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mesothelioma

kbierlich
Posts: 1
Joined: Nov 2003

hi everybody, i'm keith. i have survived peritoneal mesothelioma for
6 years. if anyone wants to talk, i'm here.
love, keith

AuthorUnknown
Posts: 1564
Joined: May 2006

Dear Keith,

Congratulations on your 6 years of survivorship!

Take care,

Dana

CSN Dana

LisaAF
Posts: 1
Joined: Mar 2007

Hi Keith, congratulations on 6 years!!!
My father has been diagnosed with Mesothelioma and has begun chemo. Of course noone has given him any hope of 6 years. Was wondering what treatment you received if you don't mind sharing that information. Thanks Lisa

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jaybe
Posts: 1
Joined: Jun 2007

I am getting ready to begin Chemo I was diagnosed with Mesothelioma and just had surgery 2 weeks ago to get rid of my reoccurring left lung plureal enfusion, It is great to take the weight off, I carried over 3 litters. This is hard for me with it being so rare, I have no one to talk to that can relate to what I am going through.I have a son that is 4. I am scared of choosing the wrong treatment plan and losing time with him. Chemo or surgery???

flint
Posts: 3
Joined: Nov 2007

Jaybe, sounds like you have some very serious decisions ahead of you. i know of several physicians who specialize in mesothelioma and i would suggest that you contact them.

AZHawley
Posts: 3
Joined: Jun 2009

My Dad has Meso and is 86. My daughter works for the Mayo Hospital and has been a very valuable resource. We checked out several clinics that specialize in Meso - MD Anderson in Houston TX, Mayo Hospital in rochester MN or Phoenix AZ, Cancer Center or America in Phoenix AZ. I know there is also a place in Maryland - never checked them out. There is a ton of info on the Internet. Get an attorney to work on your case. Determine where you came in contact with asbestos and who manufactured the products that contained asbestos.

charlesbkey
Posts: 1
Joined: Jun 2007

My father is 77 and has 4th stage plural mesothelioma he just did his second chemo last wed....any ideas on other alternatives or resources...trying to save time on the learning curve....I really appreciate any help you can give me

AZHawley
Posts: 3
Joined: Jun 2009

My Dad has Meso as well, he is 86. He had his first treatment on Friday 6/12. So far he is doing OK - no nausea, good appetite but is SO tired. His legs swelled on Saturday and had to go to the doctor for meds. I would recommend you look at some of the meso websites and MD Anderson (Houston TX) to get more info. Did your Dad get a 2nd Opinion? MD Anderson is where my Dad went - however - there were no alternatives for him other than Chemo. My Dad had the tumors removed in March and had the Talc Procedure done. If you haven't already, I would recommend that you find an attorney that might represent your father and help determine where he may have been exposed to the asbestos.

dragonflyae
Posts: 1
Joined: Jul 2007

hi
i was just diagnosed and i am terrified, any words of wisdom?

flint
Posts: 3
Joined: Nov 2007

Pleural or peritoneal?

krobles
Posts: 2
Joined: Nov 2005

Hello,
I'm Kathy, 59. I was diagnosed two years ago with peritoneal mesothelioma. They also found two spots on my lungs. I started chemo (two drugs, one was cisplatin) and I have been doing great for going on two years. My CT scans come back showing NO CANCER! And no more draining of fluids (initially they took 33 lbs. of fluid from me when I had the exploratory surgery). I had paracentesis 5 or 6 times after that and then I didn't have to do it anymore. All I can say is PLEASE do not give up. The chemo is better than previously. And don't believe all the doom and gloom on the Internet. It will freak you out. It did me. I told my doctor I would beat it and so far so good. Take care of yourself and God Bless You!
Kathy Robles

krobles
Posts: 2
Joined: Nov 2005

I've been where you are. Don't panic. I am two
years in remission after chemo and I feel great.
There is hope but YOU have to BELIEVE!
Kathy

Candy1311
Posts: 6
Joined: Apr 2009

I'm so scared. But after reading some of the statements on this website I'm feeling a little better. I'm 43 and was just diagnosed last week. I had no idea what was happening to me. I went to the emergency room for an xray. I thought I had pulled a muscle at the gym,I was in better shape the day I was operated on than I'd been in 10 years.They took out a tumor that was attached to my diaphram and heart.As of last week and the results of petscan I'm free but they still want to do cemo and radiation. Why can't the doctors give us any exact answers. It was 3 weeks on April 16th since the surgery. Can I ask when do you start to feel better. I keep telling myself I'm rushing and seeing they cracked me in half it's going to take some time to heal.Please keep telling all of us how you are doing and how great you feel. I think this site is the only positive things I've been reading. Thank you!
Candy

soca789
Posts: 1
Joined: Jan 2008

I would love to talk with you, I am trying to make a 6 year mark. How do you deal with the symptoms? my email is bcm789@hotmail.com

Annony
Posts: 1
Joined: Jan 2008

Hi. My husband was diagnosed with an atypical mesothelioma a little over 2 years ago. It was a mass on the chest wall that was treated with extensive surgery, reconstruction, and chemotherapy. They removed several ribs, part of the breastbone, and muscle. It was encapsulated and had not spread. They felt they got it all and all his follow-up scans were negative until November. He now has a mass that is "consistent with recurrence of mesothelioma" in almost the same place as the original. He is scheduled for surgery and they again think they can get it and that it is controllable. It does not appear to have spread. He has a lung hernia from the previous surgery that must be repaired too. They will know for sure if it is meso again after the surgery. Not going to do a biopsy as it might be inconclusive and the other work needs to be done anyway.

Congrats to you for 6 years. That gives a lot of hope.

BBrown's picture
BBrown
Posts: 1
Joined: May 2008

I was diagnoised in December 2000 and have undergone several operations, some radiation and several rounds of chemo. If you would like to talk.

austill
Posts: 1
Joined: Sep 2008

Can I email you or call you to discuss. I'm a fighter, but I am looking for direction.
Thanks

lacemom
Posts: 3
Joined: Sep 2008

I've got a lot of meso treatment info. Contact me at baitshop@globaleyes.net

h3n3ry
Posts: 1
Joined: May 2009

Hi,

My mother has been diagonsed with this cancer and been given 12 months to live however we want to fight it. this cancer is un common in new zealand where we live I would like for her to have an extrapleural penumonectomy operation. to rmove the lung to give best chance of beating this cancer. And would like to talk with anyone who has been down the same path once diganosed with mesothelioma

Thanks

Paul

Candy1311
Posts: 6
Joined: Apr 2009

Hi Paul,
I was recently diagnosed with this cancer. I was operated on before they new what it was. My tumor was rare and was located within my heart and diaphram. They do think they got it all and I'm now doing chemo and radiation. How old is your mom and how is her general health besides the cancer?
Candy

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