When did your fatigue subside?

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I'm less than 1 week post rads and the fatigue is hitting me hard. I can't stay active more than 2 or 3 hours before lying down. How long can I expect this to last?

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  • cardoza33
    cardoza33 Member Posts: 81
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    Hey there, Like everything
    Hey there, Like everything else, it varies greatly between people. My experience is that fatigue you are feeling came and went for the first few months. I am 5 months out back working full time and I still get bouts where I am really tired. Its important to remember that you are healing when you are sleeping so embrace it. I slept a lot. You are healing from a brutal treatment. You will get better. I work 8-10 hours a day again and still have energy to play with the kids when I get home. I go to bed early now, but feel I'm about 80 percent. Good luck and keep up the fight.
  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
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    fatigue

    after my thyroid was taken care of

  • MarineE5
    MarineE5 Member Posts: 1,030 Member
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    Roller Coaster Ride

    Steve, 

    You are still in the "Cooking" Stage which can last anywhere between 4-8 weeks after the last treatment. Radiation can play havoc on our energy levels for up to one year according to my RO. Hydration, nutrition, and rest will help you get over this feeling. Try to do some sort of chore(s) during the day to accomplish something, but also listen to your body. If you are tired, then rest, as mentioned, your body is fighting to get back to normal.

    Also, Matt mentioned something we all have to be aware of, our Thyroid levels. Each blood work should include having our TSH levels checked. My RO stated that it wasn't a matter of IF my thyroid would fail, but a matter of WHEN it would fail. My thyroid stopped working about the 5 year mark and I am on med's for it now.

    Thank you for your weekly reports, it helps everyone.

    My Best to You and Everyone Here

  • lornal
    lornal Member Posts: 428
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    fatigue

    For cancer round 1 - my fatigue lasted almost a year.

    For cancer round 2 - which was  2.5 years ago - it hasn't stopped and likely will not.  Forturnately, my company has a long term disability plan that allows me to work part time - and pays me some for the hours I don't work.  Great for my health - great for my company!

    Lorna 2007 & 2014

  • Bart T
    Bart T Member Posts: 62 Member
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    FATIGUE WILL BE OVER WHEN IT'S OVER

    Everybody is different, so it’s hard to guess. I was disappointed with the pace of my recovery. Except for my taste buds returning within the first few weeks after finishing radiation, everything else went slower than I had bargained for. My fatigue lasted about 6 or 7 weeks after I finished. That was also about the same time I stopped the narcotic pain meds, so some of it may have been related to the meds.

     Somewhere in the big scheme of things, fatigue may just be your body’s way of telling you to plant your **** on the sofa and take it easy for a while. I felt I had something to prove to myself by making a speedy recovery and getting back to my regular routine. Looking in the rear view mirror I realized my body will do what it wants to do when it wants to do it. You’ve been through a really tough fight, a bit beat up but not defeated. Give your body the rest it needs and don’t beat yourself up if things take longer than you figured they would. Keep telling yourself everything will get better, and it will, just not necessarily on your schedule. 

  • swopoe
    swopoe Member Posts: 492
    edited July 2016 #7
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    Before cancer, my husband was

    Before cancer, my husband was never a napper. He went back to work full time a week after he finished cancer treatment, but he was still tired. He had a private office, and would often take a nap each day at work. And he  would go to bed early too. Even for months afterward, he would still take naps and go to bed earlier than he used to. The treatment takes a lot out of you. He is 5.5 months out of treatment, and even now, I personally think he seems still more tired than he was before cancer. I think it just takes time.

    ETA: his thyroid is normal.

  • phrannie51
    phrannie51 Member Posts: 4,716
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    Like every other part of this

    disease....things improve by degrees...in other words S-L-O-W :).  I went back to work 6 weeks after my last chemo (I had an extra 9 weeks of chemo after rads/chemo was over).  I went back Oct. 15th, and started noticing that I was better in the SO tired department, by February.  I didn't come all the way tho, till June or so...where I could say I was back to normal. 

    p

  • fishmanpa
    fishmanpa Member Posts: 1,227 Member
    edited July 2016 #9
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    Everyone is Different

    At 3+ years out I still have fatigue. Nothing like the crushing fatigue in the immediate post treatment days but I just can't hang like I used to. I just accept it as part of the "new normal" along with all the other post treatment niggles and make sure I get plenty of sleep/rest. 

    Listen to your body and heal. Measure your progress in weeks, months and years and keep a positive attitude ;)

    Positive thoughts and prayers

    "T"

  • slk2015
    slk2015 Member Posts: 54
    edited July 2016 #10
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    Bart T said:

    FATIGUE WILL BE OVER WHEN IT'S OVER

    Everybody is different, so it’s hard to guess. I was disappointed with the pace of my recovery. Except for my taste buds returning within the first few weeks after finishing radiation, everything else went slower than I had bargained for. My fatigue lasted about 6 or 7 weeks after I finished. That was also about the same time I stopped the narcotic pain meds, so some of it may have been related to the meds.

     Somewhere in the big scheme of things, fatigue may just be your body’s way of telling you to plant your **** on the sofa and take it easy for a while. I felt I had something to prove to myself by making a speedy recovery and getting back to my regular routine. Looking in the rear view mirror I realized my body will do what it wants to do when it wants to do it. You’ve been through a really tough fight, a bit beat up but not defeated. Give your body the rest it needs and don’t beat yourself up if things take longer than you figured they would. Keep telling yourself everything will get better, and it will, just not necessarily on your schedule. 

