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Anyone out there with stage 4 colon cancer / went to the lung?

star5
Posts: 5
Joined: Dec 2008

please let me know , my husband has stage 4 cancer and we can find anymore out there to talk with and who is surviving .... Help . thanks

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

I am a survivor of Stage 3 head/neck cancer (had half of tongue replaced along with radical neck dissection) who, a couple of years later, developed cancer in the lung.

I had a lobectomy done on the 31st of January this year. Earlier this month I was pronounced cancer-free.

Metastisis is problematic, for sure. I HOPED that my lung cancer was a new cancer, and they still do not know because the node they removed was so small. But the cancer is gone.

Depending on the range and scope of the cancer to hub's lungs, there may be a very good chance of a complete recovery from that. It would be helpful, as mentioned above, if it were a new cancer. It would be helpful if it were non-small cell lung cancer, which is typically less aggressive. And it would be very helpful if it were isolated in one lung, even better if it is restricted to one lobe.

These factors may play a large role in what is decided next.

In June of 2007, they thought I had cancer bombarding both lungs and told me to expect a short life thereafter (10 months was the minimum). That turned out to be an incorrect diagnosis, luckily for me, but it might help you understand what the consequences may be if factors do not fall into place.

At the same time, I am hopeful that it gives you hope!

I will not lie to you: stage 4 of ANY cancer is not a good thing (heck, stage 0.5 of any cancer is not a good thing). I do, however, know of a number of stage 4 colon cancer survivors. I talk to them regularly on this very site. They are, for the most part, cancer-free, and living fully functional, happy lives.

It can be done. Let us hope that the lung cancer can be removed. That is the ticket.

Best wishes to you and your husband and your family for a great 2009.

Take care,

Joe

star5
Posts: 5
Joined: Dec 2008

Thank you so much Joe, Your information was very helpful... I am so glad you are cancer free. Thank god.

My husband was diagnose with stage 4 colon cancer . Doctor gave him a CT Scan which showed spots on his left lung. After the surgery to remove the tumor in his colon it was the size of my husband fist. Dr, told him he wanted to do an biopsy on 1 cm spot just to make sure it wasn't cancer. Well the colon cancer metastisic to the left lung, it was cancer... Not to mention we were told he had 2 months to 2 years to live. OMG, my heart felt so heavy , I cried , at that time my whole world just came down. He is 44 years old too young to leave me and his three daughters. He is on chemo , and taking the meds Xeloda. It hurts me to see him so sick. I am keeping the faith and alot of prayers are going out to all of you as well.

The 3 spots on his lung one spot disappear and the 1 cm shrunk, one stood the same size, which the dr, said it's nothing to worry about. Doctor also told us , he didn't want to remove one lescians that it was so small , he may not be able to feel it, when he goes in.
Do you think we should get a second option? Or ask the doctor to go ahead with the surgery.?

People who you talk with on this web site , can you please let them know to I am here and I would love to talk with them . Do you know any of them , with colon cancer that metastisis to the lung? that are stage 4 ...

Again, I want to thank you so much Joe for your reply . God bless and keep in touch. Best wishes to you to and a very happy 2009.

Eil4186's picture
Eil4186
Posts: 967
Joined: Dec 2007

Star, your posts really touched my heart. I am going to pray for your husband to fully recover and for God to give both of you strength and peace of mind during this journey.

I have met many people on this site that are stage 4 but being successfully treated and living good lives. Good luck and please keep us posted. Eil

star5
Posts: 5
Joined: Dec 2008

Thank you so much, we will keep you in our prayers as well. My husband had another CT scan last month we won't know the results until this Thursday when he goes in for chemo. (god help us all ) . Once again thanks for your reply, God bless and take care. I will keep you posted on his results. OOO by the way , you have a very pretty cat in your arms, I'm a pet lover myself.

