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DHAP chemo?
Hi! I just finished my first round of DHAP chemo. This is my second attempt at salvage chemo. Little punks just keep holding on through all this chemo! Has anybody had this type before? Ive done rchop and rice before, but they haven't been even close to as bad as this kind!
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Rash results/Treanda
Had my onc visit Monday.He feels the Treanda should be out of my system and had no clue why I still have this itchy rash(5mos).So he sends me to a dermatologist close to his office for a biopsy.O.K. the Dermatologist did a punch biopsy and called today with the results.Said the rash is a chemical reaction -he feels from…
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PET scan results
Hi all - after 11 months of chemo, we held our breath from PET scan last Friday until getting results yesterday. Though it's a partial remission (don't think it's in the cards for me to ever reach a full one), many good things happened this time which we're so thankful for! My large abdominal mass tumor is reduced in size…
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Neupogen
Does anyone know if there are any long term effects from neupogen shots? I know there is paing while taking the shots, but I was wondering if anyone experiences pain after finished with chemo & neupogen shots? I was reading on the net that some people experience joint pain long after finishing the injections.
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The ugly things people say
I hope that I am not the only one that has come across this. I was on another chat site (not for cancer patients) for anyone to chat about anything. I had posted that I had cancer and most people were really nice and continued to check in with me daily to see how I was doing. Recently I recieved I post from a young man…
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Vacation Liz
Hi Liz. I just wanted to wish you a wonderful trip to Florida. I know that this is your first vacation since you ended your treatment. Go, enjoy and have fun in the sun. You really deserve this time away. You will have to tell us all about it when you return. Have a great vacation... Lisha
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Enlarged neck muscle
For several years the Sternocleidomastoid muscle on the left side of my neck has been gradally getting bigger. Had several scans over the years and the doctors do not know what’s going on. Anyone experience this. I have slow growing NHL.
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Blood test results
Hello everyone, I saw my oncologist Monday, May 9. She didn't offer another Pet Scan, because the last 2 scans were negative for cancer. I am due to see her again in Sept 2011. I did have a complete blood test. I was able to get some of the results on Monday. Everything was perfect on the first sheet. Yesterday, I had to…
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blue line
i added this sight to favorites and now i have a blue line that says add to favorites how do i get rid of it im really dont know that much about computers any help denise
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Post Chemo
It's me again. My daughter finished abvd on March 17th with her PET scan coming up on the 25th of this month. She is feeling pain in her left shoulder blade which is the same side that she had the mass in her chest on (Hodgkin's). She says it gets worse as the goes by.Has anyone experienced anything like this before or…
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Results
Well I had the pet scan and got the results this morning. It's not all gone, it is better dropped to about a 4 suv and when we started it was 8. I am pretty disappointed, but my onc thinks they'll still go through with the transplant as scheduled. He says that they do chemo first to make sure it's going to respond to chemo…
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Emotions
Hi all Just wondering how you handle your emotions. I seem to be all over the place today. Simple things bring me to tears. I get overwhelmed so quickly. Things that should be easy are feeling very difficult. Does anyone else ever feel this way. Just wondering. Thanks, Lisha
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thrush
does anyone ever keep getting oral and if so do you know why. i just got over it and now i haave it again?
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Struggling with HEADACHES
Beth and Sue, I want to be sure you got this msg as I replied earlier since I unfortunately had not been in touch... thanks for checking in. Sue is right - I realize I could not just check in daily anymore becuz my energy had been sapped by work and - yes, headaches. I feel sad that I don't have the same kind of energy. I…
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How does Chat work?
