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Stage 4 survivor

Katanna's picture
Katanna
Posts: 3
Joined: Jun 2008

My 5th year anniversary is coming up on July 15, 2008. It is on that day 5 years ago I had my esophagas and 30% of my stomach removed. I have never smoked and very seldom had a glass of wine. I was told that I only had 6 weeks to 6 months to live, but here I am. The sugeon said there was NO concer left in the body. This happend through prayer, wonderful friends and family as well as great doctors and nasty chemo and radiation. I have had a lot of problems BUT I am a fighter. I was told it was my not give up attitude. Believe me it was tough that is why I am writing. I need to know if anyone else is out there that has survived? I returned back to work after 2 years with the airline as an agent. I was to stressed so then I went into a call center but spent more time in the bathroom then on the phone. I was told by my doctors that I would never work again but I had to give it a try. The problem I have is constant runs, sometimes throwing up in the middle of the night. I have severe pain in my ribs and back. My ribs cramp at times and I am so very tired yet I have yet to have a full 8 hours of sleep. I have other problems to but hey I am now 54, divorced 3 grown married children and 6 grand children. I have a wonderful Grey Hound that keeps me company. I tire so easly no energy. Anyway more later but any input from anyone will help. Thank you and God Bless!

cherseg
Posts: 30
Joined: Jul 2007

Dear Katanna, So good to hear your encouraging news!! My husband was diagnosed last June, stage 4, mets to distant lymph nodes, so he cannot have surgery. He had 19 weeks of chemo, from August until December, and as of today is "NED". Did you have metasis to distant nodes or other organs? Every doctor we're talked to insists that the surgery is not recommended, or not an option since the cancer was elsewhere in the body, and it would only be a "band aid", because eventually it will come back in the liver, brain, or bones. He has PET scans every 3 months, and so far, he's "clean". So we take each day with love and gratitude. I hope you continue to do well, I am sorry you continue to have unpleasant health issues. There should be supplements or nutrition suggestions that could help you. Have you seen a good internist, in addition to your cancer team? Thank you for sharing your story, it gives me some hope.

Dietz
Posts: 4
Joined: Jan 2010

Hello there,

Wondering what else you did to become a cancer survivor.
How old are you? My mother was recently diagnosed but is over 80
so they will not operate. She also is at stage 4 and in no pain.
She's wondering what the family is fusing about--radiation and
chemo start next week.. Has your diet changed? Any other advice
can you offer?
Thank you.

Donna L.
Posts: 2
Joined: Oct 2010

Dietz, I too was diagnosed with stage 4 rectal cancer on March 4 of this year. I have already had a colonostomy and am scheduled for more surgery to have 1/2 of my liver removed on Friday. I was 49 when diagnosed and determined to beat this. I refuse to give up. After the MRI I had yesterday the cancer is contained to my liver & am praying this will be it. I will go back to a normal life (praying) after this surgery. Attitude is everything. I did not (do not) have pain (I had pain before my diagnosis), I do not have nausea (just small amounts during chemo weeks) and I did not lose all of my hair, it just thinned out a bit and I have had 12 rounds of chemo already. (I owe this to God, my Doctors at the John B. Amos Cancer Clinic & my support team). I did not have much appetite when I started chemo but now want to eat anything in sight. Just remember, cancer loves sugar so limit sugar intake. That's what I was told from the beginning and now I crave sugar lol. Good luck to you and your family. I have surgery scheduled for this Friday so I'll post afterward's to see how you are doing. Donna L.

bigrob87
Posts: 1
Joined: Nov 2010

HELLO MY DAD HAS STAGE 4 EC IT HAS SPREAD TO HIS LIMPNODES LIVER AND THE LINING OF IS LUNG HE HAS BEEN TAKING CHEMO FOR 4MONTHS NOW ..HE BLACKED OUT AND FELL AND HURT HIS HIP THE DOC SAID IT IS SPRAINED IT HAS BEEN ONE WEEK SINCE HE FELL AND HIS HIP STILL HURTS AND NOW HE CAN NOT MOVE IS RIGHT ARM HE WENT TO THE DOCS AND THEY SAID THE SAMETHING ABOUT THAT TOO SO WE WENT HOME THEN THAT SAME NITE HE WAS RUNNING A FEVER OF 102.4 SO WE TOOK HIM BACK TO THE DOC AND BY THE TIME WE GOT THERE HIS TEMP WENT UP TO 103.5 THE DOC KEPT HIM SAID HE HAS NAMONIA IS HE GOING TO MAKE IT CAN SOMEONE HELP?????????

