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survivors of Terminal Stage 4 lung cancer

Stardust1
Posts: 44
Joined: Jun 2008

Dear Members,
Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation.

God Bless All

Stardust

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Stardust, there are indeed survivors of Stage IV lung cancer, some of them on this very site. I am not sure, however, that any of them were told that their particular 'version' was 'terminal'.

The only exception to that that I know of is me, and my story is sort of strange, as I really didn't have stage IV; they just thought I did due to the spread.

Still, I have at least a couple of friends on this site who are stage IV survivors, one with both small and non-small cell, and the other with small cell, if I am not mistaken.

One recently received a proclamation of NED (No Evidence of Disease) and the other is in at least his third year of college (you CAN teach an old dog new tricks, it seems :) ).

But I would not want to falsely raise your hopes.

If docs are providing treatment (radiation) then they at least have hope of extending life, quality life, for the person we are talking about it here. I would advise that since that time cannot be precisely measured even in the worst case scenario, that it be lived as if every day were the last, spent enjoying life, friends, family, spent loving and laughing.

Life IS precious.

I know this does not help much, but please know that we are getting closer and closer to actually finding ways to reverse cancers; it is just a matter of hanging in there, in my opinion.

Incidentally, and I do not say this flippantly, birth is a terminal disease.

Take care,

Joe

suebloom
Posts: 2
Joined: Apr 2009

Hey Joe.....what is different about your "version"? I was diagnosed 7/08 with stage iv lung cancer due to one metastatic site in some lymph nodes under my arm. Just wondering what your story is?

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

suebloom:

I was diagnosed with head/neck cancer the first of september, 2005, surgery in october, chemo and rads into january of '06. In June of '07 results of a cat scan showed 'cancer' across both of my lungs, shotgun-spread. No surgery, no rads, only palliative chemo-therapy offered, and the advice that I had 'a minimum of ten months to live.'

In the meantime, I started taking Keflex for an infection in my jaw and lower face area. Subsequent CAT and PET scans (about two months later) showed that the 'cancer' had disappeared, with one exception: it had clearly been a lung infection of some sort, misread by the experts.

Ultimately, the one remaining node was removed and biopsied, and though it proved to be squamous cell cancer (same as my head/neck cancer) they decided to remove that lower right lung lobe since there was no evidence of any cancer around it. (The node was too small to stage or to determine whether it was indeed metastasis from the tongue/neck.)

Last november ('08) I was diagnosed NED and received the same dx just three weeks ago.

I have a page and a blog on this site, if you would care to read more.

Best wishes to you, suebloom!

Take care,

Joe

nanaof7
Posts: 127
Joined: Feb 2009

was it you that said the most embarrassing thing is to tell people you are going to die and then you don't I heard that somewhere and kinda of experienced that drs said 3-6 months and a year later I am doing well tumors have shrunk I will keep my prognosis to myself from now on lol thanks Pat

nanaof7
Posts: 127
Joined: Feb 2009

thanks for any help you can give my dr. is not very effective

mainiac
Posts: 1
Joined: Sep 2010

hi suebloom,

my daughter is diag. stage iv non operable lung cancer. would you be willing to share your experience? she also had a met. to one node under her arm

thank you

mcbriz
Posts: 14
Joined: Jun 2009

Joe, to your last comment... as my friend said "We are ALL Stage IV."

RunnerCPA
Posts: 8
Joined: Oct 2009

My dad was just diagnosed with Cancer Unknown Source - Adneocarsinoma. It has metastisized. It is in his lungs, mediastinum and right femur. Someone asked me if his cancer is terminal? I said, "Aren't we all terminal?" I don't like that word really and choose not to refer to my dad's cancer as that...he just was diagnosed and started three types of chemo this week. They can't operate so I am praying the chemo slows this type of cancer down...I hope you have a very nice day.

Skybuf's picture
Skybuf
Posts: 144
Joined: Mar 2007

Hi Soccerfreak, remember me Skybug.....was on the breast cancer chat and well.....now here I am again, lung ca.....just diagnosed as secondary....on meds and having to do chemo rada again.....like a rollercoaster eh!

marijune
Posts: 45
Joined: Jan 2010

Skybuf, I had breast cancer 5 years ago, now thru a tumor marker test I was told I have lung cancer in right lung and 2 in lymph nodes. started chemo and radiation. How are you making out?

realiti
Posts: 6
Joined: Sep 2010

Hi there, I know its extremely expensive, but just check it out.
I just found out and I started the research. My father has Lung Ca.

