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Distractions...
Fortunately, I am a -- "SQUIRREL!" -- easily distracted sort, on a good day. Add a kidney mass, seven months, and -- well, I'm sure you get the idea, both from personal experience and from watching me run to and fro, wanting to know, "Are you SURE it was a squirrel?!" and "Where? WHERE?!" So, I have been distracting myself…
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My first NED
I just wanted to share that my first set of scans turned out to be uneventful (my doctor called them pretty boring:). I'll take boring over anything else! They classify me as low risk so they are moving scans to every 6 months for the next three years. Thanks for your continued support. Blessings Stub
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Oncolgist has ordered a new CT....
I recently had my annual CT with & w/o contrast [ chest, pelvis, abdomen ] [ I'm at a little over 4 years from Stage 1/ Grade 1 - 5.0cm RCC ] in SEPT '16 and was given the all clear- NED. I then had a Coronary Calcium Heart CT [ no contrast ] in October '16, and there was a footnote: ** " 11x9 pericardial nodule may be…
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1st Follow up scan
Finally, I have completed my first Ultrasound scan and chest X-Ray (no blood work for some reason...). Can't believe it has been three months already. I finally understand what is scanxiety when the radiologist starts making measurement of my kidney and from different angles. I keep wondering what he was measuring and what…
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Stage 4 Bone Met at 4 months Post Nephrectomy
Hi, all, I am new to this forum. This is my first post. I wish this post could be under better circumstances. In May 2016, I had a TIA stroke (mini-stroke), at which time a 7 cm tumor was detected in my left kidney. I underwent endartarectomy surgery on my left carotid artery for the TIA. I had to wait 2 months to recover…
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Thankful
Today my country is celebrating Thanksgiving. Today, among all of the usual things I am thankful for are all of you. Your messages, even though I didn't post until afterwards, were one of the biggest things that helped me maintain some sense of calm through my surgery in February. I'm thankful, as of now and hopefully…
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the fly in the opdivo ointment
everything posted about the benefits of opdivo is true, remarkable effect, few side effects. but it comes with a BUT. this varies by individual but effects of opdivo can wear off. in my case after only 6 or 8 months.
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Small Kidney Tumor
I am a retired firefighter and because firefighters have a 2 to 3 times higher chance of being diagnosed with cancer I insisted on a chest scan with my GP. The chest came back good, thankfully. They barely caught part of my kidney on the CT images and noted that a closer look at the kidneys needed to be done. Did a full…
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1st scans
Most of you have been through this, but for some this is new. In less than a week I will have my first set of scans. Blood work, abdominal, and chest CT are scheduled in the morning and a meeting with my doctor in the early afternoon. The intitial shock of my cancer diagnosis is fresh in my memory and still brings a shiver…
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Sutent and Medicare
I go on Medicare next August and with supplemental I am still on the hook for 33% of Sutent cost Because it is a type 5 drug Can anyone tell me what the Medicare contracted rate is? Anyone else experience this?
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Bleeding Update
My Onc/Med team have decided to take me off of the Cabo for a couple of weeks, in part because I have oral surgery on Tuesday, and because they are concerned with all of the bleeding. I have been very ill since switching to Cabo even more so then when I was on Votrient. I have been considering discontinuing all chemo and…
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Well this is awful!!! Help!
Im not even 12 hours post op,still in the hospital and in the most awful pain. Is there a concoction that works!?!?!
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My husbands story
My husband ended up in ER to ensure the pain that he was having was indeed gastritis. It was in fact gastritis but when they did the CT scan they found a small tumor on his kidney. We did not do a biopsy because they are only 80% accurate. We elected to have a partial nephrectomy. Surgeon made it sound simple cut it out…
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Elevated PSA following RCC?
greetings! Wondered if any of you gentlemen have experienced elevated PSA (prostate) level following RCC surgery? Mine jumped a whole point to 4.9 from last year. I had open partial neph in January 2016 and clear CT scan in August. appreciate any feedback before i head to the urologist again. Thanks Jay
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Imaging followups...how often?