Dietz
Posts: 4
Joined: Jan 2010

Dear Cherseg:
My mother also cannot have surgery. She has one node
affected so far and chemo and radiation start next week.
What can we expect? Is 19 weeks typical?
What types of supplements have been recommended to your husband?

linda1120's picture
linda1120
Posts: 438
Joined: Oct 2010

My husband is going through a similar situation. The doctor is insisting he is stage III, however he has celiac lymph node involvement. Everything I have read tells me he is a stage IVa. It would help me if you could give me more information regarding your husband. Congratulations on his survival. I hear so many horror stories of surgeons insisting they can operate when it is inevitable the cancer will come back. We are going to our second opinion hospital in Portland, Or tomorrow for consults and my husband's petscan after chemo and radiation. I am on pins and needles. Thank you for any information you can pass on. I would also be interested in knowing where your husband was treated. The chemo and radiation almost killed my husband. He has some heart issues as well.

God Bless,

Linda

cherseg
Posts: 30
Joined: Jul 2007

Dear Linda, My husband was given a year to live in 6/07. He had mets to distant lymph nodes, the ones they were concerned about were the ones near his clavical (sp) bones. He was treated at Moffitt Cancer Center in Tampa. There are only 7 or 8 recognized Cancer treatment centers in the nation. Duke, in N.C. Anderson in Texas, Sloan Kettering, and I can't remember the others. Where are you located. When was your husband dx stage 3? He has had a great quality of life for 3 and a half years with chemo, cryogenics and varian trilogy radiation. It has been a long hard battle, and right now he is with Hospice, because he only has a few weeks to live. I have to say, though, that no surgery and the chemo, etc. gave him a good quality of life. I hope this helps. You can send me an e mail at cherseg1@hotmail.com, anytime. I don't post very much here on the boards, but I am good friends with William and Loretta. Stay strong, and take one day at a time. My best wishes to you and your husband. Cheryl

linda1120's picture
linda1120
Posts: 438
Joined: Oct 2010

I appreciate your reply and my sympathies are with you and your family during this last stage of your husband's life. My husband was diagnosed stage III by the catscan and petscan, not a Endoscopic Ultrasound. We live in Coeur d'Alene, Idaho and went to Oregon Health and Science University Hospital in Portland for a second opinion. There is a team of four surgeons there that do the MIE. They are a high volume cancer center and have had good success with the MIE. We are scheduled to go in January for Jim to have surgery. The lymph nodes (4) have all shrunk and the tumor has shrunk considerably. There is no metastasis to any organs or bones. Jim has a heart condition that is going to put him at a higher risk in the surgery, but without the surgery the cancer will come back, so we are moving forward.

God Bless you Cheryl and thank you for writing to me. William and Loretta have been wonderful and advised me along the way. They are an excellent couple.

Linda

oregon
Posts: 8
Joined: May 2010

My husband was and still is being treated at St.Vincent Hospital on Barnes road in Portland
Dr. Wolfe is a wonderful surgeon, along with Dr Anderson our Oncoligist and Chemo doctor, Dr Gannett was his radiation doctor, and Dr Lobitz at Petercourt next to the hospital Larry was diagnosed with Stage 3 esophagas cancer Jan.14 2010. He did the port that pumped chemo every 10 minutes and then every thursday went in a received two other chemo drugs for six weeks along with 33 radiation treatments. What kept him going we made protien shakes with whey and ice cream, it calls for 1 scoop but we would use 2 to 3. He didn't really like it but it kept the weight on before surgery and gave him energy.

My husbands surgery took 12 hours and he had complications that kept him in the hospital for 3 weeks, he went in April 15 and was released May 5th, the hospital and staff were wonderful and still are.
My husband still has complications mostly when he eats but our life is about 75% normal,
besides getting his throat stretched every 3 weeks which is better then every 7-10 days at the beginning.

