TCC kidney removed

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Kathy from Oregon
Kathy from Oregon Member Posts: 1
in Bladder Cancer #1

Just curious if anyone had similar to my case.  Tumor was small at just under 3cc and after removal was low grade and non-invasive.  It was located in the ureter so I lost a kidney.  Now every 3 months the lovely bladder scope.  Nearly a year post surgery so several scopes have been done with only one scare that proved to not be cancer.  So far I have had the perfect story if there is such a thing yet I do feel like there is a hammer waiting to fall, it has just been "too easy."  I am NOT walking in doom and gloom, don't misuderstand me.  I am nearly always upbeat and positive, just this little whisper of doubt remains.  I am so very grateful that all has been so good so far.  I recovered without much difficulty from surgery as well and the remaining kidney is doing a great job!  I have read enough to know that TCC is a persistent cancer and does like to make repeat performances and often does.  Anyone else out there with similar to mine?   

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  • red750
    red750 Member Posts: 10
    #2
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    Hi Kathy,If you read my post

    Hi Kathy,

    If you read my post "New Member from Australia" in May, you will see that I also had TCC and had very few problems with the operation and following chemo. When I hear the horror stories from some other survivors, I wonder how I managed to get through so easily. So apparently it is not so uncommon for us to feel this way if things have gone well. We should be thankful for it.

    As an aside, I saw my oncologist this morning for my regular 3 monthly checkup and all blood test results etc. were fine. Next checkup December. I know we have to be vigilant, but I am just happy that we can go on with life pretty much as usual. Our risk of a return of the TCC is probably a bit higher than the chances of getting it in the first place, but we shouldn't let worrying about it dominate our lives.

    Peter.

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