Mar 27, 2014 - 12:28 am
It is almost 5am here and it has been a sleepless night so far. I had started on Votrient a couple of weeks ago, 800mg. I developed severe pain in the liver and nausea to the point I could not eat. I stopped taking it a couple if days ago in the hope that my new Oncologist would agree to make some changes. The previous Oncologist had been insistant that I remain on the high dose regardless.
The update is that at long last I was transferred to the Cancer Centre in Rennes, I am now under the care of a Kidney Cancer Oncologist. A few months back I was advised they didn't exist, which was why I was under a regular Oncologist. Anyway! she has gone through my scans with a fine tooth comb. I had my first appointment with her yesterday and she brought up my January scan, which supposedly showed that I had a tumour in each lung, and on and around the kidney. Well they say be careful what you ask for, which for me was someone with 20/20 vision, and she certainly fitted the bill. I have over 20 tumours, many of which are in my lungs, I have five in my right and nine in my left.
My initial diagnosis was stage 1b grade 3, I was advised it was not a very agresssive type. This Oncologist advises me that it was very agressive, hence the rapid spread. She was very surprised that after discovering the cancer had spread back in December, I has not had a brain and bone scan. I had repeatedly asked for them! So that is the next thing on the agenda, I just hope to God they at least come up clean. So all in all things are not looking too good! I have at least had the Votrient reduced to 400mg, with a view to increasing it slowly. I am also going to have a two weekly blood check, which was not mentioned, along with so many other things, by the previous Oncologist.
So I don't know if this is too little too late, or if the Votrient can still stem the flow. I certainly hope so as some good news is long overdue;(