Apr 11, 2014 - 11:44 pm
Help! My 14 year old son wa diagnosed 3/19 with Nasopharyngeal Carcinoma. He has had his first round of chemo ( Cisplatin and 5fu). His treatment plan consists of a total of 5 chemos and 7 weeks radiation. THere will be 3 rounds of chemo every 3 weeks. The last two rounds of chemo will be combined with the radiation.
I have so many questions so please let me know anything you may feel is important, even if I do not specifically mention it. What kind of side effects can we expect and in your experience did anything help?
Radiation or Proton therapy? I have read that proton therapy should have less side effects, however, I am worried about his state of mind if we end up doing proton therapy because we would have to leave home during that time. He had a difficult time being away from home during the first round of chemotherapy (5 days in the hospital).
I am also totally confused about all of the scans. The 1st CT Scan (full body) findings stated the issue had not mestatasized. Then a PET Scan showed a lesion in his pelvic area. X-Ray no findings. MRI large area of edema which means possible metastasis! Really I don't understand how each scan seems to say something different.
Just please help me understand what is going on. What questions to ask the doctors etc? I am having a difficult time being strong but now add confusion and now I feel like I am crumbling!