Getting Ready for Chemo/Radiation

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CammieS
CammieS Member Posts: 43

My husband's port has been placed and he's mostly back to normal. He's been a trooper; having a long weekend to rest and recover was perfect for healing.

We're almost done with doctor visits before treatment begins -- just one more with the radiologist to do the CT scan to get measurements before radiation begins.

It feels wrong to look forward to a "normal" schedule of Oncologist and new chemo cartridge on Mondays and radiation Monday-Friday. Appointments will be somewhat predictable again.

I keep hearing that the first few weeks will be normal for him, but not from people who've actually received treatment. How does 5-FU affect tastes, life, etc.? When does nausea start being an issue?

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  • Trubrit
    Trubrit Member Posts: 5,796 Member
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    Nausea, whats that?

    I never did suffer from nausea, so it may not be a problem for your husband either. Some people do, some people don't, and there are meds they give you that work well, espeically if you've only got mild nausea. 

    It really is good to have a regular schedule, and to be working toward ridding yourself of the beast within. 

    I did the 5FU along with FOLFOX so I couldn't tell you what side effects were for which chemo. I do know that I was REALLY cold during my 5FU Radiation regime. I was also really cold duing FOLFOX and 5FU. 

    Make sure you have a good supply of creams for hubby's botty. If he is being radiated down to the anus, then he's going to  need something soothing down there (not to be used before you go to radiation appointment). I used a slew of different creams and gels until I figued what worked for me. 

    Good luck, and keep us posted. 

  • danker
    danker Member Posts: 1,276 Member
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    chemo-rd

    I too had 5 weeks of radiation M-F, with simutaneous chemo pump  giving me fu5 24/7.  Never did have nausea, but developed diarrhea on week 3-4-5-6.  Controlled with LOMOTIL.  It's a bumpy ride,but definately doable.  Good luck to you both!!!  Radia gel from wallmart contained the bun burn.

  • CammieS
    CammieS Member Posts: 43
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    Trubrit said:

    Nausea, whats that?

    I never did suffer from nausea, so it may not be a problem for your husband either. Some people do, some people don't, and there are meds they give you that work well, espeically if you've only got mild nausea. 

    It really is good to have a regular schedule, and to be working toward ridding yourself of the beast within. 

    I did the 5FU along with FOLFOX so I couldn't tell you what side effects were for which chemo. I do know that I was REALLY cold during my 5FU Radiation regime. I was also really cold duing FOLFOX and 5FU. 

    Make sure you have a good supply of creams for hubby's botty. If he is being radiated down to the anus, then he's going to  need something soothing down there (not to be used before you go to radiation appointment). I used a slew of different creams and gels until I figued what worked for me. 

    Good luck, and keep us posted. 

    Creams

    Thanks!

    He hasn't been given any prescriptions, yet, but we have a Aquaphor, Cetaphil and Eucerin. Do you remember your favorites?

  • CammieS
    CammieS Member Posts: 43
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    danker said:

    chemo-rd

    I too had 5 weeks of radiation M-F, with simutaneous chemo pump  giving me fu5 24/7.  Never did have nausea, but developed diarrhea on week 3-4-5-6.  Controlled with LOMOTIL.  It's a bumpy ride,but definately doable.  Good luck to you both!!!  Radia gel from wallmart contained the bun burn.

    I think it's time for me...

    I think it's time for me to find a local Walmart and get the gel. I'll also check my usual Target. 

    Diarrhea doesn't sound fun -- I'll also make sure to stock soft, gentle tissue. :-)

  • Trubrit
    Trubrit Member Posts: 5,796 Member
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    CammieS said:

    I think it's time for me...

    I think it's time for me to find a local Walmart and get the gel. I'll also check my usual Target. 

    Diarrhea doesn't sound fun -- I'll also make sure to stock soft, gentle tissue. :-)

    Amazon.com

    Because I live in the rurals, so no big name pharmacies, I got most of my products from Amazon.com. Just an idea.

    Also, I know it might sound funky, scary and your man may not like it, but I couldn't have survived without my Depends. They saved me a whole lotta clean up so many times. 

