week into radiation which they tell me I will finish on Nov 21. Oh Joy, I get to do another round of chemo for the holidays. I live in western Az.

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