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Melanoma Discussions

gnail's picture
gnail
Posts: 35
Joined: Sep 2000

Hello.

My name is Greg. I have melanoma. Are there any discussion groups for this? If not, does anyone else have any interest in them. I would meet to discuss.

hull
Posts: 2
Joined: Apr 2001

Greg- my name is Judy. I was dx. wih Ocular Melanoma 4 years ago- very unusal-My type has a high risk of going to the Liver, which isn't good of course. I just had a scan today- its been a year since my last. The waiting does't goet any easier! How are you doing?

gnail's picture
gnail
Posts: 35
Joined: Sep 2000

Hi Judy. I have invassive nodular melanoma. I am normally just fine but the other day I had a scan that looks like I have a tumor. I am going in for follow up in the next few days. My attitude is very good. If you want to chat...e-mail me gnail@sky.net

edd1
Posts: 2
Joined: May 2003

My husband has just been diagnosed with Ocular Melanoma. I would love to talk with someone who has this type of cancer. Please respond

bjgillespie's picture
bjgillespie
Posts: 1
Joined: Feb 2006

High, I'm Dan, my mother has the same as yourself, ocular melanoma, but now it has matastized in her liver and lung, she starts a study on Monday the 27th. They are going to use DTIC, I will try and get her to join this talk group. She was a very healthy 76 year old. We have hopes that this might help her.

johnfrancis
Posts: 2
Joined: Aug 2005

Hello Dan:
I would recommend mpip.org as a discussion/support group for your mom. It is a highly superior chat group for melanoma patients. It is much easier to navigate, specific to melanoma, and I think your mom will find what she needs on that site.

Good luck and my prayers to you and she for a quick recovery and success with DTIC.

John C.

pamt
Posts: 1
Joined: May 2001

Greg--Hello my name is Pam...My very close friend had a melanoma 15 years ago....she was given a year at the most....she tok an experimental drup...the same AIDS patients take & she is alive & well today...I hope you are doing well...hers came back 3 times but has been over 5 years now & we are still praying for her..take care & let me know...PT

gnail's picture
gnail
Posts: 35
Joined: Sep 2000

Thank you Pam. I am still holdng my own. I am very thankful yet very vigilant. Thank you for you kind thoughts. You are very sweet.

slinda
Posts: 2
Joined: Jan 2002

hi greg my name is linda i was just diagnosed with melonoma on jan 15, 2002 and would like someone to talk to who is going thru the same thing. i am scared but hopeful my doctor says the depth is 0.35 i am scheduled to have another biopsy done on feb 5 after they cut more away

kevind
Posts: 1
Joined: Mar 2002

Greg:
Just been told I have melanoma, my name is Kevin. I would sure like to talk to someone in the same boat. It sure is strange how everyone is reacting around me.

gnail's picture
gnail
Posts: 35
Joined: Sep 2000

Kevin,

I would LOVE to talk to you. E-mail me at gnail@sky.net, I can give my phone number then if you want to talk.

Sher82051
Posts: 5
Joined: Nov 2003

hi Kevin, I'd be happy to talk to you about this, have been going thru surgeries and interferon therapy for 2 years. I didn't find this site till recently and went through it alone, so please email me at sher82051@go.com if you would like to talk. Sherrie

tg45's picture
tg45
Posts: 1
Joined: Feb 2006

Hi,my name is Terri and I have been diagnosed with melanoma in the last week.This is really scary stuff.I haven't been staged yet,that will happen tomorow.I would appreciate someone to talk too.

mattgoody
Posts: 1
Joined: Mar 2006

Hi Terri, my name is matt, I hope somebody has already responded to you, but anyway, I have melanoma stage 3B and would be happy to share with you any knowledge that I have. One thing everyone says is to be positive, this can sound easier than doing it. just remember, all this misery is just temporay.

good luck

Diane15
Posts: 2
Joined: Jan 2007

Hi, my name is Kirsten and I was diagnosed with stage 2 melanoma on april 1st, 2006 I was wondering how you are now? I'm still scared and a little shaken of the idea but, my doctor says that is very normal for someone my age to deal with this.

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