Cancer Survivors Network

Many thanks for your response to my post cancer fatigue message, I appreciate knowing that others are having bouts of this fatigue long after their treatment has ended. I just feel that much more needs to be done in keeping cancer survivors informed of what can go on in their lives due to all they have been through. I found a lot of interesting and helpful information on the Lance Armstrong web site. Go to www.livestrong.org, under All Topics, go to Late & Long Term Effects, then Fatigue, then Detailed Info. As to your questions, can something trigger this fatigue, prevent it or any tests for it? I really have no idea, but I do know I am going to certainly go into it more when I see my oncologist in a few weeks. I recently had several weeks where I felt much better, had very little of this fatigue, then all of a sudden, would have days when it was back again. So, it is a strange thing that you just never know when it will appear and all you can do is get a lot of rest and pace yourself.

I am a two-time cancer survivor. Stage 3 nasal cancer and stage 2 prostate cancer. I am only 47 yrs old, but after four surgeries I have bouts of fatigue. Doctors cannot figure it out and it is driving my wife crazy because I am tired most of the time. I have researched some Cancer manuals that say Fatigue after multiple surgeries is not uncommon. I have been lucky in the fact that I did not receive chemo or radiation, but the fatigue factor is a very puzzling situation, even for my doctors. I try to excersize as much as possible and try to watch my diet. I don't think the doctors have any answers for fatigue.

I'm so sorry you all have been through so much - makes me feel almost (but not quite) "lucky". I have (or had, depending on how one looks at it, I guess) State 2b invasive breast cancer; 4 surgeries; chemo (8 rounds) and am supposed to be on entiestrogen treatment, but have stopped taking it for the very reasons described - chronic fatigue, joint and bone pain, neuropathy, "chemo-brain", etc. I haven't read the CURE article, but will get the magazine. I feel relieved to know that others are experiencing these after effects, or whatever they are. I'm not very far past treatment (last chemo was Nov. 11, '06), and was already discouraged because I'm not feeling that much better than when I was on chemo - but now (after reading your stories), I guess I'll just work on adjusting my attitude! Thank you so much for sharing - and blessings to each of you.

im glad im not alone. in 1998 i was diagnosed with molar pregnancy and recieved iv chemo. ive been cancer free for 10 years and im extremely tired all the time. I can wake up and be so tired 3-4 hours later and actually go back to bed even when I was up I didnt do anything to be tired. So what can be done about this? what type of do you see or what blood tests? I already know rest but I am always so tired and its really hard to fuction. What other side effects are there cause my hair still falls out time to time

I had thinning hair from time to time and I was diagnosed by a dermatologist with stress trauma. Apparently he said that there was a shock to my system (physical or emotional ) and this caused the hair loss and that it goes in cycles with this type of reason for the hair thinning that is why it comes and goes. I forget what the cycles are (how many months) but it made sense. Fatigue, I am the same. I sleep and 3 or 4 hours later have to rest. Because I have so many other reasons for the fatigue they can't actually diagnose Chronic Fatigue Syndrome but one specialist is sure that is what it is. Do you have flu like symptoms that come and go for no reason? Sore throats same thing? These are other symtoms of CFS. There are sites that tell you about it online. It was suggested that accupuncture might help the fatigue but it's too expensive for me to keep up.

I am a MDS/AML cancer survivor, I was wondering if any other survivors recieve long term disability payments. I cannot manage at a job well enough to be successful, I need ADD meds and sleep meds to sleep and function, I worry all the time about being cut off of disability payments, does anyone have these same concerns and problems.

I share ur issues and heres my email if I can help support u I am on Disability and I sleep 12-14 hrs a day n wake up tirred LOl so whatever jackgrenan@netscape.net I am a psychologist who cant work . Best 2 You

Carolyn asked about cancer treatment side effects so I will throw out a few of mine. The hair problem is something I have not faced. But 5 years out of treatment I always have dry skin. I can never get enough fluids. Memory loss! When my smoke detector goes off to remind me I have something on the stove its not a good thing. Or I am listening to the rain on the roof and my poor dog is standing out in it. Its lucky he can't talk and has a short memory too. Everytime I go to the store someone keeps moving my truck because I can't find the dang thing! Learning new things is a struggle. Like Terato I have no use for adding stress in my life. I would rather live in a tent in the woods. But I help others in my area with cancer as it has its rewards. I have no use for a cell phone because I hate phones. For years everytime I got a call it was bad news. My immune system is half of what it was. If there is a virus or infection going around I will proubly have to deal with it. A good day is when I don't wake up in pain. Radiation progressed arthritis in my spine and it finally put me on disability. My neck fell apart and my left arm quit working. It took 3 months to get it back. I try to do things around the house. But as my coordination is off sometimes, my wife has very few good dishes left. And after a cup of coffee goes flying across the living room or kitchen my wife usually tells me to sit my butt on the couch. My kids just say "Geeezzz Dad". I am about to make a T-Shirt that says "Cancer Survivor, One day at a time, AS IS NO WARRANTY". That might remind my family that I still struggle everyday and I am not perfect! Slickwilly

