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Total Gastrectomy

njcahill
Posts: 3
Joined: Sep 2003

I was diagnosed with stomach cancer in February of 2001. I had my complete stomach removed March 14, 2001. A month later I recieved chemotherapy and radiation. I am doing well and would like to hear from anyone else who has had this experience.

jozef
Posts: 1
Joined: Sep 2003

Hello,friend of mine has stomach cancer.He had cemo and radiation.On Monday Sp.29/03 he was at the doctor and he has told him that he should have the operation, total stomach removal.Does he have other options or did you have other options. He would like to know since this is dificult operation or simply if there is other options.Do you know of other cases and how was the recovery.Me and my friend wish you all the best.
Thank you,Jozef

dayers's picture
dayers
Posts: 4
Joined: Aug 2003

Hi. I had a total gastrectomy and lower portion of esophagus removed June 2000. I never had the chemo or radiation because my weight was so low they wouldn't risk it. I weighed 84 pounds after surgery. It sure is hard to gain weight. Today I weigh about 110 pounds. It took me forever to get to this weight. How are you doing?

Laren
Posts: 2
Joined: Feb 2004

Am scheduled to have total gastrectomy 8 Mar 2004. What can I do to maintain my present weight & how have you gained weight after the operation? What does your diet consist of now? Thank you for sending reply to lrs4101@sisna.com

graybrd
Posts: 2
Joined: Mar 2004

Hope your surgery went well. I had my surgery on March 8, 2001. Also had chemo (nearly killed me) I'm doing much better now. Slow to gain weight. Be sure not to drink milk or eat any dairy products, also sugary products can cause the dumps. You will also need B12 shots I have to have one every three weeks because of feeling tired had no get up and go. Eat small meals several times a day and really chew your food. Becareful not to fill up on liquids because they take up space in the intestine. If you like milk I've found that rice milk doesn't upset the system and tastes good the brand I like is Dream Rice most grocery stores have some sort of rice milk and it's usually found in with the diet products. Don't rush things. If I can help please contact me graybrd at gfinkbeiner@kc.rr.com.

happy77
Posts: 9
Joined: Apr 2009

Hi, I was diagnosed with stomach cancer in march 2009. It seems like you are doing great. As time goes by after this surgery do you find you are living a normal life again? Like eating and feeling good. my surgery is not until June 8th 2009. I am having it done at the Mayo Clinic. The picture of you really shows what a strong and beautiful young lady you are.
Thanks for any advice you can give me!!!

survivor2009's picture
survivor2009
Posts: 8
Joined: Jul 2009

Hello, I hope your surgery went well in June.

I was diagnosed in August of 2008 with linitis plastica stomach cancer. I had surgery later that month. They removed my entire stomach, spleen and several lymph nodes. I had chemo and radiation that finished in April of 2009.

To assist in my weight gain, I have a tpn and take feeding nightly for 12 hours. I eat very often during the day in small amounts and chew my food very well. As time has went on my esophagus has shrunk somewhat from where they attached the small intestine to it. I will be having an EGD scope to dialate the esophagus in Sept 09.

I have a very positive story to tell as they were able to remove my cancer in one large mass and the chemo and radiation seems to have killed the rest. They are watching my liver closely as it has several lesions which are thought to be from all the over the counter med's I took for pain etc. BUT....my last Petscan showed I am in remission!

I still have the tpn but my weight is increasing slowly. Once I reach the goal my nutritionist wants they will back off the tpn and see if I can maintain.
The chemo caused permanent nerve daage in my feet which is trying to be controlled with pain med and seems to be starting to work.

All in all I am doing quite well. I am not able to return to work however the fact that I am alive and happy is all I need.

Through everything I maintained a VERY POSITIVE outlook. You must believe you will beat this. It is a matter of mind over body. You are going to struggle but please stay positive. If you need any support, do not hesitate to ask for it. People are truly amazing when something like this happens.

