One down 32 to go

First rad tx done, 32 to go. The folks and Cancer Ctr are all so nice. I,m gonna ask for strength for all of us.

Luke
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Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Force...
    May the Force be with you Luke....

    LOL, sorry, I couldn't resist...

    Enjoy the ease of the first few days, it goes down hill from here for a month or so. But the end result is well worth the sacrifice.

    Best,
    John
  • CivilMatt
    CivilMatt Member Posts: 4,724 Member
    bumpy road ahead
    Luke,

    Or is it an uphill climb? My techs were great, they become more important as the time goes by. Good luck, smooth sailing (or should I say smooth zapping).

    Best,

    Matt
  • luvofmylif
    luvofmylif Member Posts: 344
    CivilMatt said:

    bumpy road ahead
    Luke,

    Or is it an uphill climb? My techs were great, they become more important as the time goes by. Good luck, smooth sailing (or should I say smooth zapping).

    Best,

    Matt

    I know how you feel...it was
    I know how you feel...it was not too long ago I had the same feeling when my husband completed his first radiation and chemo. It was like starting on a journey of the unknown but day by day we made it through to the other side and you will to.

    We checked them off on the calendar every day when we got home. Never lose sight of the goal...cancer free.

    Joan
  • meaganb
    meaganb Member Posts: 244 Member
    It feels good to get
    It feels good to get started, doesn't it? I felt pretty good the first few weeks and I'm sure you'll probably get a few days off next week so try to enjoy your family this Christmas! Keep us updated Luke!
  • lts
    lts Member Posts: 75
    meaganb said:

    It feels good to get
    It feels good to get started, doesn't it? I felt pretty good the first few weeks and I'm sure you'll probably get a few days off next week so try to enjoy your family this Christmas! Keep us updated Luke!

    Will do
    I am hoping to get the 31st off and take the kids up north and play in the snow. I have not asked but I hope the doc says yes.

    Good to hear from you Megan!!!

    Regarding the star wars reference, I have never heard that before, that is hilarious. ; )

    O, wise guy huh? Yuk, yuk, yuk.

    Luke
  • josh r.
    josh r. Member Posts: 264 Member
    32 to go!
    Hi Luke,
    I remember vividly how I anxiously awaited for the neddle to infuse those thousands of solders to kick the a-- of the intruders. I kept that thought and actually pictured the battle going on within my body for all those weeks that turned to months and ended in victory called NED! The battle started on July 28, 1991 and the graditude and vigilence continues to this beautiful day. Even, or maybe especially, on the grey days picture victory. God bless and Happy Holidays, josh r.
  • Billie67
    Billie67 Member Posts: 898
    josh r. said:

    32 to go!
    Hi Luke,
    I remember vividly how I anxiously awaited for the neddle to infuse those thousands of solders to kick the a-- of the intruders. I kept that thought and actually pictured the battle going on within my body for all those weeks that turned to months and ended in victory called NED! The battle started on July 28, 1991 and the graditude and vigilence continues to this beautiful day. Even, or maybe especially, on the grey days picture victory. God bless and Happy Holidays, josh r.

    Luke
    I'm so happy you like the techs and the facility, that will be huge later on when things are not so fun. The next few weeks should be fine and then just a bit of "ick" and it'll be done.
    Where are you having treatment? I'm pretty sure the onc will let you have the 31st off, just ask him tomorrow maybe and see what he says.
    I'll be thinking of you and praying for easy treatments.
    Take care,
    Billie
  • ToBeGolden
    ToBeGolden Member Posts: 695
    Over The Hump
    The making of the mask, waiting, and that first treatment are real hurdles. Very soon, all the hurdles will be in your past and you will be giving advice to the newcomers to this board. Rick.
  • donfoo
    donfoo Member Posts: 1,773 Member
    glad things are rolling
    Keep us updated as to how you feel, what you are eating and drinking, and your pain management regime. From those with lots of experience, it seems like the first part is pretty smooth going. Wish you well.
    Don
  • Vee1
    Vee1 Member Posts: 59
    4 down and 29 to go!
    Hi,

    My dad started his rad treatment also on Monday. He is due for 33 as well. We are trying to establish a bit of a routine. Drink a 530 calorie Boost with cream and whipping cream after breakfast...drink aloe in the car to and from, have a xanax about 40 minutes prior to treatment, return home and slather on the aquaphor then have lunch. As long as he can do that we will.