well, take care Eil

star5

CBraden
Posts: 1
Joined: May 2009

My mother was diagnosed with colon cancer at the age of 49. She underwent 2 rounds of chemo treatment that made her very sick and didn't seem to be affecting the cancer cells at all. Instead of staying ill and feeling like a pile of garbage every day, she decided to do radiation treatment. This really helped her to maintan a positive attitude and regain hope. After the treatment was complete, she was doing well. 6 months later, the doctors noticed that a dark spot on the CT scan had grown. This is where things started to get complicated. They did further scans and x-rays and found that the dark spot was located around the heart where the lungs are connected. After a biopsy, the doctors found that the colon cancer had spread to this area. The only solution thus far it to place a stint in the lung where this mas is blocking the travel of air so she can breath better. Chemo treatment is out of the question for her because she gets so ill. Due to the location of the cancer, they are not able to safely remove any of the cancer cells and they can only allow minimal radiation treatment. I am preparing for the worst because it seems minimal for any hope or rational for her to recover from this. does anyone know of any HOPE?

Divyesh
Posts: 1
Joined: Sep 2010

hey joe..
I was happy to hear about your survival and winning battle against cancer. My father in law is having 4th stage intestine cancer.. Doctors have stopped his treatment and said him to stay only on liquid.
i cannot see him going away from me. he means a lot to me. he is like my life.

Can you please suggest something for him?
Can you give me your doctors contact number or email ID?
I need your help desperately.

Regards
Divyesh

BEC BEC
Posts: 3
Joined: Nov 2010

MAY I ASK WHAT'S GOING ON WITH YOUR FATHER IN LAW WHERE DO YOU LIVE? IF THAT MAN IS STILLING PULLING THROUGH GET HIM TO HOUSTON TEXAS THE ANDERSON CLINIC IS THE BEST THEY ARE #1 IN THE STATES

MONEYBAGSMAMMY
Posts: 3
Joined: Jan 2009

my mums started in the liver but she did not know it was there now it has spread to colen and lung she is gettin chemo and its shrinkin so there is some hope with it i suspose. how is he doin and u how are u doin

Wenchie
Posts: 88
Joined: Apr 2009

Star:
I see your post was quite a while ago but I'm also a colon cancer person whose cancer has spread to my lungs. How is your husband doing and what type of chemo is he taking?
Wenchie

Trapbear's picture
Trapbear
Posts: 91
Joined: Sep 2009

Hi Wenchie,
My husband's case sounds similar to you. Diagnosed over two years ago, one nodule in lung but the doctor didn't think it was anything. Did 9 cycles of xeloda and oxaliplatin. A year later more nodules in lung, biopsied, indeed was colon cancer. Liver is still clear. Just finished fourth cycle of folfiri and avastin, one nodule shrank 40%, the others are stable. All are now less than 1 cm. Good news!
Bill

BEC BEC
Posts: 3
Joined: Nov 2010

READING YOUR POST TONIGHT I REALLY GOT EXCITED SOUNDS LIKE YOU GUYS ARE DOING JUST AWESOME. KEEP ON KEEP ON DOING WHAT YOU ARE DOING WITH THE TREATMENT AND REMEMBER TURN IT ALL OVER TO THE LORD OUR SAVIOR IS OUR HEALER.

vistion
Posts: 1
Joined: May 2010

There was a story all over our local news recently regarding a Leisa Dargis. She was diagnosed with stage four lung cancers which had metastasized from her lung to her spine and to her brain and was given only 18 months to live. Apparently she chose to take her chances, opting out on the “Western Medicine” chemotherapy / radiation. Instead, she made some serious lifestyle changes consisting mainly of diet as to maintain high alkalinity (an environment in which cancer cannot possibly dwell) and monitored her PH levels closely.

Reportedly, less than seven months post initial diagnosis she has been confirmed completely cancer free. NBC plugged her web site at the end of their report, which is http://www.diseasefreedom.com which I immediately relayed to my friend Linda whom was recently diagnosed with early stage lung cancer (hence my focus on the topic). Inspired by her success, Linda contacted Leisa Dargis directly (initially through her Website and then by telephone) which, ultimately led to a personal meeting.