God Bless,
Cari

tillyrae13's picture
tillyrae13
Posts: 2
Joined: Apr 2011

Hi

This is my first time writing and your post stuck out to me. My dad was just diagnosed with stage 4 EC and it has spread to his liver. He started aggressive chemo this past week in Boston. My dad is a healthy 54 year old guy. Like your husbands doctors, his dr's also said surgery isn't an option. He's part of a clinical trial now and we're all hoping and praying. I'm just wondering if you (or anyone else out there) perhaps has any advice or encouraging words while going through this.

Thank you

alwayshope2010
Posts: 1
Joined: Apr 2011

This is my first time too. My dad was diagnosed in Oct 2010 as stage 3 and had surgery and one month later found out that his PET scan prior to surgery was misread and he really has stage 4 with rib and lymph node involvment. Can your dad eat? The best advice I can give is get him to eat and eat healthy nutrious foods and stay hydrated. My dad has lost 70 pounds since last summer when he started having problems. The cachexia (wasting syndrome) is one of the hardest hurdles to over come. Now my dad can physically eat since having surgery but can't due to the wasting syndrome. My dad is currently trying the holistic method at a clinic in NC. He was very against coventional medicine after the huge mistake on the PET scan. Another piece of advice is to try not to worry about tomorrow and miss the beautiful today. This is a tough road and it will have it's ups and downs, all you can do is never lose hope and always stick together!

brittnsean42
Posts: 1
Joined: Sep 2011

Hello,
This is my first time writing and i was reading everyone's posts and yours is so familiar. My mother who is only 52, was diagnosed in July with stage 4 EC and it has also has spread to her liver. They say she is not a candidate for surgery. She is now finished with radiation and will start chemo soon. I was wondering how your father was doing and what you and your family are doing to deal with all of this?

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

Hi brittnsean,
I don't know if this will help, but I wanted you to read this article.
http://www.livercancer2.com/cancer-stricken-grandfather-given-just-12-months-to-live-sees-tumours-killed-in-two-days-after-breakthrough-treatment.html
Addenbrooks Cambridge is a leading Cancer hospital where they trial lots of cancer treatments.
Hugs and Prayers
Marci x

Taj
Posts: 1
Joined: Sep 2013

Hello,

 

My BIL has been detected with stage 4 EC. Wanted to get in touch with you about the options/ treatement that you guys did. It will help if i can talk to any survivor. I dont see any recent post in here. 

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

Hello,
I am really sorry that you find yourself here.
My husband was diagnosed three weeks ago with EC and I know what you are going through.
I just wanted to post a link for you from a leading hospital in the UK where they trial
cancer treatments.
http://www.livercancer2.com/cancer-stricken-grandfather-given-just-12-months-to-live-sees-tumours-killed-in-two-days-after-breakthrough-treatment.html
Addenbrooks Hospital in Cambridge England is a well respected hospital with a proven track record. I just wonder if your oncologist could be tempted into finding out what the treatment was and how it was administered.
I don't know if it helps, but I will pray for you.
Hugs and prayers
Marci

ForMini
Posts: 1
Joined: Oct 2011

Hi Tillyrae,

My mother-in-law was just diagnosed with stage for EC and spread to the liver too. My brother-in-law lives in Boston and am interested to learn more abou the clinical trial your father went through. Any other advice or information would be greatly appreciate.

Thank you.

cyn0418's picture
cyn0418
Posts: 4
Joined: Apr 2008

Katanna, I am new to this board. I just saw your message and saw that you were stage IV and were told you didn't have long to live, but I see that you had surgery, which is usually not done with stage IV, and you are surviving. Hooray! I am curious as to your case from the time of your diagnosis to now. My husband has esophageal and GE junction and retroperitoneal node and supraclavicular node involvement, but no other organ involvement, and chemo is markedly decreasing everything after only 4 chemo treatments at Northwestern. Would love to hear from you. Cyndi :)

