Jun 24, 2007 - 8:35 pm
My mom,(who is ONLY 44 years old) was diagnosed with GBM grade IV, last year on July 30. She underwent a craniatomy, followed by a rigorous course of radiation, and Chemotherapy(Temazolomide). Her MRI's were clear for about 5 months, and then in February, she fell, and an MRI showed edema surrounding the tumor bed. They gave us decadron, and the oncologist stopped Temador. We then started a new Chemo called Avastin with CPT-11. This worked for about 6 weeks, and a recent MRI has showed an enhancement. Currently, we are on Avastin with Carboplatin. My mom is also on homeopathic medication, and she takes many immune-boosting supplements. However, her walking has become severely terrible. Her tumor is at a spot that makes her forgot her left side. (Right Parietal Lobe, which is infiltrating the corpus collosum, with a mid-line shift). We are considering 2nd surgery, but our neurosurgeon is not confident everything will go well. He says whatever effects the tumor might cause in about 3 or 4 months, the surgery will ensure those effects right away. I'm only 15 years old, and I feel like there is a big block in front of me and my family. If anyone out there is a survivor or knows anyone that has survived, PLEASE don't hesitate to contact me. I am open to any suggestions that might give her a few more months to live. Please, I'm begging anyone. My mom is my life, and I can't bear the fact that she is suffering. Thank you. I pray for all and anyone that has(or had) to suffer through any of this.