Apr 15, 2007 - 6:51 pm
Hello, I am looking to start a dialog with anyone who has survived and/or is currently going through the challenges associated with Bilateral Wilms. My daughter was 13 months when diagnosed and we have had 4, 3 week rounds of chemo since january 07 (week 1: V,A,D, week 2: V, week 3: V). We will be going in soon to meet with the surgeon to talk about the surgical plan.
This has been such a stressful time, I would really appreciate a perspective of persons who have lived what we are going through.
now the conversation is looking at radiation as a part of her treatment, but because she is so young, we are especially concerned. There are many reports about how children under 5 are especially susceptible to gliomas after exposure to radiation.
I guess I am really acknowledging just how afraid I am, as I am new to CSN.
Hope to hear from you soon.