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side indintation anyone?



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senoritaselig
Posts: 1
Joined: Oct 2005
October 21, 2005 - 7:09am

this is my first post ever so if this sounds wierd or is in the wrong spot sorry... anyways hi im 22F, i had wilms turmor stage 3-4 when i was 3yrs old. i survived with out having cancer again. i want to know if there is anyone else who like me has a very large indentation where their kidney used to be. ive never seen anyone like me before and my docotors say they dont know if other survivors grow up to have a indentation where their kidney used to be... but i imagine there has got to be someone out there!also i have pretty sharp back pain most days after doing sports or bending over alot. which could be attributed to osteoperosis in the spine (due to radiation) or having had some muscles removed/radiated on only my right side. i also have what looks like a bump on the non-operated side of my back when i bend over but not when i stand up... is there anyone like me?

Chicago's picture
Chicago
Posts: 75
Joined: Apr 2004
October 22, 2005 - 12:14am

You found the right spot. Most of the people here have (or have had) adult renal cell, but I would imagine that the operations leave pretty much the same results.

I actually have a substantial bulge of scar tissue where they operated, and not an indentation. Although, I was also lucky to be able to keep most of the kidney that had the operation. Maybe the bulge would be smaller (or even indented) if they had taken out the whole kidney.

Maybe the young age played a role too. I'm sure you've grown quite a bit in the last 18 years. The body was probably not expecting to have to fill in the spot.

I'm 3 years out of my surgery now, and I still constantly feel pain in the back and side muscles that were cut through. At least now though, it tends to only hurt when I overexert them. I have the feeling that I'm going to experience these pains for the rest of my life.

Not a bad price to pay though. Every time I feel the pain, I am happy to be reminded that I'm still alive, and that I have very much to live for.