Linda called as she returned from her meeting; “You’ll never guess who I just met with” were the first words she spoke. Her delivery was laced an optimism I’d not head since her diagnosis and an energy sufficient to leave me speechless not to mentioned disadvantaged in the guessing department. “Lisa Dargis! The lady on the news! I’m going to beat this thing!” It sounds trite but I really did almost drop the phone. Not in response to her words but rather the palpable re-emergence of a spirit which had been fading through hopelessness and unspoken fear.

The results are not yet in but over the past months Linda has stuck to her plan without missing a beat and is literally back to her energetic and upbeat self again. For this I am forever so grateful.

HeartofSoul's picture
HeartofSoul
Posts: 732
Joined: Dec 2009

Im happy for Leisa Dargis and her outcome so far by designing her diet as to maintain high alkalinity and monitoring her PH levels closely. But I would never suggest to anyone, especailly with lung cancer, that diet, vitamins, or holistic approaches is a sound and worthwhile approach. What if your friend decided to postpone conventional treatment for her lung cancer and try to beat cancer with the diet Leisa Dargis promotes and her cancer grows? The time lost very likely could make her treatments increasingly challenging and more difficult to obtain a successful outcome.

Lung cancer is known to be one of the aggressive types of cancer incl;

NSCLC accounts for about 80% of lung cancers.
•Squamous cell carcinoma:
•Adenocarcinoma. This cancer is found in the glands of the lungs that produce mucus. This is the most common type of lung cancer in women and also among people who have not smoked.
•Bronchioalveolar carcinoma. This is a rare subset of adenocarcinoma.
•Large-cell undifferentiated carcinoma. This cancer forms near the surface and grows rapidly.

SCLC accounts for about 20% of all lung cancers. Although the cells are small, they multiply quickly and form large tumors that can spread throughout the body.

cmankin
Posts: 1
Joined: Apr 2011

I am and have had for more then a year now the excact same cancer.
I have hid it from my family and continue to do so. I let them think it just me
and my mind to make them feel safe and not worry. I am undergoing a radical
treatment at Johns Hopkins Once a Month that totally wipes me out. I am about to
enter stage 4 as my tests have all shown rapid spreading to my lungs and lypnodes.
I will follow up with you in the next few days.
Know that your not alone.

Lost in the truth
C
Manassas Va

grandmafay's picture
grandmafay
Posts: 1612
Joined: Aug 2009

Best of luck and good wishes. My husband lived for 6 years with stage 4 colon cancer originally with mets to the lymph nodes and liver. I know there are many new things out there. Each new thing he tried seemed to add more time. That's really what we are all doing, buying time. That's why we try to live healthy lives and try to avoid very dangerous behaviors. I wish you much more time.

Please consider sharing your dx with at least some members of your family. Our family became much closer as we supported my husband through this time. We feel very blessed with those 6 years. We were a close family before, but we came to know each other even better. We treasured the time we had together. I can understand not wanted to worry family members, but you may also be depriving them of a chance to support you in a very meaningful way. Fay

lovemysisterforever
Posts: 1
Joined: Sep 2011

i am distraught (not a big enough word)....my sister of 47 yrs was just diagnosed one month ago...it has spread to her liver and the lesions are too big to take out surgically...she has started chemo 3 weeks ago and we are unsure of results. they are giving her 2 years if the chemo works...she is going to get a second opinion next week from a dr. who does surgery when no one else does...can anyone help with any advice? hope? i love her so much i can't breath thinking about it...

buckeye2
Posts: 427
Joined: Jul 2011

You will find many posting frm Stage IV survivors in the colorectal boards. It's okay for you to post there as the sister. You will find lots of hope there and also lots of information to assist her in her battle. My husband was diagnosed in May with same as your sister. Although we are both scared sh--less, we are continuing to live almost normal lives. He is golfing today for third day in a row. Once you get over the shock, things will return to a new normal where living is still lots of fun. I have four sisters so know how irreplaceable they are. You and yours will have many years ahead. She will need you to be normal and not focus on her illness. Good luck. Lisa

