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Members Online: 19

ganglioneurblastoma

tlopez
Posts: 2
Joined: Dec 2007

Anybody out there have any expirence with this in adults? I have learned it is found in children. I am old enough to be rasing my own children so I really need to hear from someone over the age of 20. Any info will be helpful.

dancer21
Posts: 18
Joined: May 2003

Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.

dazzlemn
Posts: 4
Joined: Jul 2011

My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.

My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

Thanks much,

Dave

dazzlemn@gmail.com

EB
Posts: 1
Joined: Aug 2010

I was 25 when I was diagnosed. I know how hard it is. If you need any support or additional information, please let me know.

dazzlemn
Posts: 4
Joined: Jul 2011

My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.

My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.

Thanks much,

Dave

dazzlemn@gmail.com

Lukemcglennon
Posts: 4
Joined: Jun 2012

Iv been diagnosed at 21 and finding it very hard, if there anyone one who will give me support i will be very happy thank you

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