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Anyone want to share their experience with chemoembolization of the liver?

UncleBuddy
Posts: 635
Joined: Aug 2013

Hi guys! We went to talk to the onc today to get my brothers CT and MRI results. She said there are 2 new tiny nodules on the lungs, but she said the radiologist said she thinks they may have been there before but were too smalll to see on the last scan. The liver tumor, she explained, has kind of shriveled. She said she'd like us to talk to a liver doctor to get her opinion as to whether my brother would be a good candidate for chemo embolization. She is worried about his clotting issues because he had been hospitalized for clots to the lungs late last year. She still feels he needs another opinion to see if he could get this procedure done. Is there anyone who has had it done that would mind sharing their experience? Thanks.

According to his onc, he is stable and she is going to continue him on this low does chemo to give him quality of life. She gave him the option to take a break if he needs it, but my brother wants to keep going. I tell you, my brother is my hero! He is such a warrior! My mom would be so proud of him! I still hold hope for a miracle and keep praying for a cure.

Hugs to all of you!

Lin

UncleBuddy
Posts: 635
Joined: Aug 2013

I am looking to find out how long the procedure took, how many days you were in the hospital, how long did it take to recover and did it get rid of the cancer. My brother has health issues that are making me overly cautious about him having this procedure. He gets blood clots easily, so if he has to stop the Xarelto, I fear he can get clots and need hospitalization again. Please share your experiences with us. Thanks!

Lin

Trubrit's picture
Trubrit
Posts: 1489
Joined: Jan 2013

I am sure all will go well with the treatment. I have nothing to offer but my prayers and best wishes, but I know someone here will reply.

Your brother is such a trooper. 

SUE/TRU

UncleBuddy
Posts: 635
Joined: Aug 2013

You are always so encouraging.  I really hope the doctors can help you become NED again. Good luck.

Lin

serenity101's picture
serenity101
Posts: 81
Joined: May 2013

I just had this done on Friday and went home on Saturday. The procedure itself was about an hour and a half, and they use twilight sedation because they have to have you follow some breathing instructions during the procedure. They used chemo infused beads. My doctor was able to use a titanium clip kind of thing to close the incision in my femoral artery, so I only had to lay flat on my back for 2 hours. Otherwise it could have been as long as 8 hours.

I felt fine when I went home, but developed pain and a higher than expected temperature after a couple of days at home. I had to go back to the hospital for 2 days while they checked for infections, abcesses, blot clots, and such. I didn't have any of those, the report says it was probably "post chemoembolization syndrome; with her fevers and pain likely stemming from postprocedural inflammation within the liver." They had given me a pretty aggressive treatment due to my heavy tumor load, so that my have played a role in the higher fever.

The fever went away on its own. The pain is well contolled by the pain meds they gave me. 

I'm not sure when I'll know how it is doing against the cancer. They are planning a second treatment in about a month.

UncleBuddy
Posts: 635
Joined: Aug 2013

My worry is clotting. My brother has had clotting issues in the past. He was hospitalized with clots in the lungs. Right now they have him on Xarelto to control the clots, but coming off the clotting medication scares me. He has been through so much already. I'd like to find out as much as I can before I drive all the way down there to meet the doctor and get his hopes up. I may ask his onc to forward his file to the liver doctor ahead of time to make sure she'll even consider his case.

It sounds like you had a tough time. Do you have cancer anywhere else? My brother has several nodules on the lungs as well. I forget whether it's 7 or 8, but I think it may be 8. I want him to have quality of life, but I also would like him to try what he can in hopes of a possible cure. Of course this is up to my brother. He told me today his wish is to live past 55, he just turned 50 in June.

Thanks for the info.

Lin

PS Good luck. I hope you become NED!

Nana b's picture
Nana b
Posts: 2938
Joined: May 2009

I had it done a little over a month ago. I was down one week, tired and sore. Second week I felt a lot better. Procedure took 2.5 hours, with an over night stay. No problems. My CEA went done 500 points in the first month. Next scan is in October. The procedure can be done multiple times. I believe lesion has to be under 5 ct 

 

YouTube chemoemobilzation Stanford and cyberknife Stanford. Good videos. 

UncleBuddy
Posts: 635
Joined: Aug 2013

My brother's tumor is 3cm. He certainly has a lot to think about. I am a little nervous about him doing this because of his clotting issues. We'll have to see what the doctor says. We'll need more answers from the doctors before he can make a decision.

Again, thank you for your input.

Lin

UncleBuddy
Posts: 635
Joined: Aug 2013

I just checked out those videos on youtube. Wow, I didn't realize how much great information you can watch there. I will see my brother's oncologist on Thursday, so we'll have a chat then to discuss this a little more. The first thing I am going to ask her to do for us is to send his file to her so she can decided BEFORE we make the trip whether it's even a possibility to do it. 

Anyway, thanks again.

Take good care of yourself!

Lin

Nana b's picture
Nana b
Posts: 2938
Joined: May 2009

That's great!  Yes, lots of information.   You should also ask if he can take milk thistle and Turmeric. With BioPerine. 

UncleBuddy
Posts: 635
Joined: Aug 2013

Is that in pill form? We go to his onc tomorrow. I will see what she says.

Lin

Nana b's picture
Nana b
Posts: 2938
Joined: May 2009

Yes, herb capsules you see at health stores or drug stores. 

Phil64's picture
Phil64
Posts: 476
Joined: Apr 2012

Wondering what others think?  I did a quick google and found the following which incorporates all three supplements you recommended... 

  • milk thistle

  • Turmeric

  • BioPerine

http://www.onelifeusa.com/better_vitamin/liver_health_project2.html

 

 

Nana b's picture
Nana b
Posts: 2938
Joined: May 2009

good article on turmeric with BioPerine 

 

http://www.whfoods.com/genpage.php?tname=foodspice&dbid=78

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