    Oh, he also takes a marker and crosses off one more day.

    Then it's on to Plan B...C....D....E....etc.

    Wishing and praying for the best for you.
    -V
  • jcortney
    jcortney Member Posts: 503
    Vee1 said:

    4 down and 29 to go!
    Hi,

    My dad started his rad treatment also on Monday. He is due for 33 as well. We are trying to establish a bit of a routine. Drink a 530 calorie Boost with cream and whipping cream after breakfast...drink aloe in the car to and from, have a xanax about 40 minutes prior to treatment, return home and slather on the aquaphor then have lunch. As long as he can do that we will.

    Oh, he also takes a marker and crosses off one more day.

    Then it's on to Plan B...C....D....E....etc.

    Wishing and praying for the best for you.
    -V

    Now there's three of us that started on Monday
    I'm only doing 30 (60 gy) and missed one day this week due to the machine crapping out so I'm down to 27. Beginning to feel a twinge in my throat. My doc said he could see it getting red already. I'm hopeful that I'll make it though the holiday without much of a problem.

    Good luck to my starting buddies.

    Joe Cortney
    Dallas, TX
  • katenorwood
    katenorwood Member Posts: 1,912
    Skiffin16 said:

    Force...
    May the Force be with you Luke....

    LOL, sorry, I couldn't resist...

    Enjoy the ease of the first few days, it goes down hill from here for a month or so. But the end result is well worth the sacrifice.

    Best,
    John

    Well I'd say I really am a Star Wars Fan
    Luke,
    I am so happy things are moving forward for you ! Keep that goal line in your sites, and know you have a pretty good rooting system here ! And was that a 3 stooges reference you made up under Meagans post ? They are funny as all get out too ! Wishing you a speedy bus ride with few bumps in the road my friend ! Katie
  • lts
    lts Member Posts: 75

    Well I'd say I really am a Star Wars Fan
    Luke,
    I am so happy things are moving forward for you ! Keep that goal line in your sites, and know you have a pretty good rooting system here ! And was that a 3 stooges reference you made up under Meagans post ? They are funny as all get out too ! Wishing you a speedy bus ride with few bumps in the road my friend ! Katie

    first week done!!!
    First week in rear view and no real side effects yet. Weird taste in mouth and warmth on skin, nothing bad though.

    Yes Katie, that was a stooges reference. I was trying to be funney with Johns comment but the order of posts kind of robs the humor.

    Luke
  • jcortney
    jcortney Member Posts: 503
    lts said:

    first week done!!!
    First week in rear view and no real side effects yet. Weird taste in mouth and warmth on skin, nothing bad though.

    Yes Katie, that was a stooges reference. I was trying to be funney with Johns comment but the order of posts kind of robs the humor.

    Luke

    I'm with you except
    Got a really bad sore throat today. Pretty sure it's thrush (or some other nasty like it) and not from the Rads. But, one week in the rearview mirror.

    Hang in there buddy, we'll get through this.

    Joe Cortney
    Dallas, TX
  • phrannie51
    phrannie51 Member Posts: 4,716
    jcortney said:

    I'm with you except
    Got a really bad sore throat today. Pretty sure it's thrush (or some other nasty like it) and not from the Rads. But, one week in the rearview mirror.

    Hang in there buddy, we'll get through this.

    Joe Cortney
    Dallas, TX

    You and Luke are going to
    be great partners on this "trip of a lifetime"....That's what I love about this site! I gained so much strength having fellow bus riders who were in or nearly in the same stage of treatment as I was.....and having all those who'd completed the trip waving and encouraging us that we would most certainly make it to the end of the tunnel.