My best wishes!

key words: secondary metastatic lung cancer, Royal Brompton Hospital, London, " Lung Zapper".

charlespiercey
Posts: 3
Joined: Sep 2010

http://www.dailymail.co.uk/sciencetech/article-1311146/Lung-Zapper-fires-equivalent-power-70-ovens-tumours-size-postage-stamp.html

That is an article in London about its use there and in Germany.

Jaya 1
Posts: 5
Joined: Aug 2011

could you please tell me what kind of chemo you are taking and how are you doing now?

ellenm4's picture
ellenm4
Posts: 124
Joined: Dec 2011

Sorry to hear of your secondary cancer Skybug. I too had breast cancer in 2008, stage 2b. Just a few weeks ago I was told I had lung cancer and had part of my lung removed.I have not been staged yet, but I did have the port installed. Weird....left breast and left lung! I shall keep you in my prayers. May the new year bring us all hope for a cure. Never give up and never stop having faith!

Jacobman
Posts: 1
Joined: Sep 2010

My Grandpa, age 69, died of type IV lung cancer on December 23, 2009. He was diagnosed with type IV in August of '09. I am 13 now I was just a few weeks from my birthday when he died. I turned 12 two weeks before he was diagnosed. I am here to tell you his story. He started with lung cancer then was later told that the cancer was spreading to his brain and that he had only about a 8% chance to live. We were there December 17 2009. I held his hand as he fell asleep and the last words I heard was, "I love you and hope you stay safe." Then I didn't know what he meant but on the 23 I knew that he was saying he wouldn't make it. 2 days before Christmas. Christmas will never be the same. If there are any survivors of type IV cancer or People who have lost loved ones by any cancer. Go to
www.cancerwillnotwin.webs.com/ to show how they are appreciated. You can even tell there names and it will be put on the website for many to see who was lost or lived from cancer. And to all who lost someone or who survived cancer we will not forget you.

salusa
Posts: 1
Joined: Feb 2011

hi Jacobman...my father just diagnosed with lung ca amonth ago...and he also has brain metastasis just like ur grandpa...can u please just tell me what symptoms ur grandpa had because o brain met? I wonder if he had any seizures or complained from parasthesia or paralysis, I don't have any hope in my dad'd case but at least we have to provide a good care for him in his last days...please I will wait for your reply...thanks

cjochoate
Posts: 5
Joined: Mar 2011

mY husband was diagnoised with stage 4 lung cancer with brain mentoias had surgery 2/19/11 had balance issues sent to rehab hospital came home 3/15/11.he is under going heavy radiation treatments and second round of chemo starts Monday.all we can do if trust the big man upstairs and pray

Gilo72
Posts: 1
Joined: Jan 2012

My father was diagnosed at the end of August. They found a spot on his lung. He went into the hospital a seemingly healthy man and came out 10 days later and seemed as if he aged 20 years. He also died on December 23, 2011 and I miss him. I have a daughters the oldest who is 11 1/2. Can you tell me how you have handled your loss.

Thank you

TPring
Posts: 3
Joined: Feb 2011

Hello Joe,
I just want to see how you are doing now. My father just got diagnosed with the same cancer as you.

nessaducky
Posts: 3
Joined: Jun 2011

Joe,

My mom was just diagnosed with stage 4 non small cell lung cancer which has metastasized to the pleural lining and space outside the pleural lining of her right lung. She is still up and about and wearing her high heels. She is strong and amazing and forever an inspiration to me. I would like to know what your course of treatment has been. We are just now trying to get her in with doctors and finding her treatment as soon and as fast as we can. This is all so sudden, but I know my mom will get through this and overcome it with God. I am just trying to educate myself with disease and am looking for any and all help.

I appreciate any response to this post. God Bless you!!

