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Ovarian Cancer Stage 4 survivors
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Oct 22, 2002 - 3:19 pm
I would like to hear from anyone who has survived stage 4 for relatively long period withoutexperiencing recurrent attack |
Joined: Nov 2012
I don't know if i'm considered a survivor just yet, I was diagnosed on February 29th 2012. The cancer was found in a lymph node in my underarm, and peppered ( what my onc called it) in my diaghram. I'm currently in a clinical trial that included a lower dose of taxol once a month for a year. I think i'm already having a re-ocurrance though. Only had 4 treatments from the trial and my ca125 is up to 44 and I have been having some discomfort in my diaphram. Cat scan showed thickening in that area and now I am scheduled for a biopsy next week. If its possitive I will be off the trial. My dr said I have alot of options though so that's reassuring, I guess. I'm scared it will move into my lungs. I read about the bucket list post, and I honestly don't have things I want to do. I just want to be here long enough for my boys to grow up. They are only 9 and 5, and it kills me to have to imagine dying and how they are gonna feel and how they will have to live without me. I just wish to at least be here until they are men and I know they can take care of themselves. CANCER SUCKS.
Joined: Nov 2012
I don't know if i'm considered a survivor just yet, I was diagnosed on February 29th 2012. The cancer was found in a lymph node in my underarm, and peppered ( what my onc called it) in my diaghram. I'm currently in a clinical trial that included a lower dose of taxol once a month for a year. I think i'm already having a re-ocurrance though. Only had 4 treatments from the trial and my ca125 is up to 44 and I have been having some discomfort in my diaphram. Cat scan showed thickening in that area and now I am scheduled for a biopsy next week. If its possitive I will be off the trial. My dr said I have alot of options though so that's reassuring, I guess. I'm scared it will move into my lungs. I read about the bucket list post, and I honestly don't have things I want to do. I just want to be here long enough for my boys to grow up. They are only 9 and 5, and it kills me to have to imagine dying and how they are gonna feel and how they will have to live without me. I just wish to at least be here until they are men and I know they can take care of themselves. CANCER SUCKS.
Joined: Nov 2012
I don't know if i'm considered a survivor just yet, I was diagnosed on February 29th 2012. The cancer was found in a lymph node in my underarm, and peppered ( what my onc called it) in my diaghram. I'm currently in a clinical trial that included a lower dose of taxol once a month for a year. I think i'm already having a re-ocurrance though. Only had 4 treatments from the trial and my ca125 is up to 44 and I have been having some discomfort in my diaphram. Cat scan showed thickening in that area and now I am scheduled for a biopsy next week. If its possitive I will be off the trial. My dr said I have alot of options though so that's reassuring, I guess. I'm scared it will move into my lungs. I read about the bucket list post, and I honestly don't have things I want to do. I just want to be here long enough for my boys to grow up. They are only 9 and 5, and it kills me to have to imagine dying and how they are gonna feel and how they will have to live without me. I just wish to at least be here until they are men and I know they can take care of themselves. CANCER SUCKS.
Joined: Nov 2012
I don't know if i'm considered a survivor just yet, I was diagnosed on February 29th 2012. The cancer was found in a lymph node in my underarm, and peppered ( what my onc called it) in my diaghram. I'm currently in a clinical trial that included a lower dose of taxol once a month for a year. I think i'm already having a re-ocurrance though. Only had 4 treatments from the trial and my ca125 is up to 44 and I have been having some discomfort in my diaphram. Cat scan showed thickening in that area and now I am scheduled for a biopsy next week. If its possitive I will be off the trial. My dr said I have alot of options though so that's reassuring, I guess. I'm scared it will move into my lungs. I read about the bucket list post, and I honestly don't have things I want to do. I just want to be here long enough for my boys to grow up. They are only 9 and 5, and it kills me to have to imagine dying and how they are gonna feel and how they will have to live without me. I just wish to at least be here until they are men and I know they can take care of themselves. CANCER SUCKS.
Joined: Jun 2012
KATY,
I really appreciate your positive attitude. In September of 2011 I started having discomfort in my stomach. I felt bloated and felt like I had to have a bowel movememt. I visited my doctor several times and was treated for IBS. On January 2012 I felt like I wanted to have a bowel movement but when I tried I realized I was bleeding profusely through the rectum. I went to the hospital, a colonoscopy was done the following day and a few days later I found out I had ovarian cancer that metastasies to the rectum. My tumor was 8 cm. (Dr. said the size of a baby's head) I did 3 chemos and tumor shrunk drastically. I had surgery in June. I got total debulking and also part of the rectum was taken. I had an illeostomy for 2 mths. Unfortunately, I was in and out of the hospital for various infections so my 2nd round of chemo didn't start until November. Well, after my 6th rounds of chemo a CAT Scan was taken just for me to find out I have a reoccurence. I was supposed to start my New round of chemo last Friday but couldn't because my platelets count was low. My illeostomy was reversed on June 22. I am still having accidents with bowel and bladder. Have to wear depends. But believe me, I am happy to be alive.