Steve Hoog
Posts: 1
Joined: Oct 2011

I was diagnosed in April of 2011; this had been brewing in me since 1999, but was passed off as a bleeding ulcer. By the time my colon was completely blocked in April it spread to nodes, pelvic bone, liver, lungs. Immediate surgery removed the colon tumor, scrapped off all the bone, and removed all nodes. I had 2 sessions of chemo and all 5 tumors in my liver have disappeared from that PET scan as well the 2 spots on my lungs. My CEA was 96 before surgery, 70's before chemo, 50's after the first session, 16 after a month break and having a wisdom tooth pulled, and 4 after the second chemo session. I give credit to God. It may reoccur or maybe not; but to me it's just going to be a bump in the road I will cross without issue. Sincerely, Steve Hoog Tulsa OK 918-260-0151

therealnapster's picture
therealnapster
Posts: 1
Joined: Apr 2012

Dear All,
I am A.T.M.Golam Bari,diagnosed with T2N0Mx left colon cancer in June 2008 at the age of 25. After that, I went for surgery, 6 cycles of chemotherapy (Oxaliplating and Xeloda tablet),a whole body CT/PET in January 2009. All the reports were fine.After that I was in regular follow up - blood chemistry in each three months, Ultrasonography,CT Scan,Colonoscopy in each year. All the reports look very good till then. Last year in September,2011, I came to South Korea for my higher study here. I went to Kyung Hee University Medical Center for my regular follow up on last March 2012. The oncologist gave me several blood chemistry, Whole abdoment CT and Chest CT. All the reports other than Chest CT was fine. The oncologist analyzed my chest CT and said that there is a small nodule (1 - 2 mm in diameter) in my left lung.I had my Chest X-ray (PA view) before my surgery and Whole body CT/PET after chemotherapy. Both of these reports said - "Both lung fields are clear" but I had not Chest CT previously. However, My doctor has given me another schedule for my chest CT after three months (June 11,2012) to compare with the chest CT of March 13,2012.
He has said that my body condition is very good and wait to see the next CT scan report.

After that, I am exploring regarding metastasis colon cancer and found that lung nodules turn into lung cancer frequently especially for a cancer survivor. I am reading extensively about lung cancer symptomps,sign etc and had not found any chest pain or weitgh loss or cough yet. I am maintaining physical exercise and healthy diet. But all is becoming very gloomy to me. I can't understand what is my treatment now and I am becoming very scared. I have my beautiful wife and I don't want to leave this world making her alone so early.
Please shere your experience and give your information to help me in fighting against cancer.

Bearsmile
Posts: 24
Joined: Apr 2012

Hello I guess you could say my Dad has stage 4 colon cancer. About 8 years ago after several tests a tumor was removed from his colon and it was cancer. He went through chemo and was fine for a number of years. About 5 years ago they found the cancer in his liver so they removed it and again he had chemo. About 2 years ago the cancer was found in his lungs. He has been under going chemo ever since. He had a severe allergic reaction to one of the drugs so was sent down to Dana Farber in Boston where he now goes every 2 weeks since they are able to give him the drug through desentization. It means getting up at 4:30 in the morning so that we can make the 2 hour drive to Boston and be there for 7am and we are then lucky if we make it home by 8 or 9pm. We have had our ups and downs and sadly right now as his daughter and caregiver I am going through a tough time.
I have learned that even though the cancer is on the lungs it has to be treated as colon cancer and not lung cancer. The treatments are different and it is important to treat the right type. My father has not had any growth in his tumors for the last several months so the chemo is working. It allows him to go fishing and enjoy different things. He retired from teaching so that he could have more time to read, focus on treatment and fishing. I lost my job and so am now his caregiver since he does get tired quickly and the arthitis he has in his knees is only being treated for the pain. The cancer makes him ineligible for a knee replacement. We will get through things one day at a time.
Good luck and keep fighting the battle :)

