Mar 24, 2014 - 2:06 am
So I had a TT and partial neck dissection in May 2008, papilary with a folicular variant, 20 lymph nodes removed, 5 positive for cancer. 7 weeks of ebrt and then RAI 131. Had 2 clean follow up scans and bloodwork twice a year at first then once. Switched to the new blood tests last year that measure a much smaller level of thyroglobulin and had none detected. This year, for the first time ever I had bad dreams and was worried about my results, maybe since it was my 5 year clean check up. Nope. Have .05 whatever of thyroglobulin detected. The lowest possible level to detect but still, last year it was clean. Scheduled for LID and a scan and the thyrogen blood work in May (can't do it any sooner) but I feel in my heart that my cancer is back. I know I'll get through it again and I know it won't be as bad as last time, no ebrt for sure, but I'm just so angry. I was ready to move on with my life and I thought I was done with this. I feel like the finish line is moved. Maybe I'm jumping the gun but has anyone had a false reading on their thryoglobulin? Just venting and hoping maybe someone has experienced a false positive for this. I'm preparing for worst case scenario, which won't be as bad as what I've already gone through, but looking for a little ray of hope I guess.