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Treatment

Guzzle
Posts: 473
Joined: Mar 2014

Friends, I start next Tue (bank holiday in UK) with a days chemo and radiotherapy and and overnight stay. Then its day patient for 6 weeks with another days chemo in the middle and at the end. I just want to thank all the wonderful people on this site who have helped me prepare. Over the years I have come to expect this from Americans which is why I value the friendship of lots of good mates in the US. Even given this you are a special,giving and generous bunch. What is uplifting is how much humour we have found in the face of adversity. I will write down the tech details and post next week as I know some of you will be able to translate for me. Looks like they are seeing if I can grind it out without a tube. Here we go. Had a curry last night. Got the Liverpool FC game and a few beers sun. Last run before treatment Mon. Sorry it took such a nasty situation to meet such nice people. All the best to you and yours, G.

KB56's picture
KB56
Posts: 241
Joined: Apr 2013

Guzzle, good luck as you start treatment and like I told my friends and family last year (I am exactly 1 year ahead of you on treatement as my chemo/radiation started last year on 4/24 after healing from the tonsillectomy that was  on 4/1), you can't get this behind you until you get started.   Keep that positive attitude and follow the advice that you recieved on this site as far as hydration, pain management and nourishment, and June will be here before you know it and you will be finished.    You will have some pretty tough weeks ahead of you but stay strong, lean on friends and family, and this  part of the journey will be behind you before you know it.    

Also, this isn't the first time our friends in the UK have asked us for help and we came to the rescue and bailed you guys out:)  Good luck to you and keep the faith!  You will be fine!

Wishing you all the best,

Keith

Guzzle
Posts: 473
Joined: Mar 2014

Keith, don't think we ever forget the sacrafice Americans made and that America could have chosen not to. I have many buddies in the military. If they have to go to war they would rather stand shoulder to shoulder with your countrymen and women than anybody else. We have just commemorated the Hillsborough tragedy here but the Boston bombings were also foremost in our minds a year on. Brits know we have much more in common with the US than with Europe. Maybe we should become a state! Hopingfor an LFC win this weekend and a few beers. Easter food. Then right into treatment. Must go shopping for that electric razor! Hope you and yours enjoy Easter weekend. Weather actually good here for the moment. Fingers crossed there is nothing nasty lurking out in the Irish Sea.

CivilMatt's picture
CivilMatt
Posts: 2866
Joined: May 2012

Guzzle,

Well, I don’t need to tell you to drink, but I want to tell you to drink plenty of water and swallow till your ears pop.   That was the best advice I received from the H&N clan before I started treatments (minus the ears popping).

Here’s to a smooth ride,

Matt

Duggie88's picture
Duggie88
Posts: 528
Joined: Feb 2010

I am counting on you to kick some butt. Time to shanker down and don't let the bas--rd up for air. You can do this and we are here to cheer ya on. I'm given ya a drum roll.

      Jeff

denistd's picture
denistd
Posts: 488
Joined: Apr 2009

hey there scouser lad, enjoy the beer this weekend, will start to taste lousy after a few blasts of radio to the jaw area. I found that propped up in my bed helped keep the mucus down for sleeping, just made a wedge out of two pillows and fell asleep. Are you getting Cisplatin for the chemo or what, it is importane to know what it is as to what the side effects will do. I took a drug called emend about an hour before chemo and for two days after chemo, did not get the bad nausea, it's a great drug. As everybody has said stay fed and hydrated, I would drink a ton of water during the day and still do. You have to protect your kidneys from the chemo, hence the water. Hopefully they will have LFC on here over the weekend. West Ham sucks right now, I could not watch them against Arsenal. Denis

GavinP's picture
GavinP
Posts: 80
Joined: Feb 2013

Good luck with your treatment and enjoy "beer and curry night"

Your going to do great. I've been reading your threads and your positive attitude will see you through. The fact you are so physically active/fit will be a HUGE benefit as well, IMO.

You'll have this thing beat in no time given your PMA.

And as you say, the folks here are great, so keep in touch.  We'll be with you all the way.

 

Gav

phrannie51's picture
phrannie51
Posts: 3634
Joined: Mar 2012

all the way to Montana.  You're going to do well, I think.....you have the kick-azz attitude, and can-do thinking that it takes to get through this.  If you end up needing a tube, well....so be it.  "T" (fishmanpa) didn't get his till the last day of radiation......... :)

p

donfoo's picture
donfoo
Posts: 1166
Joined: Dec 2012

I think we are cut from the same cloth.

Looks like they are seeing if I can grind it out without a tube

My kind of med experts!

You go brother, hit it face first! You will do great. Just remember every hour HYDRATE - NUTRITION - PAIN MANAGEMENT. check those three and you will avoid the big potholes.

debbiejeanne's picture
debbiejeanne
Posts: 2299
Joined: Jan 2010

guzzle, i'm glad you are getting started so you can get finished!!  i know you will do great and come thru this w/few problems.  we will all be right there cheering you on.  if you listend hard, you will be able to hear us....go Guzzle, go Guzzle!  we'll be there if it gets rough too.  we're on the sidlines so don't forget that.  wishing you the best and can't wait until you ring that bell!!!!

