Metstatic Melanoma Survivors Network Support Group Needed

deborahshemesh
deborahshemesh Member Posts: 4
All metstatic cancer patients are encouraged to join this sight.
As a 28 year metastatic malignant melanoma survivor; I have a
history of 11 metastasis and iotrogenic disease as a result of
the many bouts of treatments including radiation. I would
like to know how many long term metastatic patients are alive,
and if so, has anyone been diagnosed with Radiation Induced
Osteo - Neurcrosis? My Cancer Story can be read at
www.deborahshemesh.com - I encourage others to share their
story with me at the above listed site.

Comments

  • TomT
    TomT Member Posts: 2
    Metastic Melanoma survivor
    hi debora , i would be interested in corresponding with others with simular disease .i have physical limitations now and find it difficult to work full time ;because of lymphadema and joint pain after being on my feet for 3or4days at work ... any suggestions ???
  • artizan
    artizan Member Posts: 59
    TomT said:

    Metastic Melanoma survivor
    hi debora , i would be interested in corresponding with others with simular disease .i have physical limitations now and find it difficult to work full time ;because of lymphadema and joint pain after being on my feet for 3or4days at work ... any suggestions ???

    ADA
    Tom,
    There have been some other posts about the American's with Disabilities Act. I think they are under Long Term effects of treatment. About 7 posts down from the top - "Cancer patients now protected under ADA".
  • deborahshemesh
    deborahshemesh Member Posts: 4
    Tom T - don't work.
    Any side effects from received Cancer treatments qualify for disability.
    You should not have to suffer needlessly by trying to afford to work
    several hours a day on your feet. Tom T, you will have to be specially
    careful of all physical dis-comfort in your body. Dis-comfort tells
    you that you have to move into a comfort zone. I'm not talking
    about watching Jerry Springer all day, but perhaps there will be
    other things you can do that make you any extra income that you may
    need. I currently volunteer/teach at the local Senior Center 45 minutes
    twice a week. It helps to stay involved in community and other
    outreach programs. Medicare, Medicare, Medicare and the protection
    of the ADA. To find hope, resources, visit wwwldeborahshemesh.com
    under references on the Home Page.