Hi blueroses - I had ovarian cancer in 2004. I ended up with Stage IIIC. I worked up until last November when I couldn't do it anymore. The overwhelming fatigue is awful. I can't think clearly. Only have about 4 good hours a day to do what I need to do. I've tried provigil, but it stopped working after 3 weeks. My doctor has put me though I don't know how many tests - all came back normal. I recently read the article about Post Cancer Fatigue and was relieved to know I'm not crazy. I'm 51 and thought that leaving work would help me - it hasn't. Same old fatigue is still here. I exercise and improved my diet. Do you happen to know if SS Disability supports Post Cancer Fatigue?

I see a late effects doctor at Sloan Kettering who specializes in those suffering from treatments that cured their cancer. In my case, over 19 years ago, for Hodgkin's Disease. Though I don't recall the conversation from last October exactly, we did talk about the fact that my fatigue has increased, especially following emergency heart surgery (late effects related) last April. The important thing that he told me, it was "normal". It was definitely a relief to have this conversation in front of my wife, totally unprompted. So at least, now, she knows I'm not just being lazy, and I don't feel like it.

As far as social security covering disability for fatigue, not too sure. Perhaps this is something that can be talked about with your doctor first, and then perhaps a representative from your social security office.

That being said, under the last presidency, the ADA (Americans With Disabilities Act) was amended to include (and please forgive my political incorrectness), that people with cancer, being treated from cancer, or dealing with issues as a result of, are considered disabled. The writing is actually more detailed than my summary, but perhaps that may give hope that since we fall under protection of the ADA, that it would make it more possible and less complicated to get SS benefits.

I don't know if that answered your question, but I hope it gave you some direction.

Paul E. (hodgkoid2003)

Big topic. Well first of all I live in Canada so if you aren't in Canada you would have to check with your disability folks wherever you are. I know that here you can receive disability for Chronic FAtigue Syndrome but getting that diagnosis is near impossible especially for those of us who have been through cancer treatments because there are a whole number of things that can cause our fatigue and the way they diagnose CFS proper is that you have to have long lasting fatigue with no feelings of rest with NO OTHER REASONS FOR YOUR FATIGUE. With all the meds we had and may be on that also cause tiredness or from just stress alone there is no way they will diagnose us.

I have been on disability since my transplant which was in 1991 because of fatigue, a condition they say is 'like fibromyalgia', plus early arthritis (from the radiation they feel) and a damaged heart from chemo. There are other medical issues I deal with but that's besides the point.

If you have a really good GP (family doctor) who can stand up for you and your fatigue that is causing you so much distress you may be able to qualify for disability especially if you have other health issues that also keep you down. Here we have two different disability applications, one for straight one issue disability situations and another for a disability as a result of multiple physical problems.

Take care, Blessings, Blueroses.

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I am hodgkins lymphoma survivor. I was diagnosed in 2000. I am only 26 and I feel like I am 86. All my doctors say the same thing... Well you have a hypothyroid so lets check those labs and see if its not your thyroid. Yep, it never is! No doctors seem to have any answers and yet everyone close to me either think I making my fatigue up or they think they have a diagnosis for me. I wish I could make people understand how I feel. I am sooo tired almost all the time and adderall is the only thing that makes me feel like a normal person with a normal energy level. I hate to be a person that depends on a drug but the truth is, I do. Without adderall I wouldn't be able to work, heck I wouldnt be able to get out of my bed because I just feel that tired. But i cant tell this to my family and friends because they cant understand. I dont know how and I dont know why but having cancer/chemo/radiation changed me and I feel less alone to know there are others out there that feel the way i do.