    Your husbands diarrhea may not be so bad, but it wouldn't hurt to have one bag on hand. 

  • CammieS
    CammieS Member Posts: 43
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    Trubrit said:

    Amazon.com

    Because I live in the rurals, so no big name pharmacies, I got most of my products from Amazon.com. Just an idea.

    Also, I know it might sound funky, scary and your man may not like it, but I couldn't have survived without my Depends. They saved me a whole lotta clean up so many times. 

    Your husbands diarrhea may not be so bad, but it wouldn't hurt to have one bag on hand. 

    Good to know...

    That's good to know -- I'll get a secret stash for him just in case he decides he wants them.

  • Trubrit
    Trubrit Member Posts: 5,796 Member
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    CammieS said:

    Creams

    Thanks!

    He hasn't been given any prescriptions, yet, but we have a Aquaphor, Cetaphil and Eucerin. Do you remember your favorites?

    Still using them

    Aye, I remember them because I still have to use them. Sadly, the radiation side effects can linger for years. 

    So, when it was really, really bad I used Polysporin. The burn was constant and that was really the only thing that would tame it, for a while. Once the painful burn abated and the itch (oh, the itch. It truly drove me to distraction) and irritation came I used (and still use) Burt's Bees Lemon & Vitamin Oil (Bath & Body Oil also called something Mama Bee Nourishing Vit E Oil).  I also use/used and really love Bio-Oil. which soothes and heals the skin and is also wonderful on any surgical scars (and my arms and legs). I love it! It does have a slightly floral smell, which is undetectable when you use it on your bum, so will be fine for a man.    I also used Aubrey Pure Aloe Vera, which is Organic. Its pure, so its not a gel but a liquid. Very runny. Because its pure (the gel has an additive that keeps it fresh) you keep it in the fridge, and so it goes on cold and feel soooooooo good on the burn. I think I liked it for that instant coolness, but I liked the others for the calming and the healing. 

    I did use Aquaphor and Eucerin and one called CereVe. Like I said, I had a decent collection of creams. 

    Hope this helps.

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
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    Schedule

    You will find that having a schedule is a lot more easy to deal with besides jumping from one appointment to another on different days and different times.  Mine was the 5FU with oxy and if your husband is getting the oxy be careful of side effects from anything cold.  The radiation goes well at first without any real complications but the more he has the more it will burn his bottom.  Sorry can't remember if he has colon or rectal cancer.  Also, the more radiation he has the more tired he will become.  Treatment affects all differently so what he might experience another might or might not.  If he experiences anything that you don't think is right always contact the doctor immediately.  Also,  never hesitate to ask us on the board regarding anything either.  If he does get sick and the medicine is not helping, call the doctor to get something else.  Make sure he stays well hydrated during chemo and after and that he gets plenty of rest.  Stay out of the sun as he will burn very easily.  Hope he does well and you sound like a very loving wife to be helping him through this.  You deserve a lot of praise as well as your job is not easy.  If the other ointments you have don't work, try calmoseptine.  It's not a prescription but is bought over the counter and it works wonders.  It is a very thick barrier on the bottom when wiping can become very very sore.

    Kim

  • Kime2014
    Kime2014 Member Posts: 7
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    I'm almost a yr out from my

    I'm almost a yr out from my chemo using 5FU; didn't need radiation.  My tastes changed almost immediately as did touching anything cold.  Be ready to try different foods, condiments and drinks.  I also kept my leather gloves by the fridg, otherwise I couldn't touch anything in it without getting an immediate burning/tingling sensation from my fingers to forearm.  Since I did my chemo during hot weather, I found that occasionally I wanted something cold to drink.  However, my doc said not to swallow anything cold as it could damage my throat during chemo.  So, if I really wanted something cold, I'd take a sip of whatever and let it warm up in my mouth before I swallowed.  That seemed to quench the desire for me.  Take the nausea meds for at least the first 3 days after chemo, whether there is nausea or not.  I waited and paid for it.  There may be issues with sleep.  Even when I tried my hardest to stay awake during the day, I still couldn't get to sleep at night.  The doc can perscribe something to help.  I usually took something to help me sleep 1x per week.  I also experienced a severe case of the heebie geebies (feeling like I wanted to crawl out of my skin) about day 4-6.  I wish you and your hubby success with treatment.