When I received my diagnosis both times. I NEVER thought about dying I just knew I had to do everything (nutrition, prayers, support) in my power to beat this cancer. I have maintained this positive attitude. My friends, family and even Doctors are amazed at how well I have done. They always tell me that I am inspiration to them and how wonderful I looked. Thankfully, I have overwhelming support from family and friends. Each day that I am alive is triple blessings. I look forward to many more wonderful years! WE CAN DO THIS TOGETHER! MAINTAINING A POSITIVE ATTITUDE IS 90% OF THE FIGHT. WE ARE WINNERS!
Joined: Feb 2013
I was diagnosed with cancer in April 2011. At first they thought it was Leismyoscarcoma (uterine cancer), but after a total hysterectomy (my uterus being normal), they changed my diagnosis to Ovarian Cancer, stage 3 because it had spread outside my ovaries into my abdomen.
My doctors did everything they could think of to try and get me to do chemo. My surgery was scheduled for July and they wanted 12 weeks done before surgery. They did everything but tell me I would die if I didn't do the chemo. I had no health insurance and did not qualify for state help (too much income). My husband was totally against the chemo - why put more poison in your body. He said he wasn't going to watch me die.
I have an aunt who had just died of sickle cell cancer. My mom had been trying to help her and found a website worldwithoutcancer.org.uk that talks about Laetrile, or Vitamin B17. There is a 42 page explanation of how this works and how it is basically banned in the US because pharmaceutical companies cannot reproduce a vitamin and make money from it. It gives a regimen of vitamins to take while fighting cancer and also a maintenance plan for after the cancer is gone.
I decided on this course of treatment instead of the chemo. My doctors were not happy with me at all. One doctor even dropped me as a patient. Anyway, after 3 weeks on the vitamins, and a week before surgery, my doctors ordered another CT Scan. They said they wanted to know what they would be dealing with before the surgery since I refused chemo. They expected my cancer to be spread throughout my body, in at least 4 more places. Well, I surprised them all. Instead of the cancer spreading, my original tumor shrank by 10%!!
There were 5 doctors/surgeons in the operating room and after my surgery, one of them came to me, almost in a whisper and told me they found DEAD cancer cells!! She was very excited about this so I gave her the information about the website, B17, etc.
I still go back every 3 months for pap smear and inhibin B tests to see if the cancer has returned. It's been almost 2 years and so far so good. No indication at all that the cancer has come back. And this is totally without chemo or radiation of any kind - vitamins only. I still take 1000 mg of B17 everyday just to keep the cancer away.
If this helps anyone, I would love to hear from you. It changed my life.
Be strong, there is hope.
Shelly
mn_catlover@msn.com (my email address)
Joined: Feb 2013
I was diagnosed with cancer in April 2011. At first they thought it was Leismyoscarcoma (uterine cancer), but after a total hysterectomy (my uterus being normal), they changed my diagnosis to Ovarian Cancer, stage 3 because it had spread outside my ovaries into my abdomen.
My doctors did everything they could think of to try and get me to do chemo. My surgery was scheduled for July and they wanted 12 weeks done before surgery. They did everything but tell me I would die if I didn't do the chemo. I had no health insurance and did not qualify for state help (too much income). My husband was totally against the chemo - why put more poison in your body. He said he wasn't going to watch me die.
I have an aunt who had just died of sickle cell cancer. My mom had been trying to help her and found a website worldwithoutcancer.org.uk that talks about Laetrile, or Vitamin B17. There is a 42 page explanation of how this works and how it is basically banned in the US because pharmaceutical companies cannot reproduce a vitamin and make money from it. It gives a regimen of vitamins to take while fighting cancer and also a maintenance plan for after the cancer is gone.
I decided on this course of treatment instead of the chemo. My doctors were not happy with me at all. One doctor even dropped me as a patient. Anyway, after 3 weeks on the vitamins, and a week before surgery, my doctors ordered another CT Scan. They said they wanted to know what they would be dealing with before the surgery since I refused chemo. They expected my cancer to be spread throughout my body, in at least 4 more places. Well, I surprised them all. Instead of the cancer spreading, my original tumor shrank by 10%!!
There were 5 doctors/surgeons in the operating room and after my surgery, one of them came to me, almost in a whisper and told me they found DEAD cancer cells!! She was very excited about this so I gave her the information about the website, B17, etc.
I still go back every 3 months for pap smear and inhibin B tests to see if the cancer has returned. It's been almost 2 years and so far so good. No indication at all that the cancer has come back. And this is totally without chemo or radiation of any kind - vitamins only. I still take 1000 mg of B17 everyday just to keep the cancer away.
