I would like to chat with someone taking Alimta & Avastin together.
I have Stage 4 NSCLC and during the last year I have been on Gemzar/Carbo, Tarceva, Taxol/Avastin, and now I am on Alimta/Avastin and Decadron. I have had very little trouble eating or nausea and on the previous drugs I typically only had trouble with being weak or tired for a couple of days after chemo. I have the Avastin/Alimta every 3 weeks but I feel tired almost every day and eating is is nearly a constant problem. I am taking (dexamethasone) Decadron 4mg every other day. Oh, and yes I do take Folic Acid every day too.
I am concerned because when I search the internet for Alimta side effects and patient stories I keep reading about how easy it is and how patients go back to work the day after chemo. I feel like I am always wanting to eat, but even a small portion of food makes me feel full and uncomfortable. The third and fourth day after chemo I am so sick it is the worst experience I have had since my DX a year ago. For 48 hours I can't lie down and I can hardly eat anything. I have to sit up in a chair for 2 days and wait for it to pass.
So could anyone out there share their Alimta/Avastin experience with me?
In the 3 weeks between treatments I probably only have 5 days where I feel close to normal and I am active. The odd part is they are not consecutive. The good days are scattered during the 3 weeks. I know some of my problem is the Decardon (steroids) making it difficult to sleep. I have a persistant cough that interrupts my sleep too. I have to prop up my head or sleep in the recliner because if I lie completly flat on my back or side I start coughing. Oh well, I guess that is enough whinning and complaining. Sorry if I ran on too long.
Thanks for listening, Cinci Rick.