My 2 yr 5 month old daughter was just diagnosed with bilateral Wilm's tumor on 10/15/04. I'm devastated! Could someone please send me a message with some inspiration? I cannot bear the thought of losing my little girl!
I'm sorry I don't know too much about Wilm's (I had RCC), but I do know that it is one of the more treatable forms of kidney cancer.
A good friend of mine was diagnosed with Wilm's at about 10 years old. The tumor had swallowed her entire kidney to become the size of a small basketball, and had spread to her lungs. They removed the diseased kidney and a piece of one of her lungs, and did chemo and radiation for a year after.
Last I saw her, she was doing fine years later.
Unlike RCC, Wilm's can be treated by many conventional anti-cancer procedures. I've heard of many other young children with the disease who have survived well. It won't be easy, I'm sure. But you have much to be hopeful for.
My heart and prayers go out to you and your family. One can only image what you are feeling. I don't know anything about wilms I wish I did. But there are a few message boards that you can check out bravekids.org , acor.org, health-nexus.com, cancerindex.org You might be able to find others out there that have gone through this experience etc. Hang in there!
Here's some real hope! I am a 47 year old female that had a wilm's tumor at age 2! I have run 2 marathons, competed in triathlons, am the captain of a 50 foot Schooner, am healthy and have lived a full and rewarding life. My heart goes out to you - my Mom and I use to discuss how hard my illness was for the family - especially my Mom! While I do have memories of the hospital - my strongest memory was worrying about my Mom - she seemed so sad. My operation was 45 years ago - they have come so far since then!! Stay strong for her! Keep the faith!