If this helps anyone, I would love to hear from you. It changed my life.
Be strong, there is hope.
Shelly
mn_catlover@msn.com (my email address)
Joined: Feb 2013
Dear All,
My mother was diagnosed with ovary cancer in 2007 , she had a surgery and chemotheraphy of 6 cycles . And it reoccured again in 2011 , she took 6 cycle of chemo after that. But then just in 3 months the cyst reoccured in the pelvis , she then took 6 more cycle of chemo and now just after one month the CA125 count came to 251. The latest CT scan report says 1.SIGNIFICANT ASCITES 2.CYST IN THE LEFT PELVIS... ORIGIN COULD NOT BE CLEARLY MADE OUT 3.METASTASES AT THE SURFACE OF THE LIVER/ RIGHT DOME OF DIAPHRAGM, 4.OMENTAL AND PERITONEAL METASTASES
She is suffering severe pain in the abdomin , back and the chest, the right shoulder. There is accumalation of water in the abdomin. Please tell me how can my mother get out of this. The doctors here say this is in the last stage and nothing much can be done. Please help,..
Regards.
Joined: Feb 2013
Hi Shelly,
I was diagnosed with Ovarian Cancer Stage IV mid Jan. 2013. I am a young, just turned 50, healthy woman with no family history of cancer. So this came as a shock to me. I am now accepting and coming to turns with it. I already had Laparscopy surgery and 2 cylces of chemo and believe I will be having one more before I go into surgery. Apparently, I am taking it well and I thank God for that.
From everything I have read, there is no long term cure, just prolong the quality of life. It always returns at one point or another. I know there are many miracle cures out there but yours caught my attention. I did go into the UK website which is very informative. I am interested in purchasing the B17. I live in NY and I read they may not ship to US. If you don't mind, where do you live and where did you purchased the B17?
If you prefer, you can email me directly at:
nyrdh@earthlink.net
Joined: Jan 2013
Before you spend anything on B17, here's an article on it:
http://en.wikipedia.org/wiki/Amygdalin
Joined: Feb 2013
Dear All,
My mother was diagnosed with ovary cancer in 2007 , she had a surgery and chemotheraphy of 6 cycles . And it reoccured again in 2011 , she took 6 cycle of chemo after that. But then just in 3 months the cyst reoccured in the pelvis , she then took 6 more cycle of chemo and now just after one month the CA125 count came to 251. The latest CT scan report says 1.SIGNIFICANT ASCITES 2.CYST IN THE LEFT PELVIS... ORIGIN COULD NOT BE CLEARLY MADE OUT 3.METASTASES AT THE SURFACE OF THE LIVER/ RIGHT DOME OF DIAPHRAGM, 4.OMENTAL AND PERITONEAL METASTASES
She is suffering severe pain in the abdomin , back and the chest, the right shoulder. There is accumalation of water in the abdomin. Please tell me how can my mother get out of this. The doctors here say this is in the last stage and nothing much can be done. Please help,.. Mail: ixdpuneeth@gmail.com
Regards.
Joined: Feb 2013
Hi All,
My mother-in-law has been diagonised for ovarian cancer from past 4months and was undergoing chemo in INDIA and completed 5 cycles successfully but all of a sudden she had gastric trouble and when diagonised with CT scan cancer has be spread all over during chemo itself. She was left with one last chemo but now doctors suggested to 6 more cycles, due to surgery she has become very tired and now unable to recover for next chemo.
She has two differnt cancer cells carcinoma and sarcoma which are very aggressive and spreading rapidly. She is unable to take chemo now without which they cannot be controlled. All of us are very much worried and unable to see her going through all this.
Please advise if there is any treatment which will increase her life span. By seeing her condition she might survive for another 2months or so. God plese show us some path:(. Any help is very much appreciated
Thank You
ashi
Joined: Jul 2012
I am very sorry about your mother-in-law having trouble with chemo. I think what she has is called malignant mixed Müllerian tumor, also known as malignant mixed mesodermal tumor, MMMT and carcinosarcoma. It is rare and more agressive than a more common ovarian adenocarcinoma but treatment is the same (surgery and taxol/carboplatin chemo). I have read a few survivor stories on CSN ovarian cancer, uterine cancer and also on rare cancers boards. If you query "MMMT" you will find them. I pasted some links below.
Good luck to your family and I sincerely hope that your mother-in-law feels better and beats that disease.
http://en.wikipedia.org/wiki/Mixed_M%C3%BCllerian_tumor
http://www.asco.org/ASCOv2/Meetings/Abstracts?&vmview=abst_detail_view&confID=55&abstractID=36402
http://mrwhatis.com/mmmt-ovarian-cancer.html
http://onlinelibrary.wiley.com/doi/10.1002/cncr.20256/full
www.journalmc.org/index.php/JMC/article/viewFile/1/42