I've been reading this forum for awhile but this is my first post. It seems like everyone here (who is a RCC survivor) is having CT-Scans no less frequent than annually. The first 3 years after my RCC diagnosis and total nephectomy I've had CT-scan and chest x-rays annually. But upon the 3rd year my urologist said come…
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Wisdom galore, Fox and others
I had to post a message about how people on this board have helped me and many others. Case in point, my 32 year old daughter had colonoscopy for bowel issues. 2 medium sized sessIle polyps were found incidently. Dr called them pre cancerous and that it was great she had this colonoscopy. She will have another in one year.…
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What to expect from robotic partial nephrectomy
Hi All. New here, but not to cancer. I've had lympoma for a few years. Regular chemo cocktail of rituxan. But the Bosniak 4 cyst on my kidney is new. Getting partial nephrectomy (robotic) in 4 weeks (need to wait for rituxan to get out of me). Ironic that I can't get cancer surgery sooner because I have cancer. Anyway,…
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Always superstitious about scans....surprised me...
Had my scans on election day. I am a bit superstitious about the scans (and only the scans). Fortunately, Uncle Ned was re-elected.
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Needing advice
I am a 45 year old female who has a 1.6 cm complex cyst on the upper pole of my left kidney. It was discovered incidentally on a ct scan in 2010. My doc at the time told me nothing and never bothered to tell me I needed to have it followed. Anyway, started seeing a urologist for a completely different issue and he did a…
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Experimental drug outperforms standard first-line therapy for advanced kidney cancer patients
Cabo!! https://www.yahoo.com/news/m/0eac887d-f361-3dcb-bb93-df5014d3129c/ss_experimental-drug-outperforms.html
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Healthy diet
I need to start a new lifestyle thread. I would be very interested in everyone's idea of a healthy diet for cancerv(and life generally). I will do some reading about it but I'm sure some of you have already studied this in detail. Steve.
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Thinking about food
I've been thinking about food a lot lately. I have a recurring daydream about making some pies. The first is an apple pie. I won't say much about that because it is pretty basic. When I was a kid my mother and grandmothers made great apple pies. Apple pies and slices from local bakery shops were also quite good. But these…
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Urine, Faeces, blood and embarassment
Please dont apologize for talking about such things. Often this is the only place we can. We've all been through it. Waking up and peeing blood. Sitting in a room with everything covered in our own faeces. Many of us have been through it and all of us understand. This is a horrible disease. We have all had a taste of its…
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Cabo users
(Please forgive the crudeness of this post) Yesterday evening my wife came into the bathroom and she saw a toilet full of blood, and blood on the seat etc.,she freaked out. She asked me how long has this been going on. I actually had to stop and think about it and then it dawned on me about a week after I started taking…
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Recovery from surgery
Hi, I am new here, reading all of your posts has helped me a lot, just knowing that there are others goin through similar experiences helps a lot. I had surgery on August 30th to remove my left kidney which contined Hubert the Evil Mass (4 lb!!). So glad it is outta there! I am back at work and slowly getting better. I…
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PPI
Just curious if anyone here has got kidney cancer from years of PPI use (proton pump inhibitors for reflux)?
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UPDATED Lost in the world of waiting
I've been reading through the board for a couple of weeks now and am finally pulling the trigger on making a post. I found out 3 weeks ago that I have a 1.8 cm complex partially cystic mass with enhancing soft tissue at the bottom of my left kidney. It was an incidental finding on an MRI for lower back pain. I followed up…
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Rbc in urine...
Good morning friends! so I had stage 1 kidney cancer and had surgery July 1. Doc said they got it all, it was like 2.7. I have felt great since then. The last couple of days I have felt kind of run down, stomach hurting and back hurting. I was scheduled for blood work friday and all was good except my urinalysis. Shows…
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To ALL the Veteran's out there
Happy Veteran's Day!! And thank you for your service. Donna~
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Zometa
Wow. Had my first Zometa treatment yesterday. I'm not sure what the dose was; it was about a 20 minute IV drip. I woke up about half an hour ago with some fairly intense pain in my knee areas. If feel it most on the inner portion of my thighs right above the knees. I've been doing a lot of physical therapy exercises, so…