God bless you,

dj

Guzzle
Posts: 473
Joined: Mar 2014

Gav, didn't know you were a Brit. We have a small colony here now! Denis, West Ham look like they will stay up but Allardyce plays awful football (soccer). Thanks for all of your marvellous encouragement. I do appreciate it. The hospital is actually 30 miles away which is no distance in US terms but on the chemo days they are keeping me in overnight which will be quite relaxing then discharging me the next day at lunchtime after rads. This will give me a chance to catch up with the team and pick their brains. Beautiful morning here on Merseyside so a run on the beach may be just the thing. Never had so much time on my hands. Don will remember the mantra! Already eating like a racehorse! Will keep you all posted and note exactly what drugs they are giving me. Have a great Easter weekend, Gary.

Guzzle
Posts: 473
Joined: Mar 2014

.... The most beautiful day of the year so far. Clear blue skies, no wind (which is unusual on the Irish Sea Coast!) and been for a leisurely 5 miles. Only way I can tell Ive had a neck dissection is a numb ear/neck. Weighing in at 14 stone 5 pounds and will try to put a bit more on ready to come out swinging Tuesday. Objective to get thru therapy and recover to travel to Malta with some Factor 50 3 months post treatment (ambitious!). Secondary to hire a bike and cycle round Gozo whilst there (Very ambitious!). Tertiary objective return to light excercise to recover muscle ASAP post treatment. Gotta aim high!

katenorwood
Posts: 1812
Joined: May 2012

Sounds like you'll be a few days ahead of my brother w/tx's.  Pretty similar plan of attack though.  I will keep you tuck in the pocket w/prayers and warm thoughts throughout.  We'll keep in touch and help you both through.  Hugs sent !  Katie

PJ47's picture
PJ47
Posts: 332
Joined: Sep 2013

I have not had the courage to try it again yet 4 mos. post rads.  

I hope you can manage without the tube.  Had it but did not use it.  Chow down and enjoy your holiday,

PJ

Guzzle
Posts: 473
Joined: Mar 2014

Here in UK. Lovely weather which is never a fotegone conclusion here! Been to Crosby beach by the Anthony Gormley Ironmen Scuptures ( lovely spot. The installation is called "another place" if you are interested in public art). Katie I will be thi king of your bro' and fire over any tips I pick up. PJ a guy over here got back to curries 2 months post treatment but only mild ones. Curry is a big thing here because of our historic links with India and Pakistan. It is ip there with fish and chips! I think it will be some time before I return to my fire eating ways (if ever!) but a small price to pay if it keeps me well. It will be interesting to see how palate is effected. A regular contributed to this site actually developed a taste for spice. So I hope you get your spice buds back. I am also hoping to persuade more of my US friends to follow Liverpool Football Club before tonsil dad converts any of you into Manchester Utd fans!

GavinP's picture
GavinP
Posts: 80
Joined: Feb 2013

Up at Liverpool tomorrow and much of Easter Sunday as well. Will probbaly be wet Sunday night and may be a bit showery Easter Monday, but overall "north and west is best" this holiday weekend. Enjoy it.

(Disclaimer: I'm an amateur weather forecaster, not a pro ;) )

josh r.
Posts: 180
Joined: Oct 2010

Hi Guzzle,

 I'll be lifting one to you on Tuesday with cheers in your direction. All the best, josh r.

Guzzle
Posts: 473
Joined: Mar 2014

Josh, Ill raise one to you Sunday mate. Gav blue skies here. Where you travelling from? Have a good journey. It was very sunny yesterday. Regards. G.

GavinP's picture
GavinP
Posts: 80
Joined: Feb 2013

I'm down in Northamptonshire, but I'm not travelling this weekend. I'll be in the rain here tomorrow afternoon, so spare a thought for me, ;)

Guzzle
Posts: 473
Joined: Mar 2014

Line in. Waiting for chemo to be pumped in for 12 hrs. Will find out what the chemical is but radio wise got 33 fractions at 66 grays? Dr. Reckons 60 /40 in my favour no tube. If it was she uses a nasal tube as its only on one side. Favours PEG if both sides getting zapped!

Guzzle
Posts: 473
Joined: Mar 2014

Cisplatin?

Guzzle
Posts: 473
Joined: Mar 2014

Actually sitting here wired up to it now. Sounds like a dodgy sparkling wine. Also had my first zapping which wasn't overly unpleasant. For the first time in a year have a damn cold which made nose breathing in mask tricky. I know because of all the advice you have given me it will get tough. Have been eating like a horse , drinking like a fish p***ing like a race horse. Will take on enough meds to qualify as a member of Aerosmith if required to get through. Wi Fi in hospital excellent making Netflix a good option along with new Jo Nesbo hardback. Three courses for lunch / dinner. I never used to take a lunch break. NHS really want to fatten you up? I joked that I wanted to be the first to go through this. And put weight on. V. Unlikely!