when I click on Chat from left Navigation, I get a blank screen with: Please e-mail any questions to webmaster@acscsn.org. How does Chat work? Thanks Janelle
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Pictures of Baby Lizzy
Hi Guys, Sorry I've not been around as much..I've been helping the kids out with baby Lizzy. I think they are getting the swing of things much better now and I'll be able to be here at home more...(not that I mind being there)...ha! Anyways...I posted some pictures on my expression page of Lizzy. I just love holding…
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Nerves
My nerves are awake and functioning at top form today. Pet scan is critical tomorrow and my poor brain is having a rough time focusing on anything else. I think it's time to bring out the zanax. I wish the weather was a little warmer today I'd be out in the yard diggin in the dirt while I can. I may just have to layer on…
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Missing Bandaid
I've heard of strange things happening, but I have to admit, this was a new experience for me LOL. The bandaid they put on my butt started coming off, so my hubby put another on it. Everything was cool, other than sore. So a little later I go to bed and the second bandaid is gone! I can't find the silly thing…
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Donald51
Hello Donald, I was just wondering how you are doing? Hope all is still well. I seem to be doing ok , have my ups and downs but still in remission So this Christmas will be two years since the Zevalin. For the most part I try to make believe this disease does not exist. But that is hard to do. Well just want to wish you…
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Day 2 Down
Got done with my 2nd day, or most of it. They had to reschedule the Psych evaluation for the 19th. I know I am tired. They did do the bone marrow biopsy today and it hurt. They pretty much just only numbed with the stuff they use at the dentist. I know I cried a little bit. The aspiration part hurt so bad and they said…
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Beth's schedule...
Hi Beth, I was looking at your schedule for this week and wanted to tell you that you are in my prayers today. It's a busy day for you.... EKG-Echo/Resting-Panorex X-Ray-Apheresis Education and Pulmonary Function Tests. Whew...makes me tired just thinking about what you are doing today! Tomorrows schedule looks to be even…
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Notes from Podcast: Follicular Lymphoma
John, Please add to what I missed from today's Podcast: Update on Follicular Lymphoma 779 Participants on the tele-conference Dr. Stephanie Gregory - Overview of FL 70,000 new cases/year 500k - 600k living with lymphoma, loose 20k/year 90% are B-Cell, 10% t-cell Most common lymphomas is Follicular (low grade - indolent)…
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FNHLPodcat: FLIPI Score and NoLASH
At today's CancerCare Podcast, Dr Stephanie Gregory talked about our Flipi Score and NoLASH. Flipi Follicular Lymphoma International Prognostic Index NoLASH stands for the 5 factors that are used to measure: number of Nodal areas, LDH, Age, Stage, and Hemoglobin level. this site has the Flipi calculator:…
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Thank you
Hi all, I just want to say thank you for your warm and caring replys to my post. I was a bit unsure if I should post since it was not cancer related, but am glad that I did. Sharing the bad and the good with all of you has made my life so much stronger. It was just such a shock to all of us and especially my daughter.…
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Sad news today
Hi All, Many of you may remember me posting about my daughters first love who was lost in a crevace on Mt Everest in 2005. Well, they found him after all this time. They also found his camera and the pictures he was taking before his death. We just found out today. It's very sad news all over again. Just wanted to share…
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Ever wonder what your Trigger was?
The experts say Non-Hodgkins is triggered by a series of stressful events. Has anyone ever figured out which events triggered it? Have you ever wondered if one stressful event per year over three years could have caused it? Does anyone know if the stressful events that cause NHL are a series of events within one week? or a…
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Marge,Maggie &Donna
Know Marge and Maggie had scans done yesterday and Donna today.Just wanted you all to know I'm sending good thoughts your way.Waiting with all.Take care,Michele Dx95 FNHL3
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Questions to Dawn
Dawn is off in training but sent me a note.Ask me to please let everyone know she hasn't forgotten us and we can reply to her on the address she provided.Still blocked here.Have a great day all.Michele Dx95 FNHL3
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clean!!!!
Hi guy's my second PET scan since remission can back clean, it's going to be a beautiful summer!!! I wish the same for everyone on this site....... I have a question, does any one know of a good Life insurance company that would insure us recovering cancer patients. Stupid question but I'm just asking? Stay well Vinny
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Baby Lizzie is here...FINALLY!
Hi Guys, Well...we thought we would have a Mothers Day baby, but Lizzie held out until 1:45 this morning. She held out for her due date, May 9th. ha! 22 hours of hard labor for mama, but the doctors finally did a C-section at 1:30 this morning. She weighs 8 1/2 pounds and is 22 inches long. Mama baby and daddy are doing…