I am relatively knew to this board but I am completely familiar with fatigue. I am three years out of treatment and still tire easily. I was a construction worker prior to diagnosis. When I worked I usually worked seven days a week for months on end. Then the job would end and I would go hunting or fishing. The last job I had was cleaning my carpet one spot at a time. IF I did two spots I got so dizzy that I was stumbling and tripping all over the place.

I need to get back to work. I don't have the strength to do what I once did. I don't have any education either so a new career for an over the hill dirt head does not look good either. a I need to be able to go back to work. that means I need to get over this fatigue. I feel like I am being lazy. But no matter how I feel I still do not do anything. I don't do anything because I do not have the strength and stamina to continue. I have tried working through the fatigue. All that does is set up another set back. These set backs make me reticent to do anything at all because getting set back is depressing which further complicates my recuperation.

There are people here that know what you are talking about. At least one...ME!!!

You are normal! Post cancer fatigue is normal, and perhaps may be expected. I would hope that with you having been treated in 2000, you are followed up fairly closely, and if so, they should be explaining that to you.

Family and friends, to be honest and fair, may never understand what we feel. All too often, just as we hope to, they just want us to return to normal following our treatments and prognosis of remission. Unfortunately, that's not the case.

Hopefully you see someone who specializes in long term survivorship issues. I know it has made a difference for me.

Paul E (Hodgkoid2003)

Thank you all! I thought it was just me! I was diagnosed November 2007 with breast cancer, underwent chemo while I continued to work as a prison guard, right up to the last treatment. When I went back to work I collapsed on the rec yard and was sent home. I had a bilateral mastectomy with 16 lymph nodes removed under my right arm and then the surgeries started every 2 months for reconstruction, with complications. I have one procedure to go. My father passed away 10-30-09 and the funeral was in Mich. and I live in Tx. My son had to take me and I was so tired when we got there I slept for a day and night. I get up to do things and my son (34 yrs. old) gets onto me to rest. He says that all he has to do is look at my face and he can tell how exhausted I am. I try to pace myself and it doesn't seem to help. This is the most negative thing about the cancer. Iwound up retired from Tex. Dept. of Criminal Justice after nearly 15 years at a job I really liked. Because of what I did they couldn't work with me at all. Thank you all for making me feel better. Chemo brain is another thing I thought I would get over and haven't yet. That scares me. I'm 61 years old. The balance thing happens too, I wear tennis shoes, even with dress clothes. To everyone else around me I make jokes and laugh about it all, but inside it does scare me. My oncologist just says it will improve with time.

crowynrowny,
Your definitely not alone out there. I finished treatments Aug. '08 and still deal with the fatigue at times. Good days and bad days. It's gotten much better over time. I also had a real problem with the chemo fog, which has also gotten better. I no longer get lost driving to places that I drove on a daily basis...good thing my vehicle knew the way! I was always a good speller, but the chemo affected that somehow. I went out and purchased a little gadget that fixed that problem:) The chemo damaged my inner ears and vertigo and tinitis were a big problem. The doc gave me a pill for the vertigo that wasn't real helpful...waiting 20 minutes for it to work didn't help when I needed a fix right then. My acupuncturist put me on some herbs that cured that in two weeks time. Don't know what it was, but the episodes are far and few in between now. The brake pedal and floor board of my truck appreciate the discontinued abuse at red lights and stop signs these days! Hang in there...one day at a time!

I had BC in early 2007--surgery, chemo, radiation, and other complications along the way. It sent my body for a real loop, and the fatigue and cognitive issues are persistant. I am on disability, which is something I never thought I would do in my life. But what choice to I have? It is hard dragging myself out of bed in the morning. I sometimes wonder how I can be so tired after I have slept all night. It goes in a roller coaster, and try as I might, I have not found a pattern to it. My "senior moments" from the chemo brain (I guess--what else could they be?) bother me, because I am in my late forties, not nearly a senior yet! I hope and pray someone, somewhere, does some real research on post-treatment effects we deal with. I need answers for my doctors, for the disability poeople, for family and friends, and for myself!

Hi, I also have long term fatigue 2 years on. I had surgery for breast cancer almost 2 years ago, and have had very poor energy levels ever since, and persistent sore throat which gets worse when I overdo it. I had no chemo or radiation so I don't think its the effect of treatment, other than surgery and of course the cancer itself.

My GP has diagnosed it as Chronic Fatigue Syndrome, but sadly I know all about that as my husband has it, so while we both have fatigue, our other symptoms are different.

The best way I've found to manage it is by pacing myself and never over doing it, and by eating a really healthy diet and never drinking alcohol.

