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Shaped-beam radiation therapy **NEW
FYI.....this is the new procedure I told Erika (themis01) about. I don't think it is clinical trial anymore. The article is below: Sounds good. Rochester's Precision Radiation Therapy Yields Rare Success for Liver Tumors Robert J. Flavin Shaped Beam Surgery Center at the Wilmot Cancer Center offers expanded treatment…
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worrying about my care
Hi everyone. I have been doing Erbitux weekly and Cpt11 every other week for the past 8 weeks for mets to my liver and abdominal lymph nodes. I skipped one week because of chest and shoulder pain to go to the hospital to take a chest CAT scan and an EKG. All was found to be well. My onc said at the time that maybe the…
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hubby sick, coughing and sleeping
do you ever really get a day now and then of not worrying so much that as a caregiver I feel so helpless. My hubby started folfiri with avastin almost 2 wks ago- it went fairly well and we are scheduled for round 2 this week- but he seems to be getting worse during the week off and not better...??? He has a fairly steady…
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My mom... please respond
Hi all my mom is no longer responding to any chemo related therapy. We are looking for trials that may accept her QUICKLY!! Any ideas out there? I have made some calls regarding vaccine trials. Her onc. said she may not be a candidate for any trials b/c her liver function is poor. Her bilirubin is currently 15. Anyone with…
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Ammonium Tetrathiomolybdate (TM) Anyone?
I have been taking ammonium tetrathiomolybdate (TM) for approximately 6 months in an effort to fight my metastatic colon cancer in my lungs and liver. This is experimental treatment that attempts to lower your copper levels to approx. 15% of normal to slow the cancer growth, since the cancer needs copper to grow. I have…
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Happy birthday to me.
Hello Today is my birthday. I always feel special on my birthday. i am 46 years young today. On Thursday 1st Dec, I have a scan to check progress of liver growth. Is there anybody out there who had inoperable liver mass, size c4cm, and it disappeared with Avastin? So far it has shrunk 40% from 6cm during folfiri treatment.…
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update
Hi everyone, I finally saw the alternative medicine dr. today. I got answers to my questions and they actually made sense. I will be implementing some of his suggestions, diet, supplements and accupuncture along with chemo to try to achieve a better immune system and healthier life style. I start my 3rd session of folfox…
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Oh my!! I'm having a GOOD day!!!!!
Hi everyone, The past three years of advanced stage colon/uterine cancer combined with the death of my husband and now being alone without an income waiting for the disabled widows benefits to begin has been more difficult to survive than I can discribe here. So when I have a good day I just have to share it. Not that…
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Zena Warrior
Hi dear friends....geeez...I hope tha glitch on here has taken a dive. I could not login for a while. I just wanted to share with you all. I just got off the phone to Wanda and want to tell you how wonderfull it was to talk to her. I can tell from those 30 minutes that our warrior has an incredible sense f inspirational…
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to moesimo
I have tried emailing you at your personal address 4 times. A couple of times responding to your emails and once or twice sending you a fresh one. i keep getting messages from my server saying they are unable to connect with your server. Go figure. Anyway...I had a nice thanksgiving. hope you did too. tolerating chemo…
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New cancer!
Hello everyone, just wondering if anyone with primary colorectal cancer out there has had a new primary cancer? thanks Virginia.
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My Mom
Well if you have been following my mom she had a folfox treatment last week kind of as a last ditch effort since her liver has gotten so bad so fast while on folfiri that didn't work. She has been VERY jaundiced for a week or so and her bilirubin was 16 a few days ago. The onc. told me this past Wed. to watch for my mom to…
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A Belated Happy Thanksgiving to ALL!!
Hello Everyone!!! I just wanted to wish everyone a Happy Thanksgiving!!! I only have one thing to be thankful for this year and that is ALL OF YOU!!!! Thank You for thinking of my Bob on your special day!!!! Again, Thank You!!!! Love Always!!! Sue
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Rising CEA
My husband, dx July 2003 stage 111C rectal cancer and doing well has had CEA levels of 3.1, 2.9 and 2.6 and considered acceptable. His oncologist told us that levels can "wobble around " a bit. Now it is 3.3 and he is still being told that this is OK and that he should have another one early January to make sure this is…
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Giving Thanks for NED
Hi all, What a day! 2 years ago this time, I was awaiting surgery for removal of my cancerous polyp. Now, I am nearly 2 years out, (stage 3, 1 positive node, 6 months of chemo). My colonoscopy and CT scans last week came back NED!! That first year was a blur; now, I feel like a new improved me! While I would not recommend…
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Thanksgiving
Majority of you know that today is Thanksgiving here in the US of A. Regardless of your location, take a minute to think about the things you appreciate in life. Go ahead, I'll wait............................................................................................... Ok, now here is my definition of Thanksgiving…
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Lower Rectal Cancer
My friend has cancer of the rectum very close to his anus (large mass). I'd appreciate any words from those out there that have/had this condition, treatments they are doing/have had, where they're at now and/or anything else that may be useful to my friend. He is not going to any support group which I think would be good…
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Buster "NED" Brown...