Good luck and God bless you....
Dana

JustinD
Posts: 2
Joined: Aug 2011

Hi Dana,
My name is Justin Davis and my mother recently had a total gastrectomy. I was hoping to hear from someone who also has had this operation. The reason I am writing to you is because my mother doesn't use the internet and she has been having a hard time keeping weight on and I am worried. She lives by herself and right after the operation she was on heavy medications and was in the hospital and a nursing home for close to 3 months. Currently she is living at home and able to survive day to day but the weight just keeps coming off. When talking with the hospital's nutritionist (where her surgery was done) it became apparent that she had not dealt with a total gastrectomy. My mother has only gone with what I have found on the internet or from trial and error as far as her diet goes. For a while after the surgery she was on the night feedings that you were taking and I'm wondering if she needs to go back on them to keep weight on. Do you have a set diet you stick to or any advice? Or do you know any nutritionist that have set diets that work for people who do not have a stomach? Any help you could provide would be of great help.

Thanks for your time,

Justin Davis
justindavis007@hotmail.com
510-301-9995

Jackie6
Posts: 4
Joined: Jun 2011

What a great news how are you doing now?

My younger sister has the same cancer and they are going for cure. She has now 3 cycles of chemo, then surgery and 3 cycles of chemo again.

I was looking for someone who had experience with chemo and radiotion because I want to know about this treatment. I hope you can tell me something about this.

Best wishes and love
Jacqueline

soulwing
Posts: 3
Joined: Jan 2012

hi jacqueline, my mother will going through the same process. she's likely older than your sister so wondering how your sister is holding up. my mother is scheduled to have her whole stomach removed in early february followed by three cycles of chemo. wondering how chemo after surgery went for your sister and what things she's already experienced during and post surgery that you think would be useful. good luck to your sister and thanx.

MrBBarc's picture
MrBBarc
Posts: 3
Joined: Dec 2010

Hi All,

Im 34y/o and had a total gastrectomy in Feb 2010 + 6 months chemo due to HDGC (Hereditary Diffuse Gastric Cancer).

I am now a "survivor", and doing really well, with a weight gain of 10kg since June 2010. I can eat basically everything, and with portion sizes exceeding many "normal" people. I also drink with meals, and suffer seldom from dumping syndrome.

I have decided to try to find the longest surviving total gastrectomy patient, and to network generally with anyone who would like a chat! Knowledge is power, and I feel i have a moral responsibility to help anyone out there.

Take care, warm regards, Kia kaha (stay strong!)
Brett

dustmagnet7
Posts: 27
Joined: Oct 2010

Always good to hear from a fellow "survivor". I also went through a total gastrecomy (lost a good pile of intestines and omentum as well) and 21 weeks of rough chemo, but am now cancer free. I'm 36 and I keep hearing from more and more people our age being diagnosed with stomach & gastric cancers. Hope to hear more from you. Best wishes.

Martin Moodie
Posts: 1
Joined: Apr 2011

Kia Kaha Brett

I am a 55 year old (Kiwi living in London) who had a total gastrectomy in October 2010.

I had 9 weeks chemo before and after (the second particularly rough).

I have been hospitalized twice since, both times with small bowel blockages due to adhesions (scar tissue) but got the 'all clear' at my first six-monthly scan. Great news.

The eating regime is getting easier. I have found that chewing (to absolute pulp) is the key, even more so than portion size. It stands to reason when you think about it, mush or liquid is going to be a lot easier on your newly configured internal plumbing as it learns to operate without a stomach.

Certain fruits (kiwi or pear skinned and cut up fine) seem to be great. So is fish.

I have been told to avoid high fibre food - can cause small bowel blockages. Any theories on that?

Exercise seems to help as well.

Overall conclusion - it DOES get easier. Hang in there everyone.

