Apr 27, 2003 - 8:30 pm
Although my cancer was not specifically prostate, I'm told by docs that the radiation and chemo I received was same as for prostate cancer. I now live with the side effects which can sometimes be debilitating: 1) Wear partial guard pad in case of fecal accidents 2)off and on sexual performance 3) no more pubic hair, no more sperm 4)testosterone no longer produced by body/require shots 5) neuropathy in feet 6) also living with HIV for last 10 yrs. There seem to be NO support groups I fit into in Boston. I've asked at the MGH Cancer Resource Center with no luck and at the AIDS Action with no luck. What to do? I would just like to be able the chat sometimes with men going thru similar but I don't fit in with HIVers anymore or just prostate cancer survivors. Am I alone?