As someone says above its about simplifying life and stripping it back to the basics of what you have to do, and not worrying about trying to do anything more. Its hard if you've been a busy active person before, but ultimately a slower pace of life has its own rewards too.

It helps to know I'm not alone as my cancer doctors seem to be clueless about the fatigue.

I wish some of these topics were talked about in detail before treatment was done. Instead going in visit after visit and feeling like an idiot when your asking or telling your onc whats happening and he's acting like your the only one this is happening to. Then just when you thought you.ve lost it you go searching and find out thousands not hundreds but thousands of post ca trtmnt people are going through the same things.
It would have saved a lot of the energy i had lost and then spent looking for answers. YES they (whoever they are) are now even documenting article after article about these LEFTOVERS that ca causes. I wish now they would spend all their time searching for ways to help us all combat these horrible leftovers as I like to call it.
Thank you all for helping me feel un alone.
Keep fighting and kicking ok grunting and groaning.
kim

I to have felt the same way, thought it was just me. I just took a voluntary layoff from work becuase of being so tired all of the time. Glad to know i'm not the only one.

i am 32 i had non hodgkins and finished treatments in 08 when i saw your post it sounds just like me i say that i feel 80 everyday they arent giving me anything for the fatigue and i already had my hours cut back to 6 at work and im falling asleep my family thinks im crazy and i just cant take this feeling much longer also i never was a big drinker or anything just on occasion and i cant even do that it takes everything out of me and my whole body aches this is terrible and i think these oncologists need to look into the later effects and at least try to help people deal with them

I had Hodgkins in 1999-2000 when I was 15-16. I am almost 27. I have horrible depression and anxiety now. Finally seeing a therapist for it. Never thought I would beat cancer and go to nursing school, become a peds nurse that takes care of kids with cancer .... run a marathon for TEAM in Training .... and let me depression and anxiety get this out of control. I am sooooo unhappy. I cry all the time. It's the worst it's ever been. I think it all stems back to my diagnosis :(

Jenn

I've been away from treatments for 8 months and feel the aches and pains. What helps me is forcing myself to move -- walk, lift weights, yoga, elliptical machine. Our bodies are meant to move and just as with arthritis, professionals tell us to move as it helps alleviate the pain.

Sad to say, but none of my doctors knows much about after affects from the treatments. Thankfully people on this board are up on it and we can all group together and know, we're not alone!!

Hang in there~

You mentioned yoga. I;ve been hearing a lot on the positive side of this. Do you feel that it actually helped you post treatments. With mental alertness and fatigue?
kim

About 8 months after my second treatment for NPC Cancer I found my self so week I could hardly get up, went to the doctor and they check and found my thyroid had stopped working. I am now on Levothyroxine and feeling great just cold all the time.

I am not alone! I am so glad i found this post. I was diagnosed in july 2008 with breast cancer with mets to bones. I finished treatment last May and i am so tired. I used to be very active, did everything. Now just getting out of bed in the morning is terrible. Sigh. i have to work a full time job for the insurance. And i am suffering, i also have chemo brain. I keep mentioning this to my oncologist, and he says your blood work is good. Of course, everyone thinks i am "fine" since i am done my treatment, but i feel like i am spiriling into a deep hole. My supervisor is constantly at me, and my ibs kicks in. It never ends..

You mentioned that doctors don't know much about side effects of the treatments but there are clinics in the United States called Late Effects Clinics that specialize in just that. Now many of them are for those diagnosed as children, with cancer, and now are grown and experiencing side effects but there is one for adults diagnosed as adults. That late effects clinic is in Boston at Dana Farber. It's called The Perini Clinic at the Lance Armstrong Clinic there and if you call them they will put you in touch with someone who can guide you.

Give it a shot. They have a website online too, just google, Lance Armstrong/Perini Clinics - Dana Farber.

Hope this helps.

Blessings,

Bluerose

You and I have exchanged posting on another side and yes I did start to research these clinics. Great idea and yes here in St Louis the only ones are for young/early diagnosed case. Will try and call the Perini Clinic and go from there.

As you've mentioned, when you had the treatments some 20 yrs ago it was so different. Now people like yourself are the after affect patients and see more docs agreeing yes there's side affects from treatments. Now the start of where do we go from here???

I'll check further and post what I find.

BTW, had my 4-month oncol appt and all is still NED..yippee! So....the good eating, exercising, less stress, and imagery techniques must be helping. And..lots of praying!! Now if I could find that "less" stressed job that I can do from home...

