Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for June 2012

Doubts about radiation
I was reading some postings earlier about sisters not doing chemo, for whatever reason. My question is has anyone done chemo, but not radiation as recommended? I have 2 rounds of chemo to go after a bilateral mastectomy. It has not been nearly as bad as I had expected. But the thought of radiation, of the way it is…
Hershey Meeting
Hi girls, Hershey is getting close. Friday, September 28 - Sunday, September 30. Join us for all or part of the weekend. Friday dinner, Saturday chocolate spa, or Saturday dinner. Let me know if you need more information and I will send it to you. Hugs & Hershey kisses, Jean
Breast Lump
After removing the Cysts in her breast, after 2 months her nipple start to wound, then until now the wound is not healing, and she take a mammogram and will see the result on Tuesday. if there are survivors in this situation, please help me, I BEG YOU. HELP ME PLEASE. I'm just a kid that wants to live longer with my…
How do you survive when people you love decide to leave you because you have cancer?
I'm not sure how to express this. I have several friends and family members who have said goodbye. Two freinds I've had for 30 plus years have recently said goodbye to our friendship. I'm very sad and wondering why. The only explanation I have come to understand is my cancer. Has anyone else had this experience?
Had the PET scan yesterday, now I look like a Heroin addict!
I found out my radiation oncologist does PETs at his office, so I scheduled this one there to avoid all the bs you have to go through when you get it at the hospital. Well, I think Rad. Doc.'s techs need to go for a refresher course in administering IVs. The first girl came in, very sweet, young and perky. I put out my…
Happy Father's Day -- Robert!! and any other Brothers in PINK --
Hopes, and Wishes for a delightful day for you. Enjoy your special day, dear Friend. Vicki Sam
newly diagnosed
Wow, you really sound like a really great bunch of ladies. I want to thank you for taking the time to comment on my post and for giving me advice and sharing with me. I am glad that I decided to join this network. You given me some very helpful ideas. I will be keeping you all in my prayers. Thank You again. :) More soon.…
I have been remiss. So sorry!
It has been nearly a month since I have been to this site. Let me first say that it was not a health problem that kept me away. Some of you may remember that I stated I was going to first shift at my job. This of course was much more desirable than my previous third shift position bur because we need to give our clients a…
NED is Cheating on me
After taking my second pill of ativan and still awake i need to share I know you hate to read as much as I hate to write about NED who left me after 4 years of pretty serious relationships. I had my PET on Monday, the date he left without notice and we have learnt about his behavior today. both my oncologist and my very…
Radiation
Going thru my radiation now.......mild blisters under my arm.....i know it will get worse before it gets better....should i be worried? i have 10 more left and then 3 boosters. anything i can take to make it feel better? using Aquafor now and aloe from my plant but that's it. Gosh i can't wait til it's done.
hello friends
hello friends, im ana and i just had bilateral mastectomy last june7, 2012. im still in recovering process and i think its not easy. can anyone share with me their own experiences.thank you.
My trip to the ER
Crying because I can't understand any of this. I had an appointment with my PCP today. (having terrible allergy attacks) I mentioned that I have pain in my chest on the same side of breast cancer. She was concerned and wanted to order a CT scan NOW rather than wait til the end of July for the scan that the onco doc…
Camul/Carol's new picture
Are these your sons?
Dr. Susan Love
I just received an email forwarded from a friend who is involved in the Dr. Susan Love Research Foundation. Dr. Love just sent a message to the members that she has leukemia and will be undergoing treatments for the next several months. I want to use a whole bunch of four letter words but can't post them here. Suzanne
Shaving Head ??
OK, my hair has started coming out right at the 2 week mark from my first treatment of TCH. I've already cut it short . . .I had hair mid-way down my back and now it's above my shoulders. We've got four kids and I was hoping to include them all in the head shaving. We're a blended family and while we have them all most of…
newly diagnosed
Hi everyone, not sure quite how to do this, but here goes, my name is Audra, I am 43 years old, a happily married, Christian, mom of 2 and was diagnosed with breast cancer on May 10th, 2012. I will be undergoing double mastectomy surgery on June 25th. I was diagnosed with both DCIS (Ductal Carcinoma In Situ) and Stage 2…
