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ganglioneurblastoma
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Dec 17, 2007 - 9:55 pm
Anybody out there have any expirence with this in adults? I have learned it is found in children. I am old enough to be rasing my own children so I really need to hear from someone over the age of 20. Any info will be helpful. |
Joined: May 2003
Hi yes, I was diagnosed with ganglioneuroblastoma at the age of 21, I'm now 27. If you still would like some info please let me know.
Joined: Jul 2011
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.
My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.
Thanks much,
Dave
dazzlemn@gmail.com
Joined: Aug 2010
I was 25 when I was diagnosed. I know how hard it is. If you need any support or additional information, please let me know.
Joined: Jul 2011
My 16 year old daughter was just diagnosed. She is just completing staging tests, and we have a meeting with the oncology team from the University of Minnesota Children's Hospital on this Friday. Any info/ recommendations you can give us would be greatly appreciated.
My wife and I are in Limbo right now, and looking for the best possible treatment team, etc.
Thanks much,
Dave
dazzlemn@gmail.com