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Lymphoma (Hodgkin and Non-Hodgkin)

Archives for May 2011

Swollen Lymph Node in My chest.
I am a 25 year old white male and I have four Lyphnodes in my chest that are swollen pushing up on my pectorial muscle cauing it to look like a big lump. I had blood work done and it has come back good. I had a CT scan on the spot and thats how the DR. told me it was Lyphnodes. They have no idea what it is, I am just…
Question about lymph nodes.
Has anyone heard of lymph nodes lighting up on both sides of the neck being cancer cells? Doctor says it lit up on both sides, but is very small-so small that it would not be able to be felt. Original Hodgkin's was on left side of chest.
Persistent cough
Has anyone had any problems with coughing? My husband went to the doctor for it but they said that it was nothing to worry about and that his lungs were clear. They gave him cough syrup with codeine but the cough still has not gone away. He went through round 3 Chemo Rituxan/Bendamustine last Monday, Tues and Wednesday.…
Flexeril for Painful Joints
Have found relief after almost 9 months of limping around due to ankles that were locked tight every morning. Bloodwork confirmed it wasn't rhumatoid arthritis or lupus or Fybramyalga, so I was referred to a Rhumatologist to discuss other possibilities & after hearing me describe when my ankles would be locked tight vs the…
Happy Birthday
Happy Birthday Joanie and Kellie Wishing you both a wonderful and healthy year ahead. Happy Birthday Wishes... Lisha
Oncologist Visit
Good Morning Everyone, Happy Memorial Day to you all. Hope you are all feeling well. As well as can be expected. I was at the Oncologist Friday, My blood tests were ok. Not back to where I started from but satisfactory. Had like 4 highs and two lows. My platelets were 124 and my wbc was 4.2 So not too bad all in all. So ok…
ensure
john you are so right about the ensure it is giving me energy thank you so much denise
PET scan
My daughter just had her PET scan on Wednesday and her doctor called today saying that there is a very very small spot on her neck. He said she would not feel it because it is too small. He ordered a CT which she had done today (no results). He said he didn't know what it was. Has anything like this ever happened to…
Never thought I would be happy to me 64!!!
Yeah I will be 64 on the 29th . One more year and I get medicare if I decide to retire. I use to dread beinjg a year older. Now I feel blessed!!!
Met with Rheumatologist
I met with a rhumatologist doctor today about my achy joints. after a lot of questions and a touch exam, she's suspecting it's Fibromyalgia. More blood work to test for that. Because my ankles are 'locked' every morning and it takes about 15 minutes to get them warmed up before I try to walk, she prescribed Flexeril. If…
Tornado's
God I am getting tired of being in Tornado watches. At least here in Hope Lodge if it becomes a warning the gal that's working the desk will come get everyone and have us go to the Theater Room to take cover. Too many folks have died in the last few days.
Who's the queen of stem cell harvest??
ME. Great news everyone! We got them all today...ONE DAY and actually I am an over-achiever. We needed 2.5 million stem cells per kilogram of my body weight...we GOT 5.14 million per kilogram of my body weight!!!! To answer Johns questions, it's a big machine (sounds like a giant chemo pump). The trifusion port has 3…
Sister
My sister had surgery today. Great news! She had a small lump in the back of her neck and sometime last week it grew pretty big and because I have lymphoma she finally decided to get it checked out. She told her dr about me and he decided it needed to come out and get a biopsy of it. After surgery he came over to speak to…
Harvesting, Harvesting, Harvesting
Well the Neupogen shots have done the job. My numbers were good enough to collect, so I sit here all hooked up to this machine just a pumping away. Keep your fingers crossed that today we get enough. I should know how many we get by around 5pm tonight. They are shooting for 2.5 million cells for every kilogram of body…
Boss and FMLA benefit
Donna, I've been thinking about you and your new boss situation. Being on FMLA can/does set a different mindset at my work. I still have the same Web Director as when I was Dx a year ago. As soon as my treatments were finished, she held a party at her house in my honor. Because of all this I know they stand behind me.…
Well we're here
Well we got all settled in this evening to Hope Lodge. It's a really nice place. I just want to break down and cry tonight, but don't feel like I can. Leaving my house was the hardest thing I've had to do in years. I don't want to leave my home, my hubby, my dogs. The list goes on and on. I don't want to be here. I don't…
Remission
Hey Guys, This may be a dumb question,but then again maybe not. Do we still have cancer when we are in remission? They say everyone has cancer cells in their body from birth so it makes me wonder. It may be something to think about. John
All settled in...
Hi Guys, Well...we got here safe and sound and all settled in. We had such a nice surprise when we got here. The ownwer of the R.V Park is one of our very close friends. We have been coming here since he built and opened the park 12 years ago. Anyways...over the winter he completely remodeled the cottage we rent. Gutted it…
Now the Bills
They kept promising the end of the world yesterday. I get up this morning and the world is still here. Now I have to go out Monday morning and pay all my past due bills. I get so tired of all these empty promises.LOL Have a nice day everyone. John
need help
anyone know how to get of oral trush? i have been thru 4 bottles of oral suppensions a per scrition of i think it was ducclex i remember it started with a D. denise
IGM elevated- need treatment
Hi everyone, Just found out on Thursday that my IGM level is elevated again (1200). My onc says that treatment is necessary soon. It's in my stomach (per biopsy), I have a swollen node in my neck, have one in my groin, it's still in my bone marrow, and probably in my small bowel. What I have to do now is get a second…
Cobra
Hello, I wanted to read new messages on "happy vacation sue". I was unable to connect. What happened?????????
Here we go again...
Hello there, my name is Michelle and I just joined this site in search of support from people who are going through what I am going through. So, on September 9th 2010 I was diagnosed with Hodgkin Lymphoma stage 3. I started chemo in October and had six months of it. I had had a PET scan just before my last chemo and it…
Happy Vacation Sue
Sue, Have a great vacation for the next week. You certainly deserve it.Oh yea, I will send you my address so you can send me some of that salmon. 20 LBS.SHOULD DO IT. LOL John(FNHL-1-4A-5/10)
Surgery is done
Ok the trifusion port is in. Got my second shot after the surgery and now ready for a nap. I'll check in later. Take care everyone! Beth
Help
i have been so mad lately at my husband who is the sick one by the way. i dont know what to do about it. Its not like he ask to be going through this, and i know he dosent want to be sick. He isnt doing well with the chemo and is sick alot. We have 5 children, so i have to be up with them, keep them and house clean so he…
It's a go
Well, went today for consent and meetings with psych eval and nutritionist. I passed all the requirements and got my first neupogen shot today. Tomorrow morning I have surgery for the trifusion port. I know there are other options if this doesn't work, but damn it's scary guys. My sister made it in today and I am extremely…
booking flight
Hi all, Having a bit of a problem. I need to book my flight to Houston. Everytime I check out the available flights and pick them out, I get scared to press the buy this ticket button. I know that this is so silly, but I still can't bring myself to do it. I have already reserved the hotel room, but the flight is just so…
Sorry that I haven been posting
The last 6 months have been up and down with different things going on post chemo, been to urgent care several times , to the ER twice with kidney problems , been suffering severe sinus infections due to retuxin, and now for the last 6 weeks i have had a fever that wont go away and it seems that tylenol does not have a…
Good PET scan results
I've only ever posted here a few times but I got my PET scan results that were taken after round two of my escBEACOPP finnaly. My Hematologist said that the results were "fabulous" and that he "couldn't of hoped for a better result" which is alot considering the terminology doctors usually seem to use, and have used in the…

Lymphoma (Hodgkin and Non-Hodgkin)

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