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Lung Cancer

linda
Posts: 1
Joined: Jul 2000

I am looking for patients or survivors with lung cancer who have never been a smoker.

rgarl
Posts: 1
Joined: Aug 2000

I have a friend who was just diagnosed with Stage 4 lung cancer. It is a non-smokers cancer. It is called bronchoalveolar carcinoma of the lungs. It has spread to his bones around his lungs, but not to the brain or lymph nodes. He will start chemotherapy next week. He is also going to travel to Vanderbilt University where they have clinical trials for this exact type of cancer going on. They are the only place other than the Univ. of Wisconsin researching this exact type of cancer. Can you share anything you have learned or your experience. We have learned so much in 1 week. We have been devoting our time fully to research, phone calls, etc. to help him. We would appreciate any info. Thanks.

ontime00
Posts: 15
Joined: Aug 2000

going to MD Anderson next week to start a 4 month protocal. What are you doing?

JPare93372
Posts: 7
Joined: Mar 2013

How hard was Otto get into MD Anderson

JPare93372
Posts: 7
Joined: Mar 2013

How hard was Otto get into MD Anderson

pancho
Posts: 15
Joined: May 2002

Hi,Linda Iwas diagnosed with nonsmall lung cancer just six months ago and I never smoked in my life,after my chemos yea I'm fatigued but I'll fight this to the end.My job was chemical Flooring which I believe was the cause of my Cancer in the lung.later Pancho

betty2
Posts: 91
Joined: Apr 2002

You won't find very many probably. I was a smoker but the surgeon told me that ciggarettes did not cause mine. Iwas also a Hair dresser and he said mine was caused from the environment. I had adenocarcenoma in my left lung (they removed 1/2) and I had large cell carcinoma in my right lung 3 1/2 yrs later and they removed 1/4. I have been clean since 1991. I didn't have to have any treatment except the surgerys.
I would love to hear from you.
Betty Jones jodnns@aol.com

JPare93372
Posts: 7
Joined: Mar 2013

Where were youtreated

dennycee
Posts: 695
Joined: Mar 2011

20% of Lung Cancer cases are individuals who never smoked.  Most test positive for EGFR Mutations and can take Tarceva as a maintenance drug.  While Tarceva is not a chemo, almost everyone who has it experiences shrinkage.  For those who qualify, Tarceva is given until there is evidence of progression.  Then they begin chemo.  New treatments seem to come out regularly. 

If you were a nonsmoker and genetic testing was not done insist on it.  LC is being diagnosed in teens and twenty somethings who never smoked.  Because non smokers are not perceived as being at risk, most are never diagnosed until they are stage 4.  Usually those caught earlier are caught by accident.  Doctors don't even bother to look for it because they perceive it to be a smokers disease.  

 

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