CSN Login
Members Online: 16

New Member

cbhuntley
Posts: 1
Joined: Apr 2002

Hi - I am so glad to find this group! I looked for support groups several times when I was first diagnosed and never could find anything - I guess because this cancer is considered rare. I always said I wanted to stand out from the crowd but this was not what I had in mind!!

I was diagnosed with anal cancer in August of 1997. It took 6 doctors, 10 months and 2 colonoscopies to find a tumor that was only about 1" inside! I was given the Niger Technique treatment of radiation and chemo (1st week and last week only), suffered the same terrible radiation burns I see in your messages and have been cancer-free for 5 years this coming August!

The main side effect I had was bowel control which nearly made me a hermit. I lived from toilet to toilet - this was so bad that, at times, I could not make it from the mail box to the house. I was ready to have a colonectomy (spelling?) - anything to lead a more normal life.

Once again it was a matter of finding the right doctor. Several physicians, including my oncologist, made referrals to surgeons for a colonectomy. I made one last try with a new gastroenterologist (spelling??) who said he thought this might be irritable bowel syndrome. He was right! I take the several IBS prescribed drugs and am now as near normal as I will ever be.

None of the physicians I've seen have mentioned anything about a connection to HVP.

Sorry for the long post but it was so nice to find others who understood.

MelC
Posts: 5
Joined: Jan 2003

CB
I hope this mesages finds you well. It seems it has been a while since you posted a message on the ACS website.

I am curious as to how life is going for you now? Would you prefer not to talk about it or does it help to talk?

I was diagnosed in Sept 02, completed my treatments 1 month ago (chemo and radiation) and I now await the results of the therapy. I will have CT scan this week along with a scope.

Emotions are the challenge at this point and I would be welcome to any suggestions. Because I am female, the chemo drugs pushed me into menopause so I am dealing with that as well. I am sure this will account for some of the ups and downs.

Did you attend any local support groups or see a therapist to help you through the emotions? Thanks for reading, Mel

Cory58
Posts: 3
Joined: Jun 2003

I live like a hermit because of the bathroom to bathroom thing and would love to know what the doctor gave you for this. The only thing they gave me was Lomotil and I took 8 pills a day for years, now I just stay home. So any info you can give me would be greatly appreciated.

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2014 © Cancer Survivors Network