Kia kaha

Martin

tammycohen
Posts: 1
Joined: Aug 2011

Congrats to you and hoping you have a wonderful blessed life ahead of you!
I was wondering if you could help answer a couple of questions?? How did you find a physician?? where do you start looking?? how do you start looking?? My husband was told last week that he has to have his stomach removed as soon as possible. yet we have to wait to get into see the dr for final results in two weeks. how mean is that to do to a person??
we are from cetral ill, been trying to look for some one that does these typs of surgeries in the chic area or the st loius area.
ANY THING you can tell us would be helpful.
thanks
tammy
grannygrumpx2@yahoo.com

Lisa Keegan
Posts: 1
Joined: Aug 2011

Hi Brett,

My names Lisa and it was really good to read your post, how are you doing well I hope?
My husband had a total gastrectomy in April, just finished his 6th round of EOX chemo, they will do a PET scan in 2 weeks, depending on that they will start radiation, then they will put him on a year low dose of maintenance chemo.

He is also pretty good with food, we haven't tried the drinking with food yet, but he did try a guiness the other day which went down well :) Do you eat salads cause thats the one thing he really misses and they say no too?

Anyhow I hope you are doing well.

Bye for now

Lisa

cervantesjaime2...
Posts: 1
Joined: Oct 2011

Hello,MrBBarc,Thanks to our Savior Jesus Christ you are ok.I find myself looking for total gastrectomy on Oct.27.Already had 9 weeks of chemo,now surgery in near future.Ive been cool,until my last meeting with my doctor,friday.Honestly,I almost decided not to go thru with it,until I got on this site and read yours and other postings.Thank you so very much!!!Now I am ready and looking forward to this procedure as I was from the start.God bless you and everybody in a difficult time they might be in.With God all things are possible,stay up.

soulwing
Posts: 3
Joined: Jan 2012

what a wonderful story. the very best of luck to you. i'm wishing for the same result for my mother. glad you're able to eat how you were able to eat b/f cancer, etc.

i did it
Posts: 2
Joined: Apr 2012

Hi there, my name is Nelson
Im survivor of stomach cancer. I had a total removal of my stomach in feb of 2008. I still have problems eating and controling my medication. Do you find yourself having trouble with food?

Hopcock
Posts: 2
Joined: Oct 2013

Hi i have recently had my stomach removed and am now going through treatment. I weigh just under 50kg and suffer from bad dry reaching. I dont eat a lot and dont want to eat.. do you have any advice for me?  I really want to put on weight, gain energy (to spend with my young family) and eventually return to work. I cant see that anytime soon though. I lack in energy and continue to lose weight... please help me if you can.

GaryOlson
Posts: 18
Joined: Jun 2012

I completed treatment for stomach cancer that included a total gastrectomy.  My wife and I have put together a web site of information based on what worked for me. 

The web site is called The Stomach Cancer Survivor's guide.  (stomachcancersurvivorsguide.org)

There are two pages you might find particularly helpful.

The page on maintaining weight can be found at - http://www.stomachcancersurvivorsguide.org/getting-through-treatment-3/maintaining-weight/

And the page on retching and poor appetite can be found at - http://www.stomachcancersurvivorsguide.org/after-treatment/nausea-retching-and-poor-appetite/

We hope you find this helpful.

Gary

Mbneale
Posts: 1
Joined: Aug 2012

Hi
Just had 4months of solid chemo for stomach cancer ,initially I was told it was in the gullet (cannot spell oesophagus ha ), lymph nodes and outside the stomach ,yesterday went to see the doc he said its shrunk all back into the stomach cannot find it anywhere else ? They are pushing me towards full stomach removal which maybe the way to go ? Said will get back to him in a couple of months going on hols first any one been in that situation .

swylie
Posts: 3
Joined: Aug 2003

There is a really great stomach cancer website at http://www.tigerminx.com/scare/bev_journey.html. The message board in particular is a great place where people share info on what worked for them post-gastrectomy.

