Mar 21, 2014 - 12:00 pm
Our story: My husband was diagnosed at Stage 4 two years ago. We have been to two large metropolitan teaching hospitals and also local treatment facility. We have seen a total of 5 RCC Oncology Docs. (they keep relocating and getting new jobs). On our very first visit we were told there are 7 drugs and we will go through each one and after that there is a clinical trial for patients who still have their kidney tumor and are not having surgery that we can look at. We certainly did not want to be in that trial. Since then, trials have not been mentioned at all. My husband has taken Votrient, Affinitor and currently Inlyta. After reading so much here about people on trials, I asked at our last visit about possible trials to participate in. The response was that we would talk about that later when everything else is exhausted. I even mentioned Cabo, Nivo etc.. It's interesting to me that participation is not discussed or encouraged.
I recently did a trial search online. I think it's a bit overwhelming.
Thanks a bunch for letting me know your experience.