Please Help on Genetic Testing

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Annabelle41415
Annabelle41415 Member Posts: 6,742 Member
edited December 2014 in Colorectal Cancer #1

Can someone please give me the name of the place that does genetic testing.  I'm sure that it is only one place in America that is a reputable place and most testing is done there but can't remember the name. I've tried a search on the internet and it doesn't really give me a name for testing only places that take questions or non-information. I'm trying to find out for my brother as his biopsy was sent there and they never asked how long it would take. After three weeks they still don't know what type of cancer he has because he has it in so many places. I'm just thinking they have to know what type they are fighting if they are to give him the right medication.  He has had diarrhea for seven days and I'm frustrated that they aren't asking these questions.  If anyone knows, please let me know. 

He's not doing well.  Three weeks out of diagnosis he is in the hospital yet again for the third time. 

Your input is so valuable to me and I'm just searching for answers.

Hugs!  Kim

Comments

  • lp1964
    lp1964 Member Posts: 1,239 Member
    #2
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    Dear Kim,

    Jeff (janderson64) just had the genetic test if I remember well. I'm sure he will get back yo you soon.

    Laz

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #3
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    lp1964 said:

    Dear Kim,

    Jeff (janderson64) just had the genetic test if I remember well. I'm sure he will get back yo you soon.

    Laz

    Thanks

    Thanks for your input.  I'm just so frustrated right now that my brother or SIL aren't asking questions.  Your response is a good start.  Pray you are doing well and love your new picture Laughing

     

    Kim

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    #4
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    Is this the one?

    http://www.biotheranostics.com/healthcare-professionals/hcp/ctid/

     

    Their web site says 5 days from receipt should have report faxed to doctor followed by mailed copy.

    There may be more than one place, but I would think that the time frame would be close to the same for a response.

    Marie who loves kitties

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #5
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    My onc used Foundation One.

    My onc used Foundation One. http://foundationone.com/. I was very pleased with the testing. They tested for over 312 mutations for all types of cancers and several pathways. They will even give treatment options targeted at the mutations found.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #6
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    Thank you all

    That gives me someplace to start.  I'll talk to my SIL and give her the names you have listed.  She seemed to think it had a One in it but was hoping after this long they would have had the report back.  Thanks for the info - you all are great.

    Kim

  • JanJan63
    JanJan63 Member Posts: 2,478 Member
    #7
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    Annabelle41415 said:

    Thank you all

    That gives me someplace to start.  I'll talk to my SIL and give her the names you have listed.  She seemed to think it had a One in it but was hoping after this long they would have had the report back.  Thanks for the info - you all are great.

    Kim

    This is interesting. I'd love

    This is interesting. I'd love to get this done!

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #8
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    I wanted to mention

    that my cancer was extremely hard to type.  The folks here at the University of WA couldn't get it figured out, so my samples were sent to MA General Hospital, in Boston.  According to my onc, they have the best pathologist in the world.  This is different from genetic testing, but it was how I got the correct dx, so maybe this is something they could do for your brother?

    My sister's cancer was a CUP (cancer of unknown primary), and her samples were never sent out for further testing. I wish they would have done it.  Might not have changed the outcome but you never know.

    Hang in there.

     

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    #9
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    Annabelle41415 said:

    Thank you all

    That gives me someplace to start.  I'll talk to my SIL and give her the names you have listed.  She seemed to think it had a One in it but was hoping after this long they would have had the report back.  Thanks for the info - you all are great.

    Kim

    I think it took about 2 to 3

    I think it took about 2 to 3 weeks to get the report back plus the time it took to get the hospital to release the tumor sample to them.

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #10
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    annalexandria said:

    I wanted to mention

    that my cancer was extremely hard to type.  The folks here at the University of WA couldn't get it figured out, so my samples were sent to MA General Hospital, in Boston.  According to my onc, they have the best pathologist in the world.  This is different from genetic testing, but it was how I got the correct dx, so maybe this is something they could do for your brother?

    My sister's cancer was a CUP (cancer of unknown primary), and her samples were never sent out for further testing. I wish they would have done it.  Might not have changed the outcome but you never know.

    Hang in there.

     

    Kim,
    I had had extensive

    Kim,

    I had had extensive genetic testing done at Massachusetts General Hospital in Boston and I was very satisfied with the process and the follow up.

    Prayers that your brother improves soon.

    CM

     

     

  • Helen321
    Helen321 Member Posts: 1,459 Member
    #11
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    Sloan did my testing so I'll

    Sloan did my testing so I'll ask them where they go through to get it done.  I was able to do the bloodwork there and they sent it out.  There was a timeframe.  I forget what what was but I had to do all of my blood draws, forms and testing within 30 days for some reason.

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