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

Cyn, I feel for you. I am a caregiver too with a husband newly diagnosed with EC lower esophagus. We don't know the stage yet as we see the Onco for the first time on Thursday.
I would love to keep in touch and swop respective worries and fears.
This is such a scary time for us all.
Would you please add me as your friend.
I will keep you and your husband in my prayers.
Hugs
Marci

krose4
Posts: 1
Joined: Sep 2008

Hello Katanna, I am very glad to have been directed to this site. My father was diagnosed with stage 4 esophageal cancer last year, he had surgery, chemo and radiation. He is now completely cancer free, however he is suffering some terrible after effects of surgery. Like you he had a large portion of his stomache and esophagus taken out, he was initially hooked to a feeding tube (at least for nights)and during the day he was told to just eat small meals, throughout the day. This worked for a while, however after the feeding keep coming out or going in they decided to just keep it out. He is a very tall man (6'3") and right now only weighs 169, he is having such difficulty with food I just don't know what to do and the doctors don't want to put the tube back in till he loses another 10lbs. I guess my main question to you is how did you deal with this, eating, maintaing a consistant healthy weight, it is extremely frusturating since I don't know what it actually feels like. I finally figured my best bet would be to find someone that had gone through the same thing and see how they did it. I am going to have my father read your post tomarrow morning, because he has been having a lot of really bad cramping were he doesn't want to eat, etc... it is in a way good to know that, that will probably been one of the life long side effects. I would love to hear back from you. Thanks a lot.
kim

KathiS
Posts: 1
Joined: Jan 2009

My husband was dxed 5 years ago today. He is now cancer free , we are awaiting 5 year mark of surgery 6/01/04. My hubby had the aggressive chemo 5 day fanny pack, 5fu and cisplatin, 6 courses, and 28 days of radiation, cool down period and finally the surgery which almost killed him. But even after all that , he still says he would have done it the same way. My husband is 6'1, and weighs 145, before cancer he weighed in at 217. He too has and is still having problems with the food department, back pain and the list goes on, but for what its worth, he still thinks being like is is, is better than not surviving. There is hope. Kathi

SelmaO
Posts: 2
Joined: Feb 2009

Hi,my husband was diagnose with EC 12/23/05 Stage 1, and went through chemo and radiation. He was cancer free until September 16, 2008. The cancer returned and so far we are told it is confined to the Esophagus and into the entrance of the stomach. He is scheduled for surgery
2/23/09 at the University of Michigan Ann Arbor. I wanted to ask those of you who have gone through this, what was required after surgery. The doctor said he would have a feeding tube
and would be on a liquid diet the first 5 days and then they would try him on puddings and yogurt and some kind of protein pudding. I'm wondering what happens when he comes home? How do I know what to fix him for meals. Dr. has said he will only be able to eat small meals maybe six times a day. How long does he have to be on the soft diet. He is 80 years old, very
healthy prior to the EC, he has a workshop is great at making furniture. Would he be able to
continue this? I have so many questions, will I be able to leave him alone to do grocery shopping? What can I expect to happen?
Last June I was diagnosed with Breast Cancer and had that taken care of, And three weeks ago
I had trouble with a bad knee problem. My doctors want to do a knee replacement, but I don't feel I can do that until I know my husband will be able to take care of himself. It just seems everything is happening at once, and I'm on overload. I would like to hear from you all
to give me some insight on what is to come. I will pray for you all, God Bless, SelmaO

DJ
Posts: 8
Joined: Mar 2009

Hi, I had stage 1v stomach cancer and it had spread to my ovaries and also into the perinal cavity. I had ovaries and part of the fallopian tube removed. The cancer was diagnosis as stomach/esphogaial cancer. They removed my complete stomach and part of my esphogas that was Oct 3,2009. It is difficult to say what foods will work best for your father everyone is different.When was your fathers surgery? For my self I am still learning I try one new food a day so that way if the cramping is bad, I will know what is causing it. I heard it takes your intestines one year before they can act like a stomach and then there is no cramping.
I wish you dad well, tell your Dad congratulation on being cancer free and I hope it will get easier to maintain his weigh.
DJ