-Vanessa

Kyra
Posts: 1
Joined: Aug 2011

Vanessa

In May I was also diagnosed with stage 4 lung cancer which metastasized to the pleural lining. I immediatley had surgery to stabilize my left lung(it was collapsing due to the fluid pooling). I have 3 tumors and was told my only option was chemo, however pathology reports showed that my particular mutation responded well to a pill form of treatment called Tarceva. After 7 weeks on this pill all 3 tumors had reduced to almost half their size. While this is fantastic news, the down side is that eventually one of two things will happen-either the cancer will become immune to the Tarceva or my body will no longer to be able to tolerate the toxicity. According to my doctor most people are able to withstand this for 9-12 months, but she does have 1 patient that has been on it for 6 years.
The most difficult thing for my now is trying to learn to cope with this disease. I'm a 52 year old grandmother and have NEVER been sick before. I've always been very active and was even into powerlifting and body building until this.
I pray for you and your mother. God Bless!

tampamurray
Posts: 2
Joined: Aug 2011

I was diagnosed with Stage I nsclc in March 2006, had surgery to remove one lobe of my right lung, followed by 4 rounds of chemo. Up until August 2010, all of my scans remained stable, then another tumor appeared in the same lung, with one lymph node being involved. Because this was a recurrence with mets to the lymph node, I was now stage IV. I had 4 more rounds of chemo, followed by CyberKnife radiation to the tumor. Unfortunately, surgery to remove the lymph node wasn't an option because it is very close to my heart. Although the CyberKnife seems to have taken care of the tumor, my most recent scan showed 4 more lymph nodes involved, as well as an additional tumor in my left lung. So, not good news. My Oncologist wants to start me on Tarceva. From what I've read, there are some pretty bad side effects. How are you tolerating it?

mgt
Posts: 2
Joined: Jul 2012

found out july 4th stage 4 doctor prescribed tarceva- get ready for a bad rash did not work Iam now on a weekly infusion of erbitrux and once every 3 weeks of avsatain no progression last 6 months Iam seeking anywhere a trial of mdx 1106

Dentson
Posts: 1
Joined: Dec 2011

Vanessa. My situation seems almost identical to yours except Mom's is left side. She had a "port" implanted today and is scheduled to begin Chemo Dec.27th. She is up and about and doing for herself as if there was no stage IV. We are hoping for the best but really don't know what to expect.If it helps I'm wishing you the best of luck and will try and get back to you as things progress.

marshall fox
Posts: 2
Joined: Mar 2013

 I too was diagnosed with stage 4 lung cancer. I had a 3 cm growth in my upper right lung and another growth lower in the right lung that had invaded and partially distroyed a rib. I had 38 radiation treatments while taking chemo at the same time  after that I had just chemo at an increased dosage. The treatment is difficult with many side effects but I was determined to see it through. I was told 2 weeks ago that there was no further sign of the cancer and the rib was actually healing. It may come back but for now no cancer can be found. With Gods help I plan to use this additional time wisely. Cancer doesn' have to be an immediate death sentence. Never under estimate the power of prayer. I never thought I would be alive to writh this message.

Marshall Fox

 

 

 

 

 

 

 

JPare93372
Posts: 7
Joined: Mar 2013

If doctors said you we terminal and gave a time frame I "appreciate their honesty".

This tells me they are not current on treatment. You need to find new doctors and treatment center. I don't want to give you false hope but treatment is constantly changing.I realize prognosis is poor but getting better every day.

Search your computer and find help

le_sarah
Posts: 2
Joined: May 2013

hi.. so i'm wondering, if the doctors doesn't give you radiation treatments anymore, then there's no hope?.. my uncle just had his operation yesterday, water with blood being taken out from his lungs., he was diagnosed with a stage IV lung cancer, and we just knew it 2 weeks ago, he never even smoked and had been living a healthy lifestyle.. they said he'll just live for about 6-10 months.. is there no other way to prolong his life? treatments or others? i've no idea how our family's gonna handle this since he has no wife or kids of his own.. haven't they found anything to cure cancer yet... 