scparra38
Posts: 14
Joined: Jan 2004

Hello Njcahill,
I am very interested in knowing more about the TPN Supplement. I'm not sure this is a good idea. but, i'm just trying to help my husband and keep him alive. I had asked the Drs. about this treatment. The drs. weren't really going for the tpn suppl. I had to push it. I'm kind of scared cause i really don't know anything about this treatment. I had read your story and was amazed and am just really going by your story and how it saved your life. I hadn't heard of anyone else using it. My husband has lost over a 100 pnds. is weight is at 115. as of last thurday. My husband is 39 yrs old,and is not gaining any weight. Everything that he trys to eat gets him sick. right now we are trying to get him to eat 6ozs of portions at 3x a day. I'm trying really hard to get him to eat. We are really scared and trying to keep him alive.
I just wanted to Thank you for your story it really helps to know that we are not by ourselves....

I can be reached at Chrsmtya@aol.com or ChristineXMontoya@kp.org

Thank you I will be waiting for you response....

karen174
Posts: 6
Joined: Mar 2004

Thank God for you. My husband had the same surgery in Jan of this year. He is having a really rough time coping with the chemo/radiation combined treatments right now. He is on his last three this week. Are you still doing okay? I want to ask a question. He has this one problem that no one seems to be able to help with. He has this overabundance of saliva secretions that gag him. It is like he has to vomit this out about 5 times a day. Food never comes out..just this clear thick salvis. If you had this side effect what did they do for it? I am only looking for a possible solution for him. thanks

joolsiboy
Posts: 1
Joined: Jun 2004

Hello. I'm 31 and had/have stage 4 stomach cancer. I had total gastrectomy in Feb this year. Currently I'm on chemo cycle 3, its going OK. I'm eating some solid foods, mostly soft; I'm back on milk, no problems (the micro-flora in your gut can be replaced by eating yoghurt)
I just spit my thick drooly saliva out. Don't swallow it, because it WILL make you throw up. TPN is GREAT! Especially when you're all nausous (sp?). Its so much more palatable than that osmolite stuff. You don't even have to DIGEST, it just goes straight in to the veins. I pump Nutren, made by Nestle into my j-tube.

Jools

suey
Posts: 10
Joined: Aug 2004

My father had his whole stomach and part of his colon out in March '04. He then started chemo and radiation. The radiation is over (5 weeks ago) and his chemo which he last had 5 weeks ago was supposed to resume 2 weeks ago but he is SOO sick they have postponed it. He has been on the TPN for some time now. Cannot eat or drink ANYTHING and is wondering if this is normal when he's had no treatment in almost 5 weeks? We are all suffering and I know he's wondering if he'll ever get better. Would love to hear any stories of similar experiences!!! Thanks

mullygator
Posts: 7
Joined: Apr 2006

My mother underwent a gastrectomy in March of '06 and is having some complications with eating. We know that the diet is key in helping her recover, but the trial and error of it is daunting.
Any advice???

Many thanks!!!
-Mullygator

mymomjoyce
Posts: 1
Joined: Feb 2007

Mullygator,
I'm reading old messages about stomach cancer just desperate to find someone who's been there. My mother too had a complete gastrectomy in October '06. How is your mom doing? what advice can you give to me? I'll take anything!

majette2
Posts: 2
Joined: Apr 2009

i hope your mother is doing find. i would like to read some new messages of someone with stomach cancer and there recovery from surgery or have anyone had a feeding tube after surgery?

happy77
Posts: 9
Joined: Apr 2009

Hi, My name is Sophia and I was diagnosed with stomach CA in March 2009. I have one more chemo cycle and off to Mayo Clinic I go for my Gastrectomy. I am also a non-hogkins lymphoma survivor which I was diagnosed back in 2001. Anyway, I was wondering if you can still taste your food after this surgery and what kind of diet you were put on in the Hospital? I've heard some people do just great after a few months and some not so good. Are you eating any foods you want yet? My Father was diagnosed back in the 80's with stomach cancer. They took 3/4's of his stomach out and gave him 6 months to live. He passed away 17 years later of a heart condition. They did not even know anything about this cancer like they do today. He had to start off eating a bunch of little meals and eventually ate everything under the sun. I think we have to keep good attitudes like you seem to have.