GolfingDeb
Posts: 8
Joined: Feb 2009

Thanks for sharing your story. I am new to this. My husband was dx on 7-18-08, underwent his chemo(24/7 fanny back), radiation and ultimate surgery on 11-28-08.That's when Murphy's Law jumped up. You name, he got it. And still he is alive. He is NPO with his J-Tube providing nourishment. He has a fistula from the surgery draining into a absess pocket above his right lung. They are considering a stent in his throat to let the fistula heal and allow the pus pocket to dry up. Anyone go this route?
He's 6ft and always weighed about 185. He is now 145 and doesn't look too bad, but of course I'm crazy about him so I could be prejudiced. It's his physical appearance that is tough. He is on continual oxygen, very short of breathe,(lungs suffered damage from chemo/rad/surgery and he walks with a walker) Again I ask...........has anyone gone this route? Please give us some feedback. We're still hoping for a return to life where we can jump in the motorhome, and head to Lake Powell with our boat.
Any one out there?????????

dj43
Posts: 2
Joined: Apr 2009

I am Ron, DJ's husband and caregiver. After the black cloud lifts a little bit, faced with watching lovely wife suffering with after effects. Diagnosed in March 08 at Mayo--complete surprise. Very unusual in that she had weight GAIN and swelling we were trying to find cause of--but stage 3 EC. Went thru chemo and radiation, then surgery on Jul 7 08. Oddly, never lost weight, still has bouts of swelling, and is waked up almost every nite with coughing spells that sometimes end in throwing up. Thankfully she is cancer free so far--no energy, hard to eat, etc etc. Sounds like this is inevitable problem. Grateful, though, for her being alive and free from dreadful disease so far. We seek to encourage and be encouraged--thank all who share, and any information or experiences help. Thank all of you.
Ron

JuliaMac65
Posts: 1
Joined: Jun 2009

My friend was recently diagnosed with Stage IV cancer, here in NYC. He just started chemo this week and I was wondering how you are doing and if you (or anyone else) had any advice to give in the nutritional area. We are new to this. Thanks, J.

Betty in Vegas's picture
Betty in Vegas
Posts: 311
Joined: Jul 2009

I have never posted here before, but I have read your post many times when I'm just terrified. My hubby has stage iv to the nodes, and though he is doing very well in therapy (perfect blood counts, did his primary chemo, now is on proton rad and chemo prepping for surgery) I sometimes have these moments of sheer terror. Your post has helped me so much.

Can you tell me if your response to your chemo and rad was also good? Did you lose weight? (My husband has not, in fact, they told us to fatten him up, so we have.)

Betty from Vegas, now temporarily in Houston for radiation

Sherrybaby2you
Posts: 1
Joined: Dec 2009

Hi Katanna,
Thank You for sharing your story. I came here looking for hope and found you. I know god is at work. I was diagnosed with stage 4 esophgeal cancer June 18, 2009. I have been in Chemo and radiation for 6 months. Since then nothing is visable on my scans and I am now able to eat. I gained 30 pounds on Chemo..lol Never thought I would be sooo happy about that!
My Doctor is a bit confusing though. She said nothing is visable but she knows the cancer is still there. How does she know that? She keeps talking about making me comfortable but Im not uncomfortable and havent needed anything for pain anywhere. I skated through Chemo with very little side effects.
I have my last scan after chemo Dec 26 and they say a scan every 2 months after that until the cancer starts to grow again. (Again..How do they know thats going to happen?)
Anyway. Like I said I was looking for hope. You gave that to me for today. :)
Thank you

LindsayBrown
Posts: 23
Joined: Dec 2009

My father was diagnosed with stage IV esophogeal cancer November 10th, 2009. It has spread to the lymphnodes and stomach. He begins chemo and radiation next week. And they are saying that after chemo and radiation he will take a 4 week break and then surgery. He has a 6 year old son and then there is my sister and I. He carries around a survival story in his pocket. So I have been searching for stories that will inspire him. This is all very new to me and I'm still struggling to find out exactly what is happening. It's been wonderful to read all of your posts.

Dietz
Posts: 4
Joined: Jan 2010

Wow-your story has given me hope for my mother.
He is at stage 4 and starts chemo and radiation next week.
My mother is in no pain and eats pretty well! Any other
advice for her? The only thing against her is her age.
Nice to know you've recovered without surgery! Who was your dr?