Stardust1
Posts: 44
Joined: Jun 2008

Dear Soccerfreak,
Thank you so much for explaining Stage 4 to Terminal. I understand now,Thank You again, for your knowledge and kindness. God Bless & Take Care. I realize my Sister is in God's Hands Now, on the time she has with us. And I believe the Doctor's don't know the amount of time she has left with us.
Sincerely
Stardust

ravenmad
Posts: 1
Joined: Sep 2009

Hi, My younger sister, 52 years old, was just diagnosed 6 days ago with lung cancer which has spread to several other organs. Today she starts chemo. There are four of us girls and we are just beside ourselves with worry. Our parents are in their late 70's and are equally blown away. Any words of encouragement would be greatly appreciated. As for everyone else going through the same difficult time my prayers are with all of you. Thanks.

my5sister's picture
my5sister
Posts: 8
Joined: May 2010

I am truely sorry, My sister had stage 4 lung,bone etc
If you would like to read more please go to http://dianedeacon.memory-of.com/About.aspx She had a day to day log she was writing. She sadly passed away 6/26/10
My thoughts and prayers are with your family.
God Bless

Stardust1
Posts: 44
Joined: Jun 2008

Dear Members,
Soccerfreaks,mentioned there were survivors to Lung Cancer Stage 4,please reply.

Stardust1

Greggriggs's picture
Greggriggs
Posts: 132
Joined: Dec 2006

I am 3an1/2 years an going
Bless ya and prayers to all of you.
Greg

Gabias
Posts: 10
Joined: Aug 2009

Dear Greg,

I am VERY thankfull to GOD that you are a survivor. It make me happy to hear that there is "HOPE". Eversince my dad's diagnosis, I have gotten much closer to GOD and I owe it to my DAD. At the same time, I pray to GOD to keep my dad safe.

My question to you is: CAN you please tell me what treatments did you receive that you are a survivor now? I have been a nervous wreck eversince I found out about my dad. To me, he is EVERY THING I have to live for. God Bless You. Jerry

rlotempio2
Posts: 6
Joined: Jun 2010

I am just interested in what treatments you went through and if they informed you that you could only be treated not cured just like my grandmother. Im petrified of losing my only real mother in this world. Any advice or information would help. Thank you and God Bless.

Rachael

PeterJr
Posts: 1
Joined: Aug 2010

My father age 85 was diagnosed with stage 4 lung cancer in July 2009. He was told he had 6 months to live. Well my father has always been one that will decide his destiny. Here is what I and several of my family member did.

1) We put him on a diet of cancer fighting foods
2) We cut his sugar intake as much as possible. He has been a diabetic for 30 years anyway.
3) No carbonized sodas
4) Plenty of water
5) We Prayed
6) Keep stress away and try to keep his spirits high.
7) We Talked about the Cancer

He immediately started Chemo. After all the treatments as cat scan was performed. He was told by the Doctors that his stage 4 Cancer is now Stage 2 Cancer. It was decided to give his radiation. He went through all the treatments except the last two and was told to go home and he would be examined in about a month. Two weeks ago my father went back for his cat scan from head to toe. The Doctors could not find the cancer!

I do not know what the future holds for my Dad and Cancer. All I do know is that he is healthy now!

I hope this helps with Caring for your Grandma!

wisezer@verizon.net
Posts: 3
Joined: Aug 2010

Thanks for the encouraging words. I am 56. Non-smoking female.I was diagnosed on July 15, 2010. They found a tumor in my lower right lung next to a Pulmonary embolism. They admitted me to the hospital for the emboli and started me on Lovenox which I am still taking. I have brain mets. Two weeks ago they completely removed a tumor on the brain but I have two small tumors that they are going to use radiation on later. They wanted to start Chemo right away. I had my first treament yesterday, Taxal,Carboplatin, and Avastin. Today I am getting a shot of Neolasta to increase my neutrophils(WBC's). This will be every three weeks. Not sure when the radiation starts. We are doing targeted radiation. I have learned that this cancer has a poor prognosis. I want to be one of the 2% to make to 5 years. I will let you know of my progress. I take one day at a time. I was working 60 hours a week. I will definately slow that down and try and enjoy life a little more. I have a wonderful family and friends that support me. Debra

SusieQZ36
Posts: 1
Joined: Sep 2010

Hi- I just read your post and want you to know that as a non-smoker there is a MUCH higher survival rate. Don't think about the stats though. Try to enjoy and not let the cancer become all encompassing. Good luck and know you are in my prayers!

artmaker
Posts: 1
Joined: Oct 2010

For everyone out there with cancer please get a copy of this book Anticancer: A New Way Of Life - David Servan-Schreiber
It is all about our diet. I believe with medical help and a diet that supports our immune system we can get healthy. This book changed my life. It certainly changed his. From brain cancer to healthy. He has been cancer free for 8 years and believes it is the diet he undertook when his cancer came back after 5 years. it can give everyone hope.

