Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Breast Cancer

Archives for March 2003

Anyone On Alt Meds?
Hey Ladies, I am no longer allowed to take conventional meds. So I am now on alt meds, and wanted to know if anyone else is taking them. It has really been helping me physically.....Am feeling alot better. Was quite sick for a while....Gotta alot of emailing to do..lol Anyway, I wanted to know for a very good…
Emotions&arimidex&tamoxofin
I have been a breast cancer survivor for 1-1/2 years now. I had a lumpectomy, radiation, and was placed on tamoxofin. I am 58 years old, had a complete hysterectomy when I was 39, so the combination of being suddenly taken off estrogen, plus taking tamoxofin threw me into a hot-flash tailspin. I was given medication to…
lobular..only calcifications
new here..really need to talk to someone who had the same cancer I do.
anyone out there with lobular breast cancer...cancerous calcifications...no lump?
I just need to find out how you are doing? Where you got information to help u make treatment decisions? I know 80% of breast cancer is ductal , and I keep reading about women feeling lumps. I don't fall into those categories.
For Sevey
I wanted to know what Church has been praying for me, since I got pretty good results for two months, only the onco doc and I miscommunicated, somehow! Can you tell me who was doing the praying--you said some anointed ones in your church--what church???
Real hair vs sythitic hair wig
Hi can any one tell me the pros and cons of real hair wig vs a sythitic hair wig getting ready to get one on tuesday and not sure which way i want to go.is there a whole lot of difference in appreances?also what about taking care of the wigs is there a big differnce on how they are taken care of.if anyone could help clear…
cellulitis
IN Feb. of 2002, I had a lumpectomy followed by chemo and rads. After the original surgery, I had a nasty staph infection followed by the start of lymphadema. I've had therapy, have a sleeve, etc. and have been doing well despite a lot of edema from rads, but I now have cellulitis next to my lymph node incision - same…
chemo or not?HELP!!!!!!!!!!!!!
I had a double mastectomy...negative nodes...apparently, cancer-free. As a preventative measure, my oncologist suggested I go through chemo and hormonal therapy. I opted for Tamoxifen, but now I'm thinking I should be more aggressive with treatment. Chemo+Tamoxifen=5%-10% chance of cancer reoccurene;Tamoxifen alone=10%-15%…
Thinning Hair
Hi Pat! I had four treatments of A/C followed by 12 weekly treatments of Taxotere (participated in a study). I lost all of my hair after my first tx of A/C just as the doctor predicted. My hair was very thick and after four days of handfuls coming out I shaved my head. It started to come back by the time I started the…
thinning hair
Hi, I had CMF chemo, my hair thinned quite a bit but I did not loose it all, i finished chemo last Oct., my hair came back nicely, wavey and thicker. When I had chemo 1998, CAF, I lost all the hair, was bald, wore a wig. Chemo reacts different with everybody. Be patient , it will come back. I wish you the best. banker
positive result with Faslodex for second-line treatment
I would like to share my mother's very positive experience with Faslodex to treat metastasized breast cancer. This cancer has spread to chest wall, bones and liver. She has been through every available oral medication and all have stopped working. She is 83, relatively frail and probably not a good chemotherapy candidate.…
cancer of lymthnodes 3-rd stage
My friend's been diagnosed with lymthnode cancer 7 months ago, has gone a few chemos (I don't know how many and what type of drugs were used? all I know there were about 4 different types) I suggested a very striced diet to boost the immune system (tured out that the doctors hadn't tell her anything about diet). The latest…
feeling to good for this to be true?
I am 39 and was feeling better than i have in my life until Jan. I have 3 beautiful kids 17,15,12 and a wonderful loving husband. I ran the Indy mini marathon 3 yrs in a row and still run everyday, eat right, ect.... I felt my lump right before xmas (what a time) so of course i did nothing until after. They said breast…
diffculty eating
my mom has breast ca and is getting chemo now and is having difficult time with metallic taste with anything she eats. Does anyone have a suggestions that might help... thank you
Follow up exams
I have been looking for answers and thought I could get some feed back on someones experience. I finished my chemo treatment 1 year ago, at my regular follow up oncologist visit I am weighed, poked given a quick look over and sent on my way. I was under the impression I would have my pre-treatment test repeated to watch…
Thinning hair
