Have Not Forgotten You, My Friends

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wolfen
wolfen Member Posts: 1,324 Member
in Head and Neck Cancer #1

Hope all of you are still beating the crummy beast. Please be strong, but gentle with yourselves.

I have not left Kentucky yet as I have been in the hospita for 6 days with a mysterious lung infection. Started 2 weeks ago with sore throat which progressed to acute bronchitis & despite meds became pneumonia. A CT was negative for blood clots in lungs. Waiting for results of Bronc biopsy checking for bacteria & fungus. A ton of mucus was cleaned from lungs. Glad I was asleep. That helped the breathing a lot. The lung doc does not know what is wrong with me. Kentucky is filled with many pollens & extreme humidity. Was breathing hard even sitting down, but seems to be improving. Strangest thing is the froth that I keep spitting out. Mouth seems to fill up with it. Have also been blessed with the Thrush bonus as so many of you have. My BP has become erratic to the point of 200/110 at which point I get extra meds. Have had bad situation with Ron at this hospital in 2008 where they wanted to cut off his hand. Will say, in my case, all are bending over backward  to solve the probem. Was offered rehab center when they figure this out, but said I just want to go to the house. Only was staying to assist my SIL with some things & have added another burden for him, although he swears not.

So waiting(not patiently) for a diagnosis & recovery plan. I'm afraid I don't make a good patient as my hospital experience has all been on the caregiver side.

I still contend to be a tough ol' broad, but know I am worn out after so many years of worrying about my baby & Ron. Cannot bouce back real fast.

My heart is broken once again for my beautiful daughter  & Ron. The pain for each is diferent & cannot control the many thoughts & feelings, Have little melt downs as I know this time I return home, I will be saying goodbye to a grave only & returning to one.

Just rattling on. Somehow I will climb this wall as I have with many others.

Please take care.

Luv,

Wolfen

Comments

  • CivilMatt
    CivilMatt Member Posts: 4,722 Member
    #2
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    friend

    Wolfen,

    I have a little magic mouth wash I will share with you.  Works good!

    Keep healing, I figured you for a tough ol’ broad; it is your big generous heart that causes you pain.

    Best always,

    Matt

  • Ladylacy
    Ladylacy Member Posts: 773 Member
    #3
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    You

    Prayers for you for a speedy recovery.  Your plate has been full for a long time and it has caught up with you.  Caregiving is hard both physically and mentally and you have been thru a lot in the last few years.  Hospital stays are no fun whether you are the patient or the caregiver. 

    Wishing you a speedy recovery and return to your home soon.

    Sharon

  • Hondo
    Hondo Member Posts: 6,636 Member
    #4
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    Overworked

    With all you have been through in the last few years your body is so overworked is it starting to show. I know it is hard but it is time for you to get some rest, being a caretaker can take its toll on your body very fast. You have been so strong like a rock through your husband’s treatment, then to have your daughter right behind him; I can’t imagine the amount of stress you are under. I will keep you in all my prayers.

    Tim Hondo  

  • debbiejeanne
    debbiejeanne Member Posts: 3,102 Member
    #5
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    wow, Karen, it is time for

    wow, Karen, it is time for you to catch a break.  I'm sorry you are so sick.  i pray the docs figure it all out, make you better and let you return home soon.  you are definitly one of the strongest people i know.  i don't know how you do it but i'm glad you do.  your body has been thru so much both physically and mentally, that you turly need some serious rest.  I pray God will heal you and then bless you with the rest you so need and deserve.  We are all keeping you in our thoughts and prayers.  Sending you cyber hugs so you know you are loved by this family also.  God bless you, Karen.  Please let us know when you are better and get out of the hospital.

    God bless you,

    dj

  • TracyLynn72
    TracyLynn72 Member Posts: 839
    #6
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    Hurts my heart

    to hear that you've been sick.  You have endured SO much, that I think your body is tired and you have to be emotionally exhausted.  I will keep you in my prayers and hope that you are able to return home soon.  Again, I am truly sorry for everything you've had to go through.  God gives his hardest battles to his toughest warriors.  YOU, are a warrior.