ksmith6581
Posts: 1
Joined: Dec 2012

First off I would like to say you are a great daughter. You are not alone in this battle. My father is dealing with his 3rd battle of Colon Cancer, this time it was discovered in his left lung. We went to Brigham and Dana Farber as you did. He has gone thru radiation, we had a few rounds of chemo therapy, stopped for a few weeks before surgery. Last month Dr Swanson @ Brigham & Womens went in and did surgery. We had the worse case scenario planned and that dr was able to save a lot more of his lung than we originally thought. He is getting better but I am starting to see "chemo" brain hit him hard. I noticed this go the effects are a lot more visible than the first 2 rounds. One thing that we have found that works great for him is medical cannabis. I know some people may be against this as a whole, but it helps him, and all I want is him to be pain free. It does suck getting up so early to go to Dana Farber and sit in route 9 traffic, but we are lucky we have them near us. How is your father doing now? Has he finished his chemo? I hope this message finds you will and my thoughts go out to your father and you, as well as everyone else out on this forum dealing with illness. Good luck.

K

smacclen
Posts: 1
Joined: Aug 2013

hI MY NAME IS SANDRA AND I AM A CANCER SURVIOUR. I HAD COLON CANCER STAGE 4. DOCTOR'S DID HAVE TO REMOVE MY RIGHT BOWEL. WHEN I FIRST WAS DIAGNOSED THE AREA IN MY BOWEL WAS NO MORE THAN 2 INCHES, AND JUST DAYS LATER WAS MY SURGERY AND HAD SPREAD TO THE COMPLETE RIGHT BOWEL.  I THEN ENDED UP GETTING A INFECTION IN MY INCISION AND I HAD TO HAVE THE INCISION REOPENED AND CLEANED AND THEN HAD PACKING.  AND THE PACKING REALLY HURT.  I THEN HAD TO WAIT UNTIL THAT HEALED BEFORE I COULD START MY CHENO TREATMENTS.  I THEN HAD MY PIC LINE PUT IN MY RIGHT ARM.  AFTER MY FIRST TREATMENT I ENDED UP GET A BLOOD CLOT IN MY PIC LINE, SO MY CHEMO TREATMENTS WERE PUT ON HOLD UNTIL MORE TESTING. I THEN HAVE TO HAVE BLOOD THINNERS EVERY DAY IN MY LEG.

AFTER THAT I STARTED BACK ON MY CHEMO TREATMENTS AGAIN, I WOULD GO TO THE CLINIC AND I SAT THERE FOR ABOUT 2 1/2 HOURS AS THEY PUT TWO BAGS IN AND THEN ANOTHER BAG WAS ATTACHED TO A PUMP AND I WAS SENT HOME FOR THE REST OF THE AFTERNOON, THE WHOLD NEXT DAY AND THEN ON THE THIRD MORNING I WOULD RETURN TO THE CLINIC WHERE THEY WOULD TAKE THE PUMP OFF.  I THEN WENT HOME AND TOOK THE PILLS THEY TOLD ME TAKE.  THE FIRST FEW TIMES WERE FINE, BUT THEN I STARTED TO GET SICK, ALWAYS UPSET STOMACH, I WAS TIRED ALL THE TIME AND WAS IN THE WASHROOM QUITE A BIT. AT FIRST I WAS HAVING NORMAL BOWEL MOVENMENTS BUT THEN WHEN I HATE BEEF I WOULD END UP WITH CONSTIPATION.  I HAD TO TAKE A STOOL SOFTENER AND IF THAT DIDNT WORK I THEN HAD TO TAKE A LAXATIVE.  IT WAS EITHER ONE OR THE OTHER.  I WOULD HAVE TO MAKE SURE I HAD ENOUGH OF BOTH PILLS ON HAND. 