Lilllly
Posts: 16
Joined: May 2009

Hi Sophia, it sounds like you are a strong woman already and your story about your father is very inspiring.

My dad was diagnosed with stomach cancer last April (a little over a year ago). Initially they believed it was stage I...however, found a speck in a lymph node and declared it stage IV. Generally they don't operate with stage IV, as it puts a lot of stress on quality of life in prognosis. He fought VERY hard for the surgery. He had some of the best doctors in the country (Canada) working on him as a team, and his plan was 3 cycles of chemo via port (3 weeks per cycle = 9 weeks in total) followed by a month recovery, then a total gastrectomy ("new" stomach made from intestine as a small teacup sized pouch), followed by about a month of radiation, followed by another 3 cycles of chemo via port. He lost 70 pounds (was a larger man to begin with though, also a smoker of 30 years...not anymore though). The surgery was very tough, mostly due to smoking-related complications (pneumonia, collapsed lung). Also, they found the tumor to be further over than originally believed and had to remove his gall bladder, spleen, as well as the tail of his pancreas and 74 lymph nodes. He was also diagnosed to be diabetic and told that he would be on insulin shots for the rest of his life post-surgery. Post-surgery he was on a feeding tube for about a week. Eating was a slow process. As I understood, he was to eat foods at room temperature, and separate solids and liquids (eat first, lie down horizontally, wait 30 mins, then drink any liquid). He was educated on dumping syndrome and does mostly well as far as eating goes.

I want to let you know that as of two weeks ago though, he was told he is cancer free. He goes back in for his follow up in July. I was very nervous about hearing how much was removed from him, but his diabetes is diet controlled and he needs NO assistance of insulin, also, he is able to eat whatever he wants (his biggest problem is over-eating which is painful...but he still loves his food, thats my dad! lol). He eats heathier now though, gets his exercise. His incision became infected a few times which is pretty normal and was a mild annoyance in comparison to the rest. I'm so proud of him, he started back to work this week as well (half days) and is doing great. The radiation was pretty hard on him, definitely harder than the chemo, but everyone's treatment plan is a little different. When it was difficult for him to eat (no appetite due to the chemo) we bought Boost for him (supplement shakes) and made him smoothies with protein and fruits. The supplement shakes helped him a lot when the treatment was affecting his appetite. He made his body get used to his new parts though, and he is practically back to normal (minus the 70 pounds). Good attitudes help a lot, as does a strong support system. :)

happy77
Posts: 9
Joined: Apr 2009

Hi,
I am so happy for your Father. He sounds like such a strong man, just how Fathers are looked at from the little eyes of their Daughters that love them so much. You have giving me
such an uplift. I can't believe your Dad went back to work already after all he has been through. But, the way it sounds having a wonderful daughter like you with such a great attitude that can really give you the will to push and go on. Honey, your a sweetheart.

Lilllly
Posts: 16
Joined: May 2009

Thank you for your kind words :). I haven't experienced this disease but staring at it in the eyes of a loved one really helped me understand a lot of things I was ignorant about before. Doctors do amazing things. Don't worry, stomach removal sounds serious, and it is considered a major operation (so feel like you deserve your rest and relaxation afterward!! and take it because you've earned it!!), but the human body is AMAZING and medicine has transitioned into living without a stomach and a "normal life" to work together somehow eventually. It does take time, but know that with every ounce of treatment and chemo you are that much closer to getting rid of it!

Feel free to message me I'd love to keep in touch :) :) It sounds like you have a good treatment plan, and are a strong person to boot. Very very effective!

lizy74
Posts: 2
Joined: Aug 2009

Hi Lilly,

I am not even sure how I ended up reading and writing here.

