Feb 05, 2005 - 12:29 am
You may remember that I was going over to my father's for his first round of chemo several weeks ago. Well, he has had two treatments now, leucovorin,irinotecan and 5FU, with Zomfar for nausea and acyclovir to keep the shingles at bay. The first round he had an initial reaction so he now get atropine automatically. The following day a few hours of diarhea and that's it. He has terrible fatigue though. This treatment, a small bout of diarhea and then the fatigue. He says that if the fatigue is the worst of it, he'll gladly accept it. For me, to have been away so much (5days each time) has been hard- like the couch I sleep on, but it is encouraging to know that other than the pic line and portable chemo bottle, you would never know he is sick. His spirits are good, all his bloodwork (other than CEA) is normal. What really helped today though, was reading all the encouragement sent to Griff. Because my father was given 6-12 months, told it was terminal, we just accepted that. The chemo is for palliative purposes to keep the number of tumors down. As I read though, I am reminded that no one knows. Lots of people are given small percentages, and go much longer than expected with a good quality of life. So thanks to all of you for sharing. With each other, with me, stories and suggestions. It is sooooo helpful, and a good reality check too.