Thanks again,
Jan

Glad to hear that you had great results. You are home free I just know it. Keep up that praying and imagery, I believe in both big time.

Yup let me know what you find out about after effect clinics for adults. Perini is the only one I know but probably are others.

Take care.

Blessings,
Bluerose

I too suffer from BP problems radiation to the neck damaged my thermostats as I call them, my doctor said that my Carotid Sinus is the problem. When I stand up it is too low, when I lay down it is too high. What a case to be in, but life is still so sweet.

Not sure what your cancer was but visit us on head & neck

Thanks
Hondo

I was treated w/rads and ABVD for Hodgkins Lymphoma also. My PCP says there is no clinical reason why I should feel any more fatigue than any other 50 yr old NOT treated for cancer. All my other doctors and I obviously disagree. After that comment from my PCP I feel it may be time to find a new one. Wonder how hard it would be to find a PCP willing to take on a Long Term 3 time cancer survivor w/many LT effects from treatment.

I am head & Neck NPC Cancer 3 times; it seams more and more that a lot of us are here and still alive doing well.

Wishing you well and hope you find the doctor you need
Hondo

My marriage broke up about 14 years ago I guess it is now and I remember now what hurt then but not as much as it hurts now that I know what is going on more clearly.

When I asked my husband at that time to leave he had devulged that there was someone else which hit me hard as I had no idea and he had never given me one signal he was not happy so that was a shock in itself. Anywho that night the conversation was short but nasty as you can imagin. One thing he said now plays over in my mind because in part of the chronic fatigue I have battled for years after the treatments were over. I am a 25 year survivor.

At one point in the conversation, speaking of this other woman, he said 'well at least she has a life'. OMG. We had two young lovely children then and even though I was still recovering long after my treatments were done I thought we had a life. Guess he didn't. Today though that phrase of his hurts the most I think because I realized then but only have been validated by docs not too long ago that yes in fact chronic fatigue is a big side effect of treatments - maybe for years and years to come.

My ex thought of me I guess as lazy and never wanting to do things with him and the family but I just couldn't, always far too fatigued and had other side effects that kept me down and still do. Yes he didn't know of the whole side effect issue either one could say, but why would I lie? Guess he didn't truly believe me either with all of my physical issues, always thought he did. Sigh.

I am always so joyous to see survivors talk about how supportive their spouses are, it's so important. Believe in survivors, they know their bodies best. Be there for them. That's better than medicine.

Blessings to all.

Bluerose

Hi, I am a 3 yr survivor of Stage 3C Breast Cancer, in mid-forties, with teens and little kids. I was diagnosed in June 2008, surgeries, chemo, radiation, hysterectomy, more surgeries, with last one being Dec. 2009. Now on Femara. Within my 18-month "treatment" period, I was put to sleep six times for various procedures, then 3 more times because I had some digestive tract bleeding and a other issues that had to be investigated. We have a motto at my house, "Chemo sucks, thank God for chemo." I dont really know if its the chemo or all the surgeries, but, boy, I still feel like I have had my butt kicked hard! And as I read on another forum, I had the marriage that didnt survive. He and I both lost our dads about the time I was diagnosed, and he decided to drink his way into his 50's. He wanted me to go out and act like a college kid again (and to be his designated driver), hang out at bars and such, but I was just SO TIRED, plus had 4 teens to try to keep under control. So he found someone else to party with. Now I am getting a divorce after 25 yrs of marriage, and I have to manage my 6 kids (five still live at home plus a new grandbaby, yay!) and our finances, etc, by myself. I am so tired of feeling like a nutty hypochondriac! My children call me Dorie, after the forgetful fish on Finding Nemo. My sisters call me Aunt Clara. I try to stay active and exercise, but my BP is whacky now, and when I exercise I get so short of breath because my bp is high. I dont want to be this person! I used to be smart and active, have a high education and I worked in the medical field, but I have worked very little since getting cancer. I am too disorganized and way too fatigued to work full-time, so I do short fill-in work only. I actually FORGOT to go to work one day, and another time I didnt remember going to work, called my boss crying, and totally flipped when I realized I had FORGOTTEN an entire day at work. My onco, I swear, she's almost as dingie as I am, I question the fatigue but my bloodwork is amazing, and she blames everything on Femara.
Sorry, I said too much, I am having a week of insomnia and I am trying hard not to take a Lunesta, feel like the only person alive at 230 am, and it was a blessing to log into this forum and see posts from folks with similar issues. Now when I take my 2-hr nap tomorrow when the kids are at school, I will not feel like a failure!
This forum should be required reading for all spouses and caregivers of cancer patients and survivors! Thanks....