dentdent
Posts: 2
Joined: Mar 2012

Hello! Last October 3, my husband Tony, 45, was diagnosed with Stage IV Lung cancer (nsclc). I saw this book and bought it right away. What a great read! It was easy to understand, very informative, and made so much sense! I've been recommending this book to everyone. We've been eating cancer fighting foods since and have also embraced spirituality and well-being. Tony has gone through some radiation and will be starting chemo next week. This book has helped us tremendously! We have new hope!

wisezer@verizon.net
Posts: 3
Joined: Aug 2010

I finished 6 rounds of the Chemo in December. I had radiation to the brain in Oct. for the brain mets. The PET scan in Dec showed the lung tumor and nearby lymph nodes had shrunk The MRI showed no lesions on the brain. I had 28 rounds of radiation on my lung that finished the end of January. I feel good. I am back to work full time and waiting for my next PET SCAN and MRI in a few weeks. I only have some stiffness when I sit too long. I keep a positive attitude and work keeps me distracted.

cjochoate
Posts: 5
Joined: Mar 2011

THANK YOU

Yorkielover
Posts: 2
Joined: Mar 2012

Just finished first chemo and start again radiation end of month for 5 weeks"....thank you for your post

Yorkielover
Posts: 2
Joined: Mar 2012

Just finished first chemo and start again radiation end of month for 5 weeks"....thank you for your post

carasp
Posts: 1
Joined: Apr 2011

Hi Debra,

You and I have similiar stories, I was diagnosed about the same time with the same cancer and we are non smokers. Please let me know how you are doing.

gmelchor1
Posts: 1
Joined: Aug 2010

hello,

we have just found out my brother (33 yrs old) has lung cancer and i find your post really inspiring..i would like to know what diet of cancer fighting foods did you put your dad on? please..

cziranugitt
Posts: 7
Joined: Sep 2010

My 54 year old mother was diagnosed with Stage IIIa lung cancer two months ago. It has since spread to her other lung and possible her bones. She is now considered Stage IIIb. My siblings and I are determined that we cure her despite her diagnosis of "incurable". Please, if you can give me any detailed information on what you did for your grandfather I would be very grateful. Was the diet he was on the Gerson Therapy diet? Did he take any medications or herbal supplements?

realiti
Posts: 6
Joined: Sep 2010

Hi,

My father,56 years old, was diagnosed two months ago with stage IV NSCLC in his right upper lung. Our mass is huge (12x10) but he had no symptom, whatsoever. According to our doctor’s, we belong to the incurable group. Anyway, we started chemo but at the same time we are following and alternative treatment methods I have to tell you, and that’s my personal opinion, that we started them because firstly we aim to support and strengthen his immune system. Secondly, we want to make his body an inhospitable environment for cancer cells to develop more and make more metastases. Moreover, we want to detoxify his body in order to protect his liver. He is consuming a lot of green juices (wheat grass juice, flax seed oil etc), row organic vegetables like broccoli, no sugar, no meat and so on. I don't know if they actually help, but the worst thing that could happen to us by eating organic healthy meals is…nothing.
I don’t like and I don’t trust supplements and “magic filters”. I 've bought many books and I have contacted many clinics (Gerson's, Wingmore's etc). I have to tell you that they cost! However, my research isn’t done yet. I am trying to understand their concept and the way their treatment works in order to visit their clinics.

In Monday we are going to have our third chemo. Up till now, they are working. My dad still looks as if he was healthy.
There are times that I 'm full of hope. But every time I talk to doctors I can't breath. It's like someone is pressing me with his boots on my chest.

I am sending everyone my positive thoughts and best wishes,
Realiti

narwal46
Posts: 1
Joined: Apr 2011

How is your father doing?

realiti
Posts: 6
Joined: Sep 2010

Dear narwal46,

Up till now his condition is stable. The mass in his lung is now reduced from (10x12)cm to (4x2,5)cm. He stopped receiving Carboplatin in September and Alimta three months ago.

Since then, he follows only the alternative “treatment” (if I can use the word).

His last pet scan showed no bone metastasis (lymph mets still there). He is going to have another one in a couple of months. Still no symptoms whatsoever. His doctor can’t explain why he remains stable and he expects direct deterioration.

I hope to prove him wrong once more!!!

PS: apologies for my late response

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