Dietz

cfight's picture
cfight
Posts: 77
Joined: Jan 2010

Hi Dietz,

My father was diagnosed in December 2009. He started chemo in January and radiation to the arm (the cancer spread to his bone in the arm). He finished his first cycle of chemo and is starting a second round tomorrow. The oncologist who they saw today said he's responding well. He's even swallowing better which the doc said was very promising. Stay hopeful... it's been difficult for me to live in the moment (I'm a planner!!), but I've learned it's the best way to emotionally deal with the big "C." I wish you well in your journey. I'm glad you found this site!

jessicalla's picture
jessicalla
Posts: 30
Joined: Apr 2010

Katanna and Sherry,

Thank you for your uplifting posts. My dad, who is 62, who diagnosed with stage IV EC on Friday. We are devastated and looking for anything that can provide us hope. Please keep all of us updated on your treatment.

Hugs,
Jessica

MaxNZ
Posts: 3
Joined: Apr 2010

I was diagonised Stage IVb Esophagus Cancer metastasized to Lymph Nodes and Liver at age 41 on 7/07 and given 6 months to live which followed with aggresive pallative chemo till 11/07 (but supplemented together with detox, colonics, 100% raw diet, multiple supplements, flooding & feeding body with living juices, ayurvedic, homeopathic and what not - you name it I did it - with faith and prayers to live for my family) my tumor shrink from the size of closed fist to a small 50c coin (nobody believed it could be possible, but it sure did. In 03/08 I was given the option of drastic surgery (since not having any other medical condition and being the only option available for me if I wanted to survive any longer). I took my 50/50 chance and had multiple surgeries when my total stomach was removed with lower part of esophagus, plus removal of 45 lymph nodes and liver resection (removed segment 2 and 5). I must say that now over 2 years after surgery I do have quite a few health issues and complications with the damage done to my body due to aggresive chemo and multiple surgeries. Also have a life-long dependence of J-tube feeding adjusted to prrvent malnutrition which keeps me going as I take each day as it comes and enjoy the extra extended bonus time. BTW my post treatment weight was down to 132 lbs which I've regained close my original weight of 176 lbs. I would like to say everyone fighting against cancer that ANYONE can achieve and DO what I did with the right attitude and making the right choices to REGAIN back your health and FIGHT CANCER...its possible.

Cheers,

Max

jessicalla's picture
jessicalla
Posts: 30
Joined: Apr 2010

Bless you Max!! Thank you for sharing your story. I know my dad will fight this thing like you have. You two have a lot in common- a lot to live for and a fighting spirit. You are in my thoughts as you continue to live with the health issues that are a result of the surgeries. Thank you again for posting your story.
Jessica

MaxNZ
Posts: 3
Joined: Apr 2010

Hi Jesicca,

I know that your dad must be going through a lot at this stage (as you mentioned we have a lot in common). If he is in treatment I guess this will help him from my own experience to cope better and for a more effective treatment outcome.

From what I have known chemo does become ineffective at a later stage since the body gets used to it after awhile and so you have to take control of your own health with alternative and complementary medicine.
- Be selective in what you use since the normal supplements and standard doses are not enough.
- Get your Dad as soon as possible on a 100% raw diet (organic if you can or use Fruit & Vegetable Wash (envirome.com) which removes 97% residues. use living green veg fresh juices mixed with carrot and beetroot as much as he can consume preferably using single gear juicer 63-80 r.p.m like Oscar or similar to ratin vital enzymes and nutritions.
- Can add Ellagic Acid 1000mg tabs from www.ellegic.net a must to cause ATM cell death, nothing is more effective.
- Follow Supplement Protocol from book - Cancer : Fight It with Blood Type Diet esp follow Chemotherapy & Radiation Adjunct to fully support and boost his current treatment (if you can't find this book just let me know Dad's blood group and I can send you the details)
- Try to follow full body detox with colonics (try Detox-Kit by Heel - Homeopathic for full body detox, it does not shift things from one part of body to another) once your Dad finishes his chemo/radiation to clean the whole system.
- Add Okra Pepsin E3 (goggle it for its benefits) from Standard Process.
- A must is Maximum Strength Digestive Enzymes (you can try max strength Extrazyme-13 with Probiotic).
In short, to deal with cancer you need a battle-plan and take each step and day with care. I know that your Dad needs family support and assurance in every way to fight this "thing" which canges peoples lives and outlook...Take Care...Max

jessicalla's picture
jessicalla
Posts: 30
Joined: Apr 2010

Hi Max, thank you so much for the great information!! I truly appreciate your time and support!!
Jessica

K_ann1015's picture
K_ann1015
Posts: 555
Joined: Aug 2009

great post----CONGRATS Max!!!

