May 30, 2014 - 8:14 pm
My mother was diagnosed with UPSC stage 3c in august of 2013. She had 6 rounds of chemo and then radiation. By the end of radiation treatments (March 2014) she started to complain of neckaches. She put it off thinking that she would wait until her radiation was over to see a chiropractor. The neckache continued after radiation so she went to her chiro and adjustments were not working. In the meantime she saw her oncologist in April 2013 and he told her that she was in remission. We were elated with the news. At that appointment, the onocologist ordered a cat scan and told her to wait for a call to confirm her appt. She never got a call. Three weeks pass and she went to her family dr to have her neck looked at. The dr took an xray which showed a mass on her spine and a fracture. Dr sent the X-ray to a neurologist he ordered a cat scan. Cat scan showed tumor on her spine, spots on her liver and pelvic lymph nodes. The neurologist contacted her radiologist and he ordered a PET. The results confirmed cancer had MET to all three locations. Oncologist was made aware of the results. Oncologist office called to make an appointment 5 weeks after PET results!!! She is starting radiation on the tumor on her spine on Monday but what about the lymph nodes and liver??? Since last week a hard lump has been growing from her abdomin and is getting larger everyday. The radiologist said it is her liver. I feel like we are losing precious time.
1st question: Should we be searching for a new oncologist??
2nd question: What should we be doing?? We feel lost on a path we should take, questions we should be asking, what we should be expecting?
Please, any advice would be so helpful so incredibly helpful!