Primary probably found... Pyriform Sinus Anyone have this?

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kdot2003
kdot2003 Member Posts: 143
in Head and Neck Cancer #1

Hi me again.  I went to CTCA and the ENT there found a tumour in my left Pyriform Sinus.  That is the same side my positive lymph node was on.  He showed my husband and I on the endoscope.  I have my PET scan Mon 10/12 and hopefully that is what glows.  So its at best Stage III.  Who knows the involvement.  They are scheduling a triple endoscopy with biopsies for next week.  I meet Radiation and Medical Oncology Tues too.  Has anyone had this?  I know its similar to the rest of them probably.  The ENT said probable chemo + rad etc.  Just wondered.  I guess this is a rare cancer.  I don't smoke ...barely drink.  TIA  Karen

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  • wmc
    wmc Member Posts: 1,804
    #2
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    Sorry to hear that KDPT

    The good news is they found the primary. Others have had Hypopharyngeal cancers which Pyriform Sinus is part of the same. It is in the supraglottic region. My tumor was in the supraglottic and laying on my vocal cords. Yours is just off to the side in the sinus there. As you mentioned you were not a smoker or drinker. From what I have found ot is there is five ways to get SCC. #1 is smoking, #2 is Heavy drinking, #3 is HPV+, #4 is acid reflux, and #5 is you just did, no reason. You are most likely #5 where I am #1 &#4.

    The main thing is you have doctors you trust and now you have to believe you will beat this. You will be on one heck of a ride. So just take one day at a time. When you see the doctors don't go alone, two sets of ears are better, and bring someone who could drive you. You will have many questions so write them down with space to write answers. Just hand the questions to the doctor, mine wrote down the answers as he explained. If you have lost weight already you need to put on some extra pounds which will help.

    I will keep you in my thoughts and prayers. Never give up and remember you are not alone.......

    Bill

  • DarcyS
    DarcyS Member Posts: 81 Member
    #3
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    My husband had the same

    My husband had the same diagnosis in the right pyriform sinus in May 2012.  At the time he was 55 and a non smoker.  He has always exercised and had a very healthy diet.  He had his treatment at the University of Chicago and we would highly recommend them to anyone. The staff was amazing, results quickly given, and they are a teaching hospital with a tumor board.   His diagnosis was T1N2bM0.  He had 6 weeks of out patient chemotherapy with Taxol, cisplatin, ceteximaub and was part of a study with everolimus.  Next, in patient radiation with imrt(50 sessions)  twice a day and concurrent 24/7 chemotherapy with taxol, 5fu and hydrea.  5 days inpatient with 9 days home for a total of 10 weeks.  Oct. 19, 2012 was his last treatment and he has been NED since.  

    This is my first post, but I have been reading and learning from everyone here for about 2 1/2 years.  This is an excellent site filled with caring individuals who will be there for you every step of the way.

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