Needed--prayers, positive energy and let's get that Pink Bus fired up!
Tomorrow I have my PET scan after 5 months of Faslodex injections and Zometa infusions for newly diagnosed bone mets. I'm not gonna lie--I've got the jitters. Good scenario--stable. Great scenario--diminished bone mets. This treatment is very tolerable and my med. onc. said that if it works, I would be able to be on it for…
Mets to spine and rib
I saw my oncologist Tuesday to go over the results of the PET scan. My day actually started with a very urgent sounding lady from the lab insisting I get a hold of my provider immediately. Evidently she didn't realize this was blood work ordered by my oncologist as it seems my tumor markers were way elevated. (7.…
Detailes of Chicago Trip
I'm sorry that I have to disapoint all you ladies about my trip to Chicago. The only exciting things I got to do was to roll June's mother(in a wheel chire)in and out of the house for 4 1/2 weeks. The rest of the time I just watched T.V. We did get to go shopping once at Guernee Mills,Guernee and once at the big Wal-Mart…
Lymph node
Hi Everyone, I am posting this message on behalf of my wife as I love her a lot and am a bit concerned. It has been 2 months or so that my wife has been dealing with some sort of swelling under her left armpit...I found out about it just 3 weeks ago. Athough so far it seems just like a swelling and a bit tender to the…
lung lesion
Hi all, About a month ago or maybe a little longer, I had a chest MRI done due to some ongoing post port pain. Long story short, the radiologist read the wrong side ( the BC side)! In doing so, they found a lung lesion on my left lung (again, same side where cancer was). My oncologist is not concerned stating that it…
Frustrated with my Doctors
Hello, I am newly diagnosed with Stage 1 Invasive Ductal Carcinoma, ER/PR +, Her2 -. Had a lumpectomy 4 weeks ago. Waiting for my oncotype score in order to determine need for chemo or not. Someone on my team screwed up and didn't send my sample to the lab right after surgery. So now I am in a holding pattern waiting weeks…
Eight years later...
Hi everyone. I am eight years out of having breast cancer and I had all the things that go with it.. Chemo, radiation, etc.. I am now really suffering with osteoporosis, osteoarthritis and all the symtoms of fibromyalgia.. not to mention I have had insomnia since as well.. Is this common? Has anyone else suffered with…
chest vs arm port
I am to get my port put in tomorrow(eeks).I have a choice and didn't know which is better? I think I'd prefer arm but some feel it's more apt to infection. HELP :)
Robin Roberts..Good Morning America..
Have you heard about Robin Roberts? She had bc 5 years ago...I remember seeing her on the show, bald...a real trooper! She has developed what is called MSD...you can goggle it for an explanation of what exactly it is...but it was caused by her chemo...they never said what chemo cocktail she had....it is like…
Who/what do I need after surgery in the way of help?
I do not know if I will need to have somebody in every day to help me get out of bed after surgery and help me get dressed. If I have reconstruction after my bilateral mastectormy, I will stay in the hospital overnight and maybe one more night. Did anybody go through this who lived alone and do everything all by…
New Flower in SF - open invitation
And we have arranged to meet in SF Sunday 6/17 at 6:30pm at the Moscone Center. Pleeease if anyone would like to join us you are most welcome to. I am coming from Palo Alto so can anyone nearby who wants a ride let me know. hugs to you all Mariam
tissue expanders
Finished my chemo April 12th and had a bilateral mastectomy May 1st. Sentinel node biopsy done and cancer found in one on the right, so 14 nodes removed on the right and 3 on the left. I elected to do the nipple sparing procedure. My drains were in for 3 weeks. I've developed a seroma in the right armpit that has been…
Loss of son and then cancer diagnosis.
I lost my 24 yr old son on May 3, 2011. Two months later I was diagnosed with Stage 2 IBC. I had successful surgery and am now on Tamoxifen for the next 5 years. Does anyone out there have any coping strategies for someone going through grief and cancer treatment at the same time? I have a wonderful, supportive husband who…
How much soy is too much???
I was dx with Stage 1 IDC, ER/PR+ ('strongly positive' on report). I am two years in to the 5 year Tamoxifen treatment. I've read that those dx with estrogen positive cancers should avoid soy products. While I do avoid the obvious, soy milk, edamame, soybean oil... there seems to be soy in every stinkin' thing at the store…

Breast Cancer

Discussion List