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Intro



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cncersurvivor

				          
            Posts: 1

          
          
            Joined: Dec 2003

          
        					
				
		
									

        			    December 6, 2003 - 1:57am			  			

			
			
Hi!


My name is Leslie, I am 20 years old and a seven year survivor of Hodgkin's Disease stage 4. Although I am cancer-free, I still have some lasting effects from chemo. 4 years ago I was diagnosed with tachycardiya in my heart. My doctors swear this is genetic, but I have read up on it and I think it's from adriamyacin. I ended up getting a pacemaker last year which is pain, but it's a small price to pay IMO.


Has anyone else had similar problems? I look forward to talking to you all soon!


Leslie


‹ Survivors conference Wanna chat? ›

						
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RhondaJustin

				      
	        Posts: 71

	      
	      
	        Joined: Jan 2004

	      
	    				
		
			
January 3, 2004 - 2:19am

			
Re: Intro
			
Bullshit.  If you had radiation anywhere near your chest, the odds of it being genetic are slim and none.  That's ridiculous!



			
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RhondaJustin

				      
	        Posts: 71

	      
	      
	        Joined: Jan 2004

	      
	    				
		
			
January 3, 2004 - 2:24am

			
Re: Intro
			
Hi, I tried to initiate some chat and everybody split.  My son has serious complications from irradiation.  I welcome any help or inquiries.



			
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lindazame

				      
	        Posts: 1

	      
	      
	        Joined: Jan 2002

	      
	    				
		
			
January 9, 2004 - 7:36pm

			
Re: Intro
			
Hi Leslie,


Did you have radiation to the chest or chest adrimycin? Both can cause lasting problems. You might want to get a copy of the book Childhood Cancer Survivors by Nancy Keene. Lots of pratical and helpful information there, including a listing of clinics that see long term survivors. Sometimes you need to see someone who has seen survivors in order to get the help you need.

If you would like to meet other survivors and some of the physicians who work with them you might want to join the long term survivors discussion list. You can find the list at www.acor.org click on mailing lists and then the LTS group. If that doesn't work you can write to me directly.

Linda Zame(zame@earthlink.net)

Healing thoughts,

Linda Zame



			
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