    Over when it's over

    My cancer doctor said the same thing--it's over when it's over.  Sometimes it takes a very long time.  He said he couldn't give me an estimate because everyone is different.  While it's frustrating to not have any idea how long it will take, it does keep you from thinking you're somehow failing if you don't get better as fast as the estimate you were given.  Helps prevent unrealistic expectations.  

    It will pass and it may return later on.  I have multiple chronic illnesses.  One of the hardest things to learn was I have limitations.  The one thing I try to avoid is thinking if something cannot be completed all at once, there's no point in doing it.  Sometimes it takes 4 or 5 tries with a rest between them.  Never give up, even if the task takes much longer, if it needs to be done.  It's okay to rest and return later.

  • jb1952
    jb1952 Member Posts: 13
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    energy

    I am 11 months after radation .I am about 60% of  the  energy  I had before. I am am 63. i AM UP TO Walking 8 miles a week,I ride a bike about 36 miles a week ,And some days I am really tired ,this this about 1/2 of what I did before and I worked all day. That isn"t possible now. Good Luck John B

  • stevenpepe
    stevenpepe Member Posts: 234
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    jb1952 said:

    energy

    I am 11 months after radation .I am about 60% of  the  energy  I had before. I am am 63. i AM UP TO Walking 8 miles a week,I ride a bike about 36 miles a week ,And some days I am really tired ,this this about 1/2 of what I did before and I worked all day. That isn"t possible now. Good Luck John B

    Still a mighty impressive

    Still a mighty impressive regimen you have going. Thank you.

  • Barbaraek
    Barbaraek Member Posts: 626
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    Interesting to hear all the different answers here

    My husband works long and hard...but he is B-E-A-T when he gets home. He used to have boundless energy to go along with an unlimited apetite. Now he has neither. Eating is a chore and his energy has its' ups and downs. All part of adjusting to the new normal. I suspect, Steve you will gradually start to feel better over the next few months. You are still early out of treatment.

    Barbara

     

  • the_wife
    the_wife Member Posts: 184
    edited July 2016 #14
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    Patience is a virtue

    Steve, you're just a babe ! It's still very early in the game for you - less than a week! Oh my goodness, yes - park yourself on the couch and rest as much as you can. This early on, you really need to give yourself a huge break and be kind to your poor body.

    There is no easy answer as you can see by the variety of them here. My hubby is still feeling the effects at 10 months out, He got better very very s-l-o-w-l-y. it's a very individual thing and so as we've all learned here - share, but don't compare. My hubby didn't go back to work for several months after treatment and then started back just part time. He still is not back to work full time. It was really really rough on him. Some people are able to recover more quickly than others, but as survivors, we are always tired!  

    During his recovery, I was always logging on to ask "When does ___ start getting better"? I was sooooo anxious for that magic timeline that never seemed to happen for us. Ever hear of the expression "a watched pot never boils"? It's so true!

    Happy Healing!

  • LiseA
    LiseA Member Posts: 266
    edited July 2016 #15
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    Based on all I've read, I

    Based on all I've read, I have prepared myself for fatigue and will do whatever it takes to heal this poor body of mine. I shall henceforth be known as the Netflix queen!  When I feel up to it, I will get back to painting. I have all my canvasses waiting on me.  I also read that some light exercises can actually help with fatigue. Since I'm not even a full week out from rads, I'm not rushing into anything.  Relax and try to enjoy your down time. I swear men are more impatient than women, lol 

  • The arn man
    The arn man Member Posts: 9
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    Good Luck

    For me the fatigue is mine to keep. 4+ years post treatment.

    At some point your not quite satisfied just being alive. A little better quality of life couldn't hurt.

  • Sandraw
    Sandraw Member Posts: 40
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    Fatigue

    Hi everyone, my first post but have been reading them since started 6 weeks radiation treatments (33) for NPC stage III T1N2M0 in Feb. Finished that in March along with weekly cisplatin chemo,   in April and May had 96 hour cisplatin with 5fu was unable to tolerate the recommended 3rd cisplatin 5fu as I had too many toxicities, I.e. extreme mucositis, 20% weight loss with peg, very low red, white cells and hemoglobin had 2 blood transfusions.  I had pet scan Monday July 18, results yesterday Friday 22,  NED!!!!!!!!!  :)  asked oncologist yesterday about fatigue he said it could take months at least.  He signed my work short term disability paperwork and told me to take it easy, stay in remission, follow up with ent and call him if I need him.  That's that. Seems so surreal that I've made it through that torture, swallowing is already improving, getting peg out Monday.  Thank you everyone for your stories, I was too weak to try to correct  auto correct on my kindle to post, lol, but not to read, you have all helped immensely.  Good luck and God bless.

  • LiseA
    LiseA Member Posts: 266
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    Two weeks out, and it depends

    Two weeks out, and it depends on how much sleep I get the night before, but I've been able to exercise moderately and my fatigue isn't as suffocating.  I read a lot about fatigue and exercise, so this is the route I'm going.  Plant to hit the gym in two weeks time. Meanwhile, I'm making over 10K just walking in my house, up and down the stairs at intervals during the day, and I have exercise bands and a ball I'm using for other light stuff.  I feel the difference already.