  • Helen321
    Helen321 Member Posts: 1,459 Member
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    I'd just be repeating what

    I'd just be repeating what everyone else said but want to wish your husband good luck.  For nausea I did Ativan which is also an antianxiety so I never stressed either. I did this from day one because I tend to get nauseous in life.  Worked great.

  • CammieS
    CammieS Member Posts: 43
    Options

    Schedule

    You will find that having a schedule is a lot more easy to deal with besides jumping from one appointment to another on different days and different times.  Mine was the 5FU with oxy and if your husband is getting the oxy be careful of side effects from anything cold.  The radiation goes well at first without any real complications but the more he has the more it will burn his bottom.  Sorry can't remember if he has colon or rectal cancer.  Also, the more radiation he has the more tired he will become.  Treatment affects all differently so what he might experience another might or might not.  If he experiences anything that you don't think is right always contact the doctor immediately.  Also,  never hesitate to ask us on the board regarding anything either.  If he does get sick and the medicine is not helping, call the doctor to get something else.  Make sure he stays well hydrated during chemo and after and that he gets plenty of rest.  Stay out of the sun as he will burn very easily.  Hope he does well and you sound like a very loving wife to be helping him through this.  You deserve a lot of praise as well as your job is not easy.  If the other ointments you have don't work, try calmoseptine.  It's not a prescription but is bought over the counter and it works wonders.  It is a very thick barrier on the bottom when wiping can become very very sore.

    Kim

    Lots of prescriptions

    He's doing well this first week. He has three prescriptions for nausea (one is lorazepam), which he's taking before bed. Nothing new going on with his skin (yet) and no side effects to speak of (also, yet).

    So far, i think the most difficult thing has been learning to sleep with the chemo pump attached.

    I won't be shy if something comes up, either :-)

     

     

  • CammieS
    CammieS Member Posts: 43
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    Kime2014 said:

    I'm almost a yr out from my

    I'm almost a yr out from my chemo using 5FU; didn't need radiation.  My tastes changed almost immediately as did touching anything cold.  Be ready to try different foods, condiments and drinks.  I also kept my leather gloves by the fridg, otherwise I couldn't touch anything in it without getting an immediate burning/tingling sensation from my fingers to forearm.  Since I did my chemo during hot weather, I found that occasionally I wanted something cold to drink.  However, my doc said not to swallow anything cold as it could damage my throat during chemo.  So, if I really wanted something cold, I'd take a sip of whatever and let it warm up in my mouth before I swallowed.  That seemed to quench the desire for me.  Take the nausea meds for at least the first 3 days after chemo, whether there is nausea or not.  I waited and paid for it.  There may be issues with sleep.  Even when I tried my hardest to stay awake during the day, I still couldn't get to sleep at night.  The doc can perscribe something to help.  I usually took something to help me sleep 1x per week.  I also experienced a severe case of the heebie geebies (feeling like I wanted to crawl out of my skin) about day 4-6.  I wish you and your hubby success with treatment.

    Sleeping

    Sleeping has been hard for him, too; he gets up at least once a night. Taking half of a lorazepam tablet has helped, but I may ask him to take a whole one and see if he does better with that.

    He hasn't experienced anything with cold yet. I'm waiting for that to happen. I'll move some some bottled drinks in the crisper drawer so they're not as cold as they would be normally -- that might help him when it does become a problem.

  • CammieS
    CammieS Member Posts: 43
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    Helen321 said:

    I'd just be repeating what

    I'd just be repeating what everyone else said but want to wish your husband good luck.  For nausea I did Ativan which is also an antianxiety so I never stressed either. I did this from day one because I tend to get nauseous in life.  Worked great.

    Nausea

    He's only had one morning where he felt nauseous. I've been diligent about his water consumption and he's taking half a lorazepam tablet every night, mostly to help him sleep, but I think his mornings are better, too.