Very confused by a post written by Gypsy1959

Thank you for your comments. I did get very upset, I am a very sensitive. And to think that I may have upset somebody, I would be devastated, especially in here. I tried to locate her but comes up as error.

I really did try to help, she said she was fine 7 days into treatment. I really wanted her to be prepared , because by week 4 or 5 it does get harder and I really wanted her to know that. Wasnt trying to be hurtful , negative or nasty. Was really blown away by her last post.

I would really go out of my way to make sure that those following in our footsteps got as much info as possible. I know how damn scarey it was for me and a blubbering mess at times. I wanted others to know what to expect if it happened to them.

I dont like knowing there are people out there going this alone and not knowing whats in front of them. I hope she comes back.

Thank you,

Robyn

Katie10485 said:

it's ok

I saw your posts and I don't think you said anything inappropriate or wrong.  You were looking out for her and offering advice and your experience.  I would not worry about it as I don't think anyone else here perceived your posts negatively.  

Thank you so much Katie :-)

katenorwood said:

Hey Robyn !

I'm sorry you got upset over this first of all.  Reading into another's thoughts and feelings while their dealing with this beast is impossible.  So please try to put it out of your thoughts.  We all have different way's of coping, and also because we are each indivduals we also have different reactions to tx's.  None of us are experts on how another will react to them.  We can only relate how we traveled the trip, and what helped us through.  Please continue to share, and I hope Gypsy1959 finds a safe path to get through this crappy trip.  Hugs !  Katie 

You are so right calling it a crappy trip, I do hope she is going to be ok. I hope she comes back for support. 

Thank you :-)

Thanks everyone, I just hope she comes back when she needs support.

Robyn

jtl said:

Feel good site

I recall when I first started posting on this site that someone had said that this was more of a "feel good" site than some that were more "hard hitting".  I also remember when I was having what I considered the mother of all sore throats I posted that I could only dream of having a nice tasty steak.  Someone replied that they were going to do just that and went into some detail about how they were preparing it and the expectations.  I thought that was unnecessary but it did not offend me. 

I would much rather know what to expect and prepare for it, in fact I was a little perturbed that my rad onc did not tell me that the rad effects would get worse for a month or two after the last treatment because I was mentally planning for immediate relief and a normal life.  Having said all of that.  I love spicy food and missed it for quite a while.  In fact there was a time where just about everything I tried to eat was like swallowing razor blades.  Well, I am pleased to report that within a couple of months post rads I could start eating mild spicey foods and within 6 months I could eat the hottest of hot.  Someone recently asked me if food tasted the same.  I honestly don't know if it tastes the same as pre rads because I lost if for so long, but it tastes good enough for me.  Fwiw, chocolate was the last sensation to come back.

Gee, thank you Jul.  So glad to hear that you too are eating spice.  Still waiting for that day sooo badly. I can now eat tomatoes which I couldn't earlier. I too really believed there would be instant relief after treatment finished. But on the very last day of treatment I dragged myself into the nurses quarters as they I was not well and went for my final assessment of nurses. They called down the Dr who told me t go to emergency and wait for a bed, was being put in hospital. Didn't get to go home on last day of treatment. I had to text my husband. Was in hospital 1 week with my feeding tube, no appetite and during that week given 2 blood transfusions. Was seeing the yummiest foods go by, couldn't touch it, couldn't for a few more months. I really believed once treatment finished I would improve almost straight away. Whilst in hospital it was a different Dr who told me that it will still get a little worse before it gets better. It's been about 4 1/2 months now and I'm almost feeling like the person I once was, except I have to be careful when eating. Seriously nearly choked the other night, frightened the hell out of me.

looking forward to spicey days I really hope.

thanks,

Robyn