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #7
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    lifting prayers

    Froth is a worrisome development.  What would you rate this hospital overall?  Don't hesitate to transfer if you can't get a confirmed diagnosis.

  • wolfen
    wolfen Member Posts: 1,324 Member
    #8
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    Noellesmom said:

    lifting prayers

    Froth is a worrisome development.  What would you rate this hospital overall?  Don't hesitate to transfer if you can't get a confirmed diagnosis.

    Strange

    After tests, it was determined that I have a fungal growth in my lungs called Aspergillous(sp?). It is caused by mold, spores, dust, etc. Good ol' Kentucky fresh air. People can usually fight it off readily, but because I am so run down, my immune system is compromised. On some steroids & extra BP meds for a few days & Thrush med. Thanks, Matt for the offer. Actually have Magic Mouthwash which is helping. Weak & tired & stairs are not my friend right now. Will just have to ride this out with lots of rest & try for home in 3 weeks.

    Noellesmom, the froth is clearing up some. Wonder if it's coming from the Thrush. Doc didn't seem alarmed. I don't think this hospital is well thought of, but in this rural area, it's all they have. Nearest one is 40 miles away. Will be seeing my primmary when I get back home.

    Luv,

    Wolfen

  • katenorwood
    katenorwood Member Posts: 1,912
    #9
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    wolfen said:

    Strange

    After tests, it was determined that I have a fungal growth in my lungs called Aspergillous(sp?). It is caused by mold, spores, dust, etc. Good ol' Kentucky fresh air. People can usually fight it off readily, but because I am so run down, my immune system is compromised. On some steroids & extra BP meds for a few days & Thrush med. Thanks, Matt for the offer. Actually have Magic Mouthwash which is helping. Weak & tired & stairs are not my friend right now. Will just have to ride this out with lots of rest & try for home in 3 weeks.

    Noellesmom, the froth is clearing up some. Wonder if it's coming from the Thrush. Doc didn't seem alarmed. I don't think this hospital is well thought of, but in this rural area, it's all they have. Nearest one is 40 miles away. Will be seeing my primmary when I get back home.

    Luv,

    Wolfen

    You !

    Wolfen,

    I'm glad they figured the issues out with the breathing.  Let them take care of you until you can make it home.  You've been running on adreniline for way too long.  (spelling is a bit off sorry)  Know that we are all here for you, and only wanting the best for our special lady !  Please let us know when you do get home.  Hugs sent !  Katie

  • Jan Trinks
    Jan Trinks Member Posts: 477
    #10
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    Praying for you

    Wolfen:

     

    Prayers for speedy recovery.  I know how tough it is when faced with losing loved ones.  My husband passed on 8/21/10 and then my middle oldest brother on 10/16/10 with massive hemorrhage to the brain.  Between that and Charlie's cancer recurrence was not a good time!  Hope things get a little easier to bear for you quickly.  God Bless!

     

    Jan (Basketcase)

  • jim and i
    jim and i Member Posts: 1,788 Member
    #11
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    So sorry to hear you are ill.

    So sorry to hear you are ill. Too much stress has taken its toll on your body. I pray you are healed quickly and that your arrival home is safe. I can't imagine losing one of my kids so I will just say I am here if you need to talk and I will keep you in my prayers.

    My God comfort you

    Debbie

  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #12
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    wolfen said:

    Strange

    After tests, it was determined that I have a fungal growth in my lungs called Aspergillous(sp?). It is caused by mold, spores, dust, etc. Good ol' Kentucky fresh air. People can usually fight it off readily, but because I am so run down, my immune system is compromised. On some steroids & extra BP meds for a few days & Thrush med. Thanks, Matt for the offer. Actually have Magic Mouthwash which is helping. Weak & tired & stairs are not my friend right now. Will just have to ride this out with lots of rest & try for home in 3 weeks.

    Noellesmom, the froth is clearing up some. Wonder if it's coming from the Thrush. Doc didn't seem alarmed. I don't think this hospital is well thought of, but in this rural area, it's all they have. Nearest one is 40 miles away. Will be seeing my primmary when I get back home.

    Luv,

    Wolfen

    follow up with primary

    Wolfen, be sure you see your primary promptly.  Aspergillosis is aggressive and you must be, too.

    Hugs.

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