I WAS LIVING WITH A MAN FOR 10 YEARS AND HE NEVER DID WANT TO GET MARRIED BUT AT THE BEGINNING OF DEC/12 HE ASKED ME TO MARRY HIM, AND WE GOT MARRIED JAN /13.  I DONT REMEMBER MUCH OF THE DAY BUT BITS AND PIECES. I CONTINUED MY TREATMENTS AND STILL SICK, TIRED ALL THE TIME, AND STARTED TO GET VERY WEAK.  I KNOW MY HUSBAND WAS DOING ALOT BUT AT THAT TIME I WASNT THINKING OF ANYTHING BUT IF I WAS GOING TO LIVE OR DIE.

WELL I AM FINALLY DONE MY TREATMENTS AND I HAD TO WAIT 3 MONTS. I THEN WENT INTO TO GET SOME BLOOD WORK DONE AND THEN SEE MY DOCTOR ABOUT 3 WEEKS LATER TO GET THE RESULTS.  THAT WAS A LONG WAIT TIME.  BUT I GOT GOOD NEWS THAT ALL THE CANCER IS GONE AND I AM A SURVIOUR. I WAS VERY HAPPY AND SO WAS MY HUSBAND.

THEN DAYS AFTER THAT I STILL WAS TIRED ALL THE TIME AND HAD NO STRENGH .  I STARTED TO TAKE MY DOGS OUT FOR WALKS AND DO WHAT I COULD TO HELP GET MY STRENGTH BACK.  BUT I WAS SO TIRED, I JUST SLEPT ALOT. AND THEN THAT IS WHEN MY WORLD FEEL APART.  MY HUSBAND GET AT ME TO GO BACK TO WORK THAT MAYBE THAT WOULD HELP ME.  I KNEW I WASNT READY AND NOTICED THINGS CHANING INSIDE ME AND I WOULD CRY OVER ANYTHING.  I STARTED TO SEE THE SOCIAL WORKER AT THE CANCER CLINIC AND INFORMED THERE WERE AFTER EFFECTS OF THE CANCER. I HAD ASKED MY HUSBAND TO COME WITH ME SO HE TOO COULD LEARN ABOUT THIS. BUT HE REFUSED.  WELL I TRIED HARD TO GET MY STRENGH BACK AND OVER DID IT ALOT AND ENDED UP I WOULD SLEEP FOR LONG NAPS, GO TO BE EARLY AND GET UP EARLY.  I WAS EXHAUSTED ALL THE TIME. SO WITH ME SLEEPING ALL THE TIME MY HUSBAND STILL HAD TO THE SAME AS BEFORE AS WHEN  I WAS ON  TREATMENT.

AND THE SAD NEWS IS  I MOVED OUT OF THE HOUSE FEB 28/13 AS HE SAID IT HAS AWAYS BEEN ABOUT ME.  HE CHANGED SO DRASTIC AND I DIDNT KNOW WHO HE WAS ANYMORE. SO I AM STILL ON MY OWN AND GOING THROUGH A SEPARATION SOMETING ELSE TO ADD TO THE AFTER EFFECTS OF THE CANCER.

SO IT HAS BEEN TWO YEARS AND I AM STILL NOT WORKING BUT SEEING COUNSELLORS AND SOCIAL WORKERS AND DOCTORS TO DO WHAT EVER THEY CAN TO GET ME BACK ON THE RIGHT TRACK OF MY RECOVERY TO RETURN TO WORK. I AM DEVASTED THAT MY HUSBAND FELT AND DID WHAT HE DID. I AM STILL SO VERY SAD AND ALONE THAT SOMETIMES I DONT KNOW IF IT IS THE AFTER EFFECTS OF CANCER OR THE STRESS OF CANCER.

SO ALL I CAN DO IS TAKE ONE DAY AT A TIME,.

SANDRA

grandmafay's picture
grandmafay
Posts: 1612
Joined: Aug 2009

I don't know if you noticed the date on the first entry of this thread or not, but it was started some time ago. I would really recommend that you visit the colon board. There are some great people on there who can offer you some insight and support. I am sorry that you have been through so much. As a caregiver, I can never understand why some aren't able to stay and support their loved ones who are dealing with cancer, but, sadly, I have read about that here way too often. Hang in there, Fay

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