I was reading your posting and I saw my father's case in your father's. We found out two months ago that my father has gastric cancer. In the beginning we thought to be stage 2, and we wanted to take action as soon as possible. We haven't done to many tests as we do not believe in our doctors( Romania) and we took him to a Hospital in Germany (Homburg).Here, they have done only some blood tests and the results came so bad and confirmed cancer 100%. Within a week he already had the fist surgery, removing the stomach, gallblader and 74 lymph nodes. For this clinic this was the biggest surgery (the biggest before was removing 38 lymph nodes).

Unfortunately, he is still in the hospital in Germany after 6 weeks and 5 surgeries. After the first one he was fine, recovering very well. But as you father mine is diabetic, smoker for 16 years and the worst he has Hepatitis C. After the first surgery like every 4 days he was reopen for 3 times...the anastomoza was fine but every time he had like a small hole, leakage from the intestine, duodenum...After so many surgeries and anesthesia his kidneys failed and he needed dialysis, then his lungs failed, he needed blood transfusions, he was intunbated... After 5 weeks in the hospital at the intevise therapy and 4 surgeries he was finally recovering until yesterday. He had water on the lungs, one was completely removing during the last 3 weeks, but yesterday they made a puncture for the other lung where there was not too much water.

As I said until yesterday he was recovering very slowly but going in the good direction. He was eating, his fever was gone and Dr. estimated to send him home next weekend. Yesterday we think they made a mistake and this costs us a lot. Dr. said to remove 500ml water from his lung but they removed 2l. He started to have pain all of a sudden, the kidneys failed and all the water was going out through his skin...after hours of pain he had a hemorrhage in the lungs in about 7 hours, doctors decided to do a surgery to see what's going on with the lung. This was his 5th surgery with general anesthesia in 6 weeks. He is again at the intensive therapy in a very bad condition and dr. admitted first they should have started with the first surgery and second they don’t know what to do from here. They said this case is too difficult for them.

I cannot believe it! We went to Germany as they are known to be good, they encourage us with having a good surgery, of continuing with an easy chemotherapy and in the end they said there is no point of chemo as this is the last stage and now they say they shouldn't have done the surgery at all.

Would it be possible for you to give me names of the Clinic and doctors in Canada who made the surgery for your dad? They were telling us that here in US, Canada, UK nobody would have done such a big surgery.

We lost all our hopes and we are wondering if we can take him alive back home to Romania. Now reading your message I have more faith and I hope he would be at least able to go home...

Would you please send me the name of the hospital in Canada? And also if you have any dr. names?

Best regards and I look forward to receiving your answer.

Eliza

survivor2009's picture
survivor2009
Posts: 8
Joined: Jul 2009

Hi, my name is Dana. I was diagnosed with stomach cancer in august of 2008 and had surgery that same month. They removed my entire stomach, spleen and several lymph nodes in one large mass. The fact that it was one large mass was my biggest benefit. That way any pieces that may fall on to other areas was limited.
I went through chemo and radiation through April 2009. In July 2009 I was diagnosed as being in remission. I have a tpn (feeding tube directly in to intestine) to help me work on my weight. I have made it up to 128 lbs which is awesome. Once I reach my goal for my height I will be able to try to maintain it without taking in food at night. Once I can maintain it then I will have the tpn removed.

I wanted to tell you this because my surgical doctor is extremely good at what he does.
I don't know if you would be willing or even could but I want to pass along his information.