I am so relieved to discover I am not the only person who has long term chronic fatigue and pain after chemotherapy. I thought I must be crazy.
I completed 6 courses of CHOP for NHL in 2009 and then had a thyroidectomy and radioactive iodine treatment for Thyroid Cancer. Over the past two years, I have had constant fatigue and muscle/joint pain. It waxes and wanes, but is especially severe right now. I am an RN but had to stop working when I started Chemo and was never able to go back. Fotunately, I had long term disability insurance and was approved for Social Security Disability. I am turning 65 next week, but some days I feel older than my Mother who is 92.
I babysit my two grandsons ( ages 3 and 16 mos) one day a week, and I am so exhausted after that I usually spend the entire next day in bed sleeping. I ache all over and feel like I'm in a fog of fatigue.
I am glad to know I am not alone. I wish I had known this was so common. I tell my oncologist every visit how tired I am and how much joint pain I have, and he just shakes his head. I know it's because there isn't a thing he can do about it, but it would be nice to have been told this is not unusual. It's not something I was informed of could happen as a result of chemotherapy. I think once you are in remisission, the oncologist considers his job complete. Too bad long term effects are not treated as aggressively as the disease treatment that caused them.

For a little more than three years after having a Whipple for stage 3 pancreatic cancer. I have thought I was some sort of lazy,forgetful, hypochondriac! The pain(s) all over my entire body that, I can only describe to people as ( Not only being hit by a train but, also being dragged down the tracks a mile or two after being hit! ). Some days, it over shadows the pain from the surgery's after effects that some of us that battle P.C.(and I'm sure other cancers) are told to possibly expect! Then the forgetfulness A.K.A. "Chemo-Brain" and the fatigue that just comes out of nowhere at times! Needless say some folks think I'm making these symptoms up! I do have days where everything feels fine and I remember to get certain things done. So, what do I do... I tend to over do and pay dearly for it later! That's my doing though! All the things like thyroid, exercise, telling doctors. Etc.,etc. That all of you have mentioned. Been there too! Here I was thinking for 3 years. What happened to me? I was hard working, I like to think I was pretty sharp minded,athletic and full of energy. To getting P.C. and thinking "O.K. if LORD willing I make it through this...It might take a while but, I'll get pretty close to being on track and back to something close to normal." All of you posting here know all to well what the rest of the story to this point is. You also have lived it I'm sorry to say.

So I THANK ALL OF YOU! For your posts. I know I must sound like a rambling idiot to the rest of you! But, to give you an idea how your posts have affected me. I'll put it in this perspective. At this moment. Finding out I'm not the lazy,forgetful, hypochondriac I thought I had become. I feel the complete opposite emotionally as the day I was told I had cancer! THANK YOU ALL AGAIN! I don't know why the doctors don't mention the long term effects! I think Galtgirl made a good statement on that point though.

I'll mention something that helps me tolerate the joint pain some and some of you might already have used this but,if you haven't. Check with your doctors first! I take Celebrex 200mg. It seems to take the edge off. I've heard both good and bad about it but, it seems to work OK for me.

You can bet I'll check back to this area to read or leave possible ideas to correct the issues we face.

Wishing all a MERRY CHRISTMAS and GOD BLESS!
Oneshot

I was diagnosed with a enlarge B-cell Lymphona in August 2004...It was a Non-Hodgkins lymphoma..I entered remission in 2007 and to this day, 4+ years after ending the Chemo and radiation treatments and the medications, I still find myself suffering of sudden fatigue episodes. I could be well for months and then it hits...and it stops me on my tracks...I am down for days and I feel so depressed and helpless...I try to explain others what I am going through and I can't find the right words or feelings to describe it. I know I am not the only one..I know there are many of you out there that go through the same and can't seem to make others understand what you are experiencing. Let's talk!

Same here I get very weak at times and can’t explain it, all I can do is to lay down in bed. I been to all kinds of doctors for it and every test they run showed no problems. I did start taking an Iron vitamin and it does seam to help some, hope it works for you.

Hondo

So correct it is better then C but just wish I could sometimes get back to a normal of some type. Anyway I am loving life again

Wishing you the very best
Hondo