I love what you have to say about attitude---the glass half-full!

Let me add a quote (or 2):

-"Once you choose hope, anything's possible".
~Christopher Reeve

"A positive attitude may not solve all your problems, but it will annoy enough people to make it worth the effort."
~ Herm Albright, quoted in Reader's Digest, June 1995

Kim

MaxNZ
Posts: 3
Joined: Apr 2010

Hi Kim,

Yes, you are absolutely right in saying - the glass is half full not to say this its half empty. It's really is how you look at it, don't look back on what's over or where you are now which will only increase your suffering, always be positive and have faith and "all will be well".

I feel we all should give full support and encouragemnt to all who has cancer through this CSN Board since its a very nasty disease to have (my primary esophagus cancer was 6th out of 200 types of cancer which metas to lymph nodes and liver) and give all the help and advise if you can to make a difference to their lives.

If you can even help one person with your advise from your own experience to live and survive, its worth it since only who have suffered and been through the scary road has the capacity to be able relate and feel what its like to have Cancer...

Max

Adele0650
Posts: 11
Joined: Apr 2010

Hi Max,
thank you so much for all the information on your board. I have searched every where and of course none of this info was given to us by our doctors. My husband was diagnosed with esophageal cancer. He went through chemo and radiation and was operated at Sloane in NYC in September. Part of his esophagus and 3/4 of his stomach were removed. It has been difficult as you know, unfortunately we found out last week that the cancer is back but the good news is that it did not spread anywhere else. He is going to get more chemo and we are in the process of looking at other options. He is losing weight and were very concerned. Have you or anyone else considered the IPT Integrative Medicine?

Thank you for your help

Adele

KKR1951
Posts: 1
Joined: Dec 2010

Hello Jessicalla: my hubby 60y/o was diagnosed late August stage IV with metastases in lymph nodes and liver. Has had brachytherapy (radiation) and now on chemo. Lots of trouble eating and has a g-peg inserted in his stomach so I can feed him when he cannot eat by moth.
Wondering how your dad is doing now.
Take care
Karen in Hamilton, Ontario CANADA

Sharrae Kidd
Posts: 1
Joined: Sep 2010

Hello everyone I was hoping I could get some help, information, from people that have gone through this diagnosis. My sister is 31 years old and was just diagnosed two months ago with stage 4 esophageal cancer. The cancer is in lymph nodes as well as her lungs, stomach, and spine. She had a stint put in about a month ago and surgery is not a option for her. My sister is about to have her third round of chemo and as she has 24/7 chemo fanny pack that is given through iv. My sister has a 10 month old baby as well as a 3 and 7 year old. I am finding it really hard to find groups to help with payment of medications and help in general to the family. Does anyone know if there are grants or any assistance to young couple that something like this happens to? I would appreciate any help that anyone can offer to tell me. Thank You all so much for your time and good luck with your battles. God Bless You All!!!!

BMGky
Posts: 666
Joined: May 2010

It may be helpful to repost your question as a new topic. With this post being at the bottom of a lot of posts, it could get lost. There are a lot of people on this site who are very knowledgeable and helpful.. Good luck and prayers to you and your sister and family.

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

I also can't believe how heartbreaking this must be.
Please God someone will be able to help.
Hugs
Marci

