Oct 27, 2004 - 8:28 pm
Good Evening Everyone!!!!
Well, Things here aren't going any better!!! We have been trying to get into the experimental phase of drugs testing for treatments for Bob with no luck! First they say that he qualifies and then after going through all the paperwork and testing they come back and say sorry this isn't for you. Why do they do that. They said that the last 2 trials we tried that it was because of the meds he was on. Why don't they every read the files and on the other info that they are given. Whay do they put people through this. They get your hopes up and then they pull the rug out from under you.
We went to the Dr.'s today to find out what happened with this last trial and we found out again that he doesn't qualify. They said that there was another treatment we could try and that they would send it to his Dr. and Bob Dr. said that this was crazy. He told me to call the office down there when we got home which I did and when they said that someone would be there till 5:00pm and I called at 4:30pm and no one was there to answer the phone so I had to leave a voice message. This place came so highly recommended and so far I am not impressed at all. I am so angry with this whoe situation and it is all I can do to keep my temper in check after I listen to the Dr.'s tall me the same thing over and over again. His Dr. isn't giving up on him but Bob did tell him that he is now feeling like he is a dot on the wall that no one is paying any attention to. I kills me to hear him talk like that. I just want to choke the Dr.'s for making him feel this way. I know that I have to get passed this but I don't know how to right now. He is so angry and I can't blame him. I want to just shout but I don't wanthim to see me so worked up over this. Even though he knows that I am upset.
What doesn't help the situation is that I just found out yesterday that our company was sold and I don't know if our new owners will be keeping us on or will let all of us go. So know on top of everything else I am at risk of loosing my job. I haven't told Bob this yet as he doesn't need to hear this on top of everything else. I just want to run away and hide. I know that doesn't solve anything!!!! I am just tired of being pushed and pulled around by everyone except my wonderful husband Bob!!!!
I'm sorry for going on and probably no making any sence. I guess I am just having a back week!!
WE are in need of some good news even if it is just a little bite!!!! Just having the Dr. call me back would help!!
Thank You for listening!!! Please keep Bob is your prayers. He is in alot of pain right now and unable to get any sleep. He is having a rough go of it and he is still hoping to beat this!!!
Emily I got your paper work and am looking as we speak!!!
Thank You everyone for being there for us!!!!!
Bob and Sue