CSN Home » Cancer specific » Childhood Cancers

ganglioneurblastoma



Total items found: 6



	

					
								
tlopez

				          
            Posts: 2

          
          
            Joined: Dec 2007

          
        					
				
		
									

        			    December 17, 2007 - 9:55pm			  			

			
			
Anybody out there have any expirence with this in adults?  I have learned it is found in children. I am old enough to be rasing my own children so I really need to hear from someone over the age of 20. Any info will be helpful.


‹ Any 'older' neuroblastoma survivors out there? My husband has Medulloblastoma grade 4 we are from Canada ›

						
login or register to post comments

				
	








	

		
									
dancer21

				      
	        Posts: 3

	      
	      
	        Joined: May 2003

	      
	    				
		
			
May 18, 2009 - 3:39pm

			
Hi yes, I was diagnosed with
			
Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.



			
login or register to post comments

				
	






	

		
									
dazzlemn

				      
	        Posts: 4

	      
	      
	        Joined: Jul 2011

	      
	    				
		
			
August 3, 2011 - 11:04pm

			
My daughter
			
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.


My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.


Thanks much,


Dave


dazzlemn@gmail.com



			
login or register to post comments

				
	







	

		
									
EB

				      
	        Posts: 1

	      
	      
	        Joined: Aug 2010

	      
	    				
		
			
August 22, 2010 - 12:32pm

			
Ganglioneuroblastoma
			
I was 25 when I was diagnosed.  I know how hard it is.  If you need any support or additional information, please let me know.



			
login or register to post comments

				
	






	

		
									
dazzlemn

				      
	        Posts: 4

	      
	      
	        Joined: Jul 2011

	      
	    				
		
			
August 3, 2011 - 11:03pm

			
My daughter
			
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday.  Any info/ recommendations you can give us would be greatly appreciated. 


My wife and I are in Limbo right now, and looking for the best possible treatment team, etc. 


Thanks much,


Dave


dazzlemn@gmail.com



			
login or register to post comments