Allegheny General Hospital
Pittsburgh, PA (USA)

Dr Donald Atkinson

Office Locations:
Allegheny General Hospital
420 East North Avenue
Suite 304
Pittsburgh, PA 15212
Phone: (412) 359-4068
Fax: (412) 359-6732

Good Luck and God Bless!
Dana

gingercat33
Posts: 10
Joined: Aug 2010

My mother has the same cancer that you had, and has undergone what sounds like the same treatment as you. Her surgery was about 7 weeks ago, though we had lots of complications and have only been eating food for 10 days now. She is very discouraged. What she finds the most disappointing is how food doesn't taste right and even the texture of food is off. Is this something that you experienced? How long did it last? I've told her about the things I've read and that this just a phase that will pass, and she asks to hear it over and over, so I guess its helping. I hope to hear you are doing well and was encouraged to hear that you have gained weight, my mom is down to 99lbs at 5'8". We were told she wouldn't gain weight after the surgery. Also, did you get a lot of gas while using the feeding tube? We're struggling with that, and you can hear the gas in there just bubbling away. Any advice is appreciated, thank you!
Paige

kmagallanez
Posts: 5
Joined: Sep 2009

hi lizy 74 my name is kathy my father is 77 and is diagnosed with stage 1 stomach cancer he scheduled 4 a total gastrectomy on sept 16th i seen your post about your father and wanted to know how old your father is im sorry that your dad has had a very hard time with this cancer but keep the faith that he s gonna come out of this im very scared about this whole thing but the doctors say he can with stand the surgery but its the after math that im very worried about hes never smoked he used to drink alot before but quit in 2005 due to him haveing a quaddrouple bypass which he recoved great from and he was 73 at the time thank god but this cancer scares me i just dont want them to open him up and find thats its in a more advanced stage than 1 just keep the faith about bringing your dad home alive look forward to hearing from u god bless kathy

lizy74
Posts: 2
Joined: Aug 2009

Hello Kmagallanez,

After 3 month since I have written on this forum I decided to enter back and see how are you all doing.

I hope your father's surgery went well and he is recovering fast.

The second day I wrote on this forum, I was called to go immediately to Romania if I want to see my father for the last time alive.

He past away 6 weeks after the surgery and we can consider he died in the hospital. He was only 52 years old, going to Homburg,Germany with all his faith in the most famous doctor, Prof. Dr. Martin Schilling.

Going to Germany was the biggest mistake ever. He stayed in the hospital 6 weeks, having 5 surgeries...After one month when my father was recovering and the dr. told me he would be fine, I came back to US...After two weeks his situation became really bad and we had to transport him immediatly to Romania so he could die in our country. We managed to find right away a medical plane to take him back home...The flight and the entire transfer from Homburg, Gemrnay to a hospital in Romania was a nightmare. He couldn't breath at all and dr. decided to intubate him...Since this moment he was never conscious.

After they opened him and removed his stomach, gall and 74 lymph nodes...the cancer spread everywhere...When they opened him they said all the organs were ok, without methastasis...Of course, when you remove 74 lymph nodes this is definately stage 4. Within 6 weeks the lymph with cancer cells spread out everywhere but the lungs were the most affected.

In Germany the doctors never told us what was hapenning and made us stay over there until the end...First day when we arrived in Romania dr. took a tomography and told us he had only 1,2 days to live as the lymph flooded his lungs and that's way he was not able to breathe anymore. They were right! After two days kept alive artificially he died.

Doctors cannot do miracles! They can try to help and that's all they can do. We don't blame the german Dr. for what happened but I would never recommend anybody to go to this clinic.

They made only a blood test to confirm the tumor markers and that was all; no further investigation. 2 days after he had the surgery...which we think it was an experiment. Everything went completely wrong from the beginning and every 3 days they had to reopen him..and after the 4th surgery the cut wouldn't close anymore.

I saw my dad before surgery perfectly "fine", you couldn't say he was a sick person...and after 6 weeks he was dead... The best dicision at that time for dr. would have been to close him as he was...and he would have probably lived for 3-6 more months...

We can run to the best doctors, spend all our money, do everything...Is somebody UP there needs us...we can't do anything...

I am 27 years old and another dr. from that clinic who took care of my dad advised me to check myself every year after I turn 30. Since everybody in my family died of cancer he advised me to be very careful and to check myself...

I hope dr. and scientists will discover the cure for this lousy illness soon so many lives can be saved.

