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Ewings Sarcoma

Kendradaniel
Posts: 3
Joined: Jun 2014

My brother is 22 years old diagosed in December with metastasis Ewings Sarcoma in his right pelvis (bone and soft tissue) and bilateral lungs.  He has completed 6 rounds of VIDE and 1 round of VIA.  After completing the VIDE in April his scans showed he had two remaining tumors in his lungs.  They decided to remove his lower right lobe which contained the tumors at the end of May.  Today he had a PET scan and MRI before he continued on with the 7 cycles VIA.  We were shocked to find out that 4 nodules have reappeared in his left lung and the brightness in his pelvis has increased from a 4 to a 6.  His doctor informed us that she may not be able to 'cure' him.  Can you please let me know of any clinical trials or possible opitions?!?!?  We are willing to travel anywhere.  Thanks in advance for all of you help.

About13monkeys's picture
About13monkeys
Posts: 2
Joined: Jul 2015

I know this is an old thread but if you are still there let me know!

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