Greetings all... Three hundred and forty one days, 12 cycles of chemo, 5 wks of radiation, 1 colon resection, about 30 doctors appointments, dozens of rolls of toilet paper, and over 100 needles pokes...expensive. Hearing the words remission from your oncologist...priceless!!! You guys were right, the lung nodule they…
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Happy Thanksgiving
Hi Everyone, Just wanted to wish you a very Happy Thanksgiving! I hope that you are all celebrating with loved ones. Jamie
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newbie
Thanks to Kerry,Maura,Ross&Jen,Maureen,Margo,Ali and Howard for your encouragement! Just got back this evening from my first chemo. It went quite well ! I am feeling just a few side effects i.e tingling on ends of fingertips and feet but otherwise good.Ross&Jen you asked details of my surgery. I was totally suprised by…
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question about annual colonoscopy
My annual colonoscopy is in 2 weeks. Does anyone have any suggestions on how to make the stuff you have to drink more palatable. Just thinking about it makes me gag. I wish you all a very nice Thanksgiving tomorrow. Regards, Arlene
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question about annual colonoscopy
My annual colonoscopy is in 2 weeks. Does anyone have any suggestions on how to make the stuff you have to drink more palatable. Just thinking about it makes me gag. I wish you all a very nice Thanksgiving tomorrow. Regards, Arlene
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erbitux or avastin
Can anybody tell me why some people are given avastin and some are givn erbitux. They seem to perform the same function. Both are monoclonal antibodies, whatever they are.! cqn somebody get erbitux if tumour stops responding to Avastin? I can never remember to ask these things when I go for my avastin. I just want to get…
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cute joke
Funny Jokes: Butt Surgery A married couple was in a terrible accident where the woman's face was severely burned. The doctor told the husband that they couldn't graft any skin from her body because she was too skinny. So the husband offered to donate some of his own skin. However, the only skin on his body that the doctor…
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Would You Eat This???
hey all you Semi-Colons! So my question to you all is would you eat this? 1,6 - dichloro - 1,6 - didoxy - beta-D-fructofuranosyl - 4 - chloro- 4 deoxy-alpha - D - galactopyranoside Wow, can you even swallow the name??? Can anyone guess what this chemical is that many are ingesting every day? Did anyone guess SUCRALOSE??…
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Newbie
Hi everyone! I`m recently diagnosed stage 3 and had surgery 9/27 . Got my port and have my 1st apt. for folfox at sloane-kettering on Wed. I`m 55 and just retired from the Post Office after 32 yrs. It all has happened so fast that I still can`t believe that the doctor is talking about me when he`s speaking!I`m not scared…
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Stage 4 treatments ?
Hi everyone. My friend's mom was just diagnosed with stage 4 Colon CA with mets to liver and lungs. She is in her late 70's. Any idea's what treatments may be used? I was stage 3, so am not up on the current protocols. I believe they are not looking at surgery or radiation. At least not yet. Chemo options? Thanks. I gave…
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hiccups
Ok everyone- you have been fantastic at answering my questions and providing calming reassurance to my posts..so- my husband started folfiri and avastin on Thursday- and has lots of hiccups off and on over the past 2 days? I assume it is caused by the chemo..but any suggestions on how to get rid of them? Bev
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Prayer and Meditation
There is a wonderful resource on healing from a spiritual perspective: http://www.brother-aleksei.org/ It is non-sectarian, nondenominational; and it is very easy to read and understand. It has helped me a lot. There is hope. Shannon
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Hello
Hi all. Hope everyone is doing well. Today is not a good day for me. It is my 41st birthday and would have been mine and Scott's 10th wedding anniversary. I miss him so much! Every year he would send me flowers. A couple of the girls from the office took my out to lunch and when we got back, there was a basket of flowers…