May 09, 2014 - 11:18 am
I have had 3 recurrences of malignant solitary fibrous tumors on the pleura of my lung. I am told that this is rare and that no other treatment is called for except surgery. I have Ct scans every 3-6 months to check for a recurrence. I am wanting to get in touch with anyone who may also have this condition to compare notes on what we have learned about this condition.