Apr 27, 2002 - 10:49 am
Hi - I am so glad to find this group! I looked for support groups several times when I was first diagnosed and never could find anything - I guess because this cancer is considered rare. I always said I wanted to stand out from the crowd but this was not what I had in mind!!
I was diagnosed with anal cancer in August of 1997. It took 6 doctors, 10 months and 2 colonoscopies to find a tumor that was only about 1" inside! I was given the Niger Technique treatment of radiation and chemo (1st week and last week only), suffered the same terrible radiation burns I see in your messages and have been cancer-free for 5 years this coming August!
The main side effect I had was bowel control which nearly made me a hermit. I lived from toilet to toilet - this was so bad that, at times, I could not make it from the mail box to the house. I was ready to have a colonectomy (spelling?) - anything to lead a more normal life.
Once again it was a matter of finding the right doctor. Several physicians, including my oncologist, made referrals to surgeons for a colonectomy. I made one last try with a new gastroenterologist (spelling??) who said he thought this might be irritable bowel syndrome. He was right! I take the several IBS prescribed drugs and am now as near normal as I will ever be.
None of the physicians I've seen have mentioned anything about a connection to HVP.
Sorry for the long post but it was so nice to find others who understood.