Hi PatV What you are describing is what happened to me after two rounds of AC. It started with just a few strands coming out and then, like you said, lots of strands came out in the shower and with running my hand through my hair. Because my doctor had told me that I would be losing all my hair, I shaved my head when I…
thinning hair
I don't have experience with taxotere, I was put on adriamycin and taxol. So my results maybe different from yours. I was told my hair would drasticly thin or come completely out..it came completely out. It started thining like you discribed then it began coming out in clumps. I couldn't handle it. After about 5 days I had…
lymphedma
I have massive lymphedema of my arm. I had chemo and radiation and my arm started to enlarge about a year and a half past surgery. It is twice the size of my other arm. I have tried going for massage, wrapping and now wearing a compression sleeve. Nothing helps. Has anyone heard of any treatment I can try. Again, this is…
Is this what they call "thinning"?
I had 4 rounds of CMF and just completed round 7 or 12 weekly taxotere treatments. I didn't have hair thinning on CMF but about a week ago my hair started coming out heavily in strands (not clumps). Every time I brush it hundreds of hairs fall to the bathroom floor and when I run my fingers through it, I come up with more…
Muscle spasms
I'm having muscle spasms in the chest wall behind the breast I had a lumpectomy on last June...is this OK or should I be concerned? Thanks
No Shame in Anti-depressants to Cope
It seems as though a lot of us are feeling down, even way down. I too "crashed" a few days ago. I told my doctor and she prescribed Zoloft immediately. This is already very helpful. I think with the diagnosis, the surgery, the doctor appointments, etc, etc,.. my head was spinning so fast that after 6 weeks post-surgery…
Need help with coping
I been reading the messages. I am having coping and my prognosis is good. Radiation was not recommended. I was diagnosed in the pre-cancerous stage(DCIS). I had a tram flap and was doing great till I saw the oncologist. He wanted me to go back and see the radiologist because he was unsure of the margins on the path report.…
Thanks so much
Thanks for all your feedback. I felt like I had a pity party for myself driving home yesterday. I have never whined outwardly soooo much. But, guys it felt good, so hang on I may need to do it again. I tried to read many of the messages from the beginning. I would like to know how Pat is doing, also Hummingbird and Tara? I…
Hello
I also am new to this group. I came upon it one afternoon at work, and couldn't stop reading. I have breast cancer, status post mastectomy with eight out of eight postive nodes on the upper layer. With no positive in the second layer, and two out of four positive close to the chest wall. The doctor did not do a sentinal…
post mastectomy with reconstruction surgery
July 2001 i underwant a right modified radical mastectomy followed by reconstruction surgery. My right breast has become very hard (like a rock in side me)after chemotherapy and radiation. i find this very unconfertable and hate the way my right breast looks. (i keep saying to myself at least i'm alive) my right breast is…
skin sparing mastectomy
I had a skin sparing mastectomy with a tram flap. The Doctor told me after surgery that some breast tissue was left behind in order to support the graft. I would like to speak with anyone who has had this type of surgery. I need to talk. I am becoming increasingly worried that I made the wrong decision.
Prophylactic hysterectomy
Hi, my drs are urging me to have a complete hysterectomy, actually it is already scheduled for next Mon (4/10). I am 28, er/pr neg. I am looking for anyone out there who has had this surgery as preventative as aposed to Zolodex or Lupron. If anyone is out there, how did you handle it, I certainly cant take HRT. Please…
pain from lymph node surgery
Hi, I am new to this site and have a quick question. I had 4 lymph nodes removed last year after being diagnosed with non-invasive breast cancer. Does anyone know or experienced constant pain after this surgery. It will be almost a year. I try to excersise it every day, but it is always stiff. Any info will be appreciated.
men can't handle the changed body
beeb scared to date, men say they can, but what happens they euther forget, or had intention of ever caressing me, I need that , its need to be ok with him as well, dont leave me out in thr cold, while you flirt with a women who has two..Why do men do that
Welcome to you NEW to the site.
I haven't been spending as much time here now that I am back into full gear working and all. I find that I have less energy to do things of life. I find it is just work trying to get through all we must in a good days work. I am very fortunate to be able to carry on and finally able to enjoy this life I have been left…

Breast Cancer

Discussion List