I refused a trial!

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Cucu me
Cucu me Member Posts: 213 Member

Yesterday I supposed to start a new treatment, immune therapy with Temsirolimus,

but the Dr. said they have not gotten approval from the insurance yet and offered me the trial with

Lenvatinib(for tyroid) and Pembrolizumab(for melanoma).

I agreed, but then at home when I read the info I got so scared....

On Monday I'll ask for Temsirolimus and we will see.

For Metformin he said there is no enough data, as for naturopathy, suplememnts, etc.

Have anyone heard about Temsirolimus?

Thanks sisters

Comments

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,811 Member
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    Hey Cucu - You probably have

    Hey Cucu - You probably have already checked the web but I wanted to share this with you just in case you didn't see it.

    http://chemocare.com/chemotherapy/drug-info/Temsirolimus.aspx

    The most likely side effects sound like they may be easier on you than our frontline chemo was.  I hope that is the case for you!

    Also, glad to see that you have a doctor in NY? And, it sure sounds like they are looking out for you by working on multiple options when insurance doesn't want to comply. I hope you can push your insurance to approve your treatment asap. Always amazes me when they drag their feet with our lives in the balance!

    I hope you are staying strong and please know that we are right there with you!

    Love and Hugs,

    Cindi

  • Cucu me
    Cucu me Member Posts: 213 Member
    Options

    Hey Cucu - You probably have

    Hey Cucu - You probably have already checked the web but I wanted to share this with you just in case you didn't see it.

    http://chemocare.com/chemotherapy/drug-info/Temsirolimus.aspx

    The most likely side effects sound like they may be easier on you than our frontline chemo was.  I hope that is the case for you!

    Also, glad to see that you have a doctor in NY? And, it sure sounds like they are looking out for you by working on multiple options when insurance doesn't want to comply. I hope you can push your insurance to approve your treatment asap. Always amazes me when they drag their feet with our lives in the balance!

    I hope you are staying strong and please know that we are right there with you!

    Love and Hugs,

    Cindi

    Thanks for the replay

    Cindi

    Thank you