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

Hi Sharrae,
I thought that my husband and I were badly off until I read your post. I am so so sorry for you and your sister.
I will pray for you every day and hope that things will improve.
I am not sure, but have you thought of perhaps going to the lottery headquarters and asking for help. I know they have a lot of funds for charitable causes and personally, I can't think of a better cause than the mother of three small children.
Also, Addenbrooks Hospital in Cambridge England does many clinical trials for all cancers.
They have recently had some wonderful results, here is a link
http://www.livercancer2.com/cancer-stricken-grandfather-given-just-12-months-to-live-sees-tumours-killed-in-two-days-after-breakthrough-treatment.html
Maybe it would be possible to get them to help.
God bless you and your family
Hugs
Marci

mardigras's picture
mardigras
Posts: 196
Joined: Sep 2011

Hi Sharrae,
I thought that my husband and I were badly off until I read your post. I am so so sorry for you and your sister.
I will pray for you every day and hope that things will improve.
I am not sure, but have you thought of perhaps going to the lottery headquarters and asking for help. I know they have a lot of funds for charitable causes and personally, I can't think of a better cause than the mother of three small children.
Also, Addenbrooks Hospital in Cambridge England does many clinical trials for all cancers.
They have recently had some wonderful results, here is a link
http://www.livercancer2.com/cancer-stricken-grandfather-given-just-12-months-to-live-sees-tumours-killed-in-two-days-after-breakthrough-treatment.html
Maybe it would be possible to get them to help.
God bless you and your family
Hugs
Marci

Donna L.
Posts: 2
Joined: Oct 2010

Katanna, Thank you for your post. I was diagnosed March 4th of this year with Stage 4 Rectal Cancer. While that news scared me to death I was determined to fight it (& still am). I had gone to 5 different doctors over a 2 year period complaining about my "tailbone region" hurting while doing a lot of sitting. It just kept getting worse & I could not get comfortable no matter how I tried to sit. The last Dr. I went to patted me on the head and told me I just had arthritis (he had asked when I went if I had ever had any injuries to my tailbone area & when I said yes it was broken when I was a teenager he went no further.) He literally patted me on the head and sent me home telling me to get Tylenol Arthritis Pain Reliever OTC & try that. I went to work the following day and was just miserable. I grabbed the yellow pages & looked for a specialist that would see me without a referral and thank God I found one, he saved my life. I went in, he sent me for a colonoscopy & discovered I had Stage 4 Rectal Cancer, I had several rounds of chemo, then surgery for a colonostomy. The cancer had metasized (sp) onto my liver. On Friday the 22nd I will be going to the hospital to have 1/2 of my liver removed as well as my gallbladder and bile duct. The surgeon will then attach my small intestine to the other 1/2 of my liver. So far I have had 12 rounds of chemo and while it did make me sick, I actually gained weight. The Dr. said it was due to the steroids. I did lose some of my hair but kept most of it (it was extremely thick to start with). I had been "paying" to have it thinned out and now the chemo was doing it for me, lol. I have had numerous PET Scans, CT Scans & MRI & so far it is just in the liver. They removed the cancer from my rectum when they did the colonostomy so I am praying this will take care of it. I am praying that I will be a Stage 4 survivor like you. I have a wonderful support team (family & friends) and am very thankful for everyone & especially to God for bringing me this far. I only hope I can help someone else with their cancer and outlook on life. Attitude is the most important part of all. Take care, Donna

sghajar's picture
sghajar
Posts: 16
Joined: Nov 2010

Thank you so much for sharing your story. My dad was diagnosed with Esphopycas and Stomach cancer in May 2010. He received 4 sessions of chemo prior to his surgery. They removed 3/4 of esophycas and 1/4 of his stomach + 22 lynph nodes. He recovered from his surgery like a champ. On Monday October 25th he was check prior to his 1st chemo treatement after surgery and a lump was found on his neck. The biopsy on the same day showed that it is cancer., The doctor ordered CT Scan and they found out nodules in his lungs, and the lynph nodes in his chest seems larger. We are truly devasted. Your story is giving us hope. Is there any experimental drugs for this type of cancer or any cancer? God bless.

Boston67's picture
Boston67
Posts: 67
Joined: Dec 2010

Would you mind sharing where you were treated and by whom?

mishti
Posts: 24
Joined: Mar 2011

Hi,

My father was diagnosed with stage 4 esophagus cancer. He has finished with 2 sessions of chemo and 4 weeks of radiation. He has constant pain and can't eat or drink, not even water. Can anyone suggest me what diet should we choose for him or is feeding tube the only option. I am looking out for more survivor stories, so that it gives us some hope. I can understand now, what pain and suffering one goes through so see your loved one suffer.

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