    Joe...thrush is a pain in the rear....I still get it when I work graveyard shifts, and I'm 4 months out of all treatment, and 6 months out from rads. Diflucan (fluconazole) is what worked best for me...it works on thrush from the inside out, rather than Nystatin that is a swish.

    p
  • jcortney
    jcortney Member Posts: 503

    You and Luke are going to
    be great partners on this "trip of a lifetime"....That's what I love about this site! I gained so much strength having fellow bus riders who were in or nearly in the same stage of treatment as I was.....and having all those who'd completed the trip waving and encouraging us that we would most certainly make it to the end of the tunnel.

    Joe...thrush is a pain in the rear....I still get it when I work graveyard shifts, and I'm 4 months out of all treatment, and 6 months out from rads. Diflucan (fluconazole) is what worked best for me...it works on thrush from the inside out, rather than Nystatin that is a swish.

    p

    Thrush
    "Joe...thrush is a pain in the rear....I still get it when I work graveyard shifts, and I'm 4 months out of all treatment, and 6 months out from rads. Diflucan (fluconazole) is what worked best for me...it works on thrush from the inside out, rather than Nystatin that is a swish."

    Phrannie,

    I got right on the Fluconazole as soon as I suspected it (Friday night). If it is indeed thrush, I should start to see some relief today/tomorrow (based on previous attacks). If it's throat sores this early, well that's not a happy thought. Nystatin is a non-starter with me, just the smell of it sets me off.

    Don't know where home is for you but North Texas might very well have a white Christmas.

    Where ever each and every one of you are, please be safe and grab what happiness you can.

    Joe Cortney
    Dallas, TX
  • vermontgirl
    vermontgirl Member Posts: 66
    On the same bus
    My husband has 32 rads and 6 chemos to go. It's so nice to have people in the same stage of treatment and also the amazing people/cyber family who have been there cheering you on and helping you through. My husband is just feeling very "medicine head" and a bit more tired.....just the beginning. His PEG is getting scheduled for after the holidays (thank you kind MD). Keep us posted. I am rooting for all of us to get to NED.

    Happy Holidays to each and every one of you. May you look around and see the good that is already here.

    Kirsten
  • Vee1
    Vee1 Member Posts: 59

    On the same bus
    My husband has 32 rads and 6 chemos to go. It's so nice to have people in the same stage of treatment and also the amazing people/cyber family who have been there cheering you on and helping you through. My husband is just feeling very "medicine head" and a bit more tired.....just the beginning. His PEG is getting scheduled for after the holidays (thank you kind MD). Keep us posted. I am rooting for all of us to get to NED.

    Happy Holidays to each and every one of you. May you look around and see the good that is already here.

    Kirsten

    Fellow bus riders...

    How is it going?  Dad has pain at roof of mouth and swallowing.  Started more exercises for neck and mouth.  And, started Miracle Mouthwash yesterday.

    Fatigue is present and swelling of lower lip...

    I was hoping we'd get to the 3rd week before this, but oh, well....

    Please keep posting, ITS and Vermontgirl...

    -V

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    Vee1 said:

    Fellow bus riders...

    How is it going?  Dad has pain at roof of mouth and swallowing.  Started more exercises for neck and mouth.  And, started Miracle Mouthwash yesterday.

    Fatigue is present and swelling of lower lip...

    I was hoping we'd get to the 3rd week before this, but oh, well....

    Please keep posting, ITS and Vermontgirl...

    -V

    GroundHog's Days...

    Like the movie...

    Samething day, after day, after day....

    Keep pressing on, it'll get through and back to business soon...

    Best ~ John

  • lts
    lts Member Posts: 75
    Skiffin16 said:

    GroundHog's Days...

    Like the movie...

    Samething day, after day, after day....

    Keep pressing on, it'll get through and back to business soon...

    Best ~ John

    #8

    On my way to #8. Appointment at 9:37. Don't be late.

     

    Luke