Ingrid K's picture
Ingrid K
Posts: 811
Joined: Mar 2011

Guzzle:

I hope ALL of the rest of your treatments go as well for you as today's. 

You very well COULD be the first that gets thru treatment and comes out with weight gain.....that would actually be a wonderful thing !!

 

6Cyn's picture
6Cyn
Posts: 25
Joined: Sep 2013

It really is great to be started and on the road to getting rid of cancer.

 

Best luck to you!

Cyn

KB56's picture
KB56
Posts: 241
Joined: Apr 2013

Guzzle, hopefully all your treatments will go as smooth!   Netflix will really help pass rage time and they have some great programming for sure.

i can relate to the radiation but I had Erbitux vs Cisplatin.  It's amazing to mr how it seems like we all have similar cancers but the chemo drugs can be so different.  i really wonder why the chemo piece isn't more standard?   Regardless, every doctor has their preference and lots of success stories here with all of them. 

Eat everything you csn get your hands on and gain some weight!  I'm impressed how well you bounced back after the tonsillectomy so hopefully you'll handle the next few with flying colors!

Keith

Ginadet
Posts: 7
Joined: Aug 2012

Hi Fellow Brit!  I am a lurker and don't post much, but wanted to wish you well!  I live in the States and the first thing I have whenever I go home to England is an Indian!!  Have not been back since treatment so we will see how that goes when I do this Summer as I cannot do spicy at the mo :(

Guzzle
Posts: 473
Joined: Mar 2014

Hi Ginadet, got some contacts over here who state that you slowly regain your curry buds. Let me know when your next in Blighty. I found a v. Good curry house in NYC called Brick Lane last year. Very Central in Manhattan. Charged 4 times what they do in Brick Lane but I suppose its Manhattan. You can still find good, cheap places to eat in London. Friends thanks for all your thoughts. The mask was unpleasant as I have a stinking cold and could breathe through my nose. And just taken an anti nausea pill. Which obviously me feel nauseous. I don't know what it is with the different bands of chemo. I know the cisplatin is "mixed" here and dispatched to ward.I had 4 hours saline either side hence staying in. Forced hydration I suppose. And force fed food, water, hot drinks in a nice way. Loads of anti nausea meds to go and a 24 hour nurse hot line. Issued with a thermometer in case temp gos up. Quite a good service and very pleasant staff. I knew there was a reason I had been fundraising fot Clattetbridge cancer centre. Glad to have that drip contraption (Dalek - Keith another challenge for you mate!) as Brits and American geeks will know what this is! I doubt you fit either category bud! Just snuck on scales. Early days. Plus two pounds. It cant last.G.

ongsoonan
Posts: 6
Joined: Mar 2014

Hi Guzzle,

Good luck to you and I am sure you can go through this treatment.  I’m just nearly 3 months post treatment of NPC and going to do the scanning in July.

ong

Guzzle
Posts: 473
Joined: Mar 2014

Thanks. End week 1. Cispulatin ? Chemo and 4 rads due to holiday weekend. 2 chemo and 29 rad to go so still in honeymoon period. Slight nausea but ok with tablet. Gained 8 pounds though I know this will be reversed. Rib Eye steak for protein tonight. Just been invited to Michelin starred restaraunt in December. Will be nice if I can go with taste buds! Going to have a curry tomorrow. I know each one could be the last for a while. Having to reduce excercise driving me nuts! Has to be a balance U suppose to keep energy/weight up. Cheers and have a good weekend all. G.

Guzzle
Posts: 473
Joined: Mar 2014

Just ordered Indian curry. Treating every one as if last for a while as don't know when taste buds will start to frag. If any of you get Brit Sport LFC on 1400 GMT tomorrow in title decider against Chelsea. Week 2 starts Mon. Have a great weekend all. G.

KB56's picture
KB56
Posts: 241
Joined: Apr 2013

guzzle, 1 week down is fantastic and congratulations!   It's good to get that 1st week under your belt as you're that much closer to being done!   Have you noticed your mouth a little dryer, especially at night?  just try and stay hydrated and eat  as much as you can as often as you want.  I'm not sure I could handle Indian food as one of my choices but you guys love it in the UK because that was the only place you could get a beer once the pubs closed!  I got sick on Indian food in Singapore one time and haven't eaten it since.  

 

I'm really happy your first week went so well.   keep the positive attitude and keep on checking the treatments off the calendar 1 by 1.  

 

Keith

donfoo's picture
donfoo
Posts: 1166
Joined: Dec 2012

As they say in Britain. Your food consumption is verociously loud like the Hoover got got in overdrive. Best effort I seen around here in a long time. Lol? Keep it up. On average the wall finds about two weeks out. You'll have lots recent memories to help drive to the other side. You got ATTITUDE  my friend. i bet you roll across with only two flat tires! 

Guzzle
Posts: 473
Joined: Mar 2014

Keith, the pubs never shut if you knew where to go! I have noticed mouth little dry and balance between hydration and not running to take a p**s all night a delicate one! Hope your wedding trip was good. Don alas I am sure my curry days will be temporarily over soon! But Ill enjoy whilst I can. G.

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