I wish you all faith, courage and strenght to fight with this illness or to support your families and friends. No matter how hard is to live with this or watch people sick we all need to fight. There are survivors so never lose your faith!

All the best,

Eliza

kmagallanez
Posts: 5
Joined: Sep 2009

hello sophia my name is kathy and hope u r doing well my father is 77yrs old and was diagnosed with stage 1 stomach cancer hes going 4 a total gatrectomy on sept 16 im very scared for him the doctors say he can with stand the surgery and r doing a laparoscopic surgery where the make the little band aid insisions instead of the 6 in cut they usually do, due to his cancer being a stage 1 u say your father had it how old was he and what stage was it in when they diagnosed him also how r u doing with your recovery im trying to keep a positive attitude he will be comeing home with a feeding tube for awhile but thats ok please respond back thank you

Jaz7758
Posts: 1
Joined: Oct 2010

How is your father doing now and what kind of treaments did he end up taking? My granddad is 78 yrs old and diagnosed with stomach cancer also.  More tests are being done now, and the right treament is not decided yet. Doc said surgery is an option.  I am getting really scared about this stomach removal.

fconnaly
Posts: 1
Joined: Aug 2009

I`m having the same surgery in 2 weeks and would like to know more about it were you able to go back to work or did you go on disability? I heard both sides from friends saying the guys they know were unable to return to regular duty at work anything you can can give me about what to expect would be appreciated

j3sr
Posts: 1
Joined: Jul 2010

Hi,
Even I had total gastrectomy for stomach cancer.Now by God's grace doing well and able to take almost all kind of food items in average amounts.I am 25 years old from India and now searching a job.Its been more than 1.5 year after my surgery.Had 3 chemothrappy before and after surgery.So totally 6 chemothrappy.I had a job before my treatment started and had to leave and resigned.Now really longing for a job.My parents are not willing to send me for a job, but I am confident mentally and physically.Just thing like a normal human being.Try to eat food which you like and feel like eating at that moment.Do not ever think you have a disability.Our mental decision gives strong support to our life.So do not think about our body.Mind is important.Everything is possible for God.Will surely remember you all in my prayers.Pray for me too.Thanks.

DJB
Posts: 7
Joined: Jul 2010

My Friend -

First - I wil pray for you - and you will get that job and do well - go for it ! But please - this is a life lesson for me - and perhaps you can learn from it - PLEASE find a job that you absolutely love very much - life it too short for anything else -

Can you help me --

This is new - was at the surgeon today -- I was knocked down a bit today - he said "if it has not spread (they have to confirm that a spot on my liver is not a problem)--if it has not spread -- he said he will have to remove the entire stomach -

I have a job --(I am 60) but lots of people depend on me -- how long should I plan on being out of the game? -- assuming the surgery - and recovery - where will this take me and how long -- you have been through it --

Thanks for the help

DJB

liveinhope
Posts: 83
Joined: Mar 2010

HulloDJB,How are you doing?I suppose you would be in the midst of therapy.My good wishes for a quick recovery.

Terri Lou
Posts: 4
Joined: Aug 2010

DJB
The surgery itself will put you in the hospital for about a week or two (7-12 days) provided there are no other complications. As far as getting back to work, this depends on many things, one of the most important being the nature of your job. Prior to my surgery in mid July, I worked as a bartender. I don't think I'll ever be able to do that type of work again, and if I can, it'll take almost a year. However, at this point (7 weeks post surgery) I would be ready to go back to work now if I had a standard office job.
Hope this helps!

liveinhope
Posts: 83
Joined: Mar 2010

Hello,I was so happy to read your mail.My 30 year old son had the same surgery at Tata Hosp last year.His office gave him 51/2months of leave and he is back for the past 6months as strong and positive as you are.Of course we are not so keen he takes up a job in any other city just yet.We live in Pune.My blessings and love

chemosmoker's picture
chemosmoker
Posts: 